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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About Mari

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    Advanced Community Member

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  • Gender Female
  • Interests genetics and genetic genealogy, reading, gardening, wood carving

    DQ6/DQ8 Diagnosed 2006
  • Location Northern California
  1. Chronic Constipation

    I have used cascara sagrata and senna. These herbs can be habit forming so it is not good to use them daily. Diet, I've found, is very important. I eat gluten-free breads, vegetables with fiber, potatoes for soluable fiber. I drink lots of carrol juice. If I eat too much fats or oils it results in 'sticky stools' which do not pass through the small or large intestine easily. Since I have adjusted my diet and included 1 or 2 Magnesium oxide (300 mg) capsules every evening I have not had to use herbal laxatives for several years.
  2. This report reminds me of a tissue typing report, a woman had been tested for compatibility for a bone marrow transplant and it seemed she did have one of the main celiac gene DQ B alleles. The DQ B alleles correlate more than 99% with a predisposition to develop celiac disease so for this purpose the results of the DQ A alleles can be ignored. The DQ B *06 alleles are a subgroup of DQ B *01 and some of them confer a risk for developing non-celiac sprue. This is a gluten induced leaky gut syndrome. It appears the neither child has inherited a Main Celiac Gene (DQ2 or DQ8) but there are rare combinations of some of the other DQ B alleles that put the person at risk.
  3. It's wonderful that you have come through the withdrawal and are finally feeling the good effects of the gluten-free diet. There was a lot of comment about a year ago when a scientific paper reported that gluten and casein both contain addictive opoids and some people were having as much trouble with the withdrawal as you had. The other posters have given you some good advice and you can look forward to feeling better.
  4. Lately I've been using futurebiotics Vegetarian Enzyme Complex. It has several digestive enzymes, Lactobacillus spores and Betaine-HCl all in one pill. When I buy probiotics I would get one with a mixture of good bacteria. The last that I used had 9 different 'good' bacteria. Mostly now I use sheep milk yogurt with live cultures. Some people use both milk and water Kefir. Some people buy a large yogurt maker and use cow or goat milk. Some people use sauerkraut with live bacteria available in most health food store refrigerators.
  5. I think it is clear from your lab tests and symptoms that you have Celiac Sprue. I had an elevated antigladin IgA but a normal TTG blood test. I had floating stools so I had sprue. I read that people with flattened villi would often show a normal TTG so if that test is used for diagnosis it misses some people who have extensive flattening of the villi. If you email enterolab they will tell you more about their TTG assay. Any elevation of the TTG antibodies is considered a positive test, even such a small elevation as you had.
  6. I did a search for 'dgp iga' Here's one result: Positive Deamidated Gliadin Peptide Antibodies and Negative Tissue ... Mar 31, 2010
  7. I developed an allergy to hot peppers several years before being diagnosed with celiac disease. Then I read that this is a fairly common allergy for Celiacs. Even ketchup gives me a reaction. Allergies to wheat and related grains is also common with Celiacs as is cows milk allergy and lactose intolerance. Besides the rice you may be able to eat gluten-free buckwheat and gluten-free millet and most of us can eat gluten-free oats. You have been gluten free for only a short time and your problems with foods will decrease over time. I speeded up my recovery by using the Specific Carbohydrate Diet and tho recovery was slow I have been able to add quite a few foods to my diet. Some of the people on this forum are very good at understanding laboratory and biopsy reports. You could get copies of these tests from your Dr and post them in a message. Be sure to put the normal range with your results. Not all Drs understand that a person needs to follow a gluten challange diet before the blood tests are taken.
  8. I would probably ask a Dr to do a urinalysis and culture to rule out a silent urinary tract infection and a test to rule out diabetes if I had not been tested recently. It seems seems possible also that your body is storing too much water as you are resting and when you become more active it is excreted by your kidneys. There is usually a small weight loss when the body excretes excess fluids. Our bodies go through a variety of changes when we go gluten free but if this uncomfortable situation persists then getting it checked out might save you from having future problems.
  9. Most of us who choose to not have surgery for bile system dysfunction and congestion are able to improve or eliminate the congestion by doing programs that have Liver/Gallbladder Flushes. There are several Liver Flush Support Forums online. Most of the programs advise parasite programs, a method of softening or dissolving hard calcium stones followed by Liver Flushes. Several experts have produced books on Liver Flushes - Hulda Clark, PhD, ND; Andre Moritz; Dr. Richard Schultze and Dr. Sutter's coke Liver Flush and others. I have been using one of these programs for the last 20 years and found it very helpful before I was diagnosed with celiac disease. I have been gluten-free for 6 years and no longer make so many stones and sludge and have been able to do the LFs less often. It seems that only an rare person who has damaged tissues, usually caused by an infection, will need their gallbladder removed.
  10. I would go thru that cycle and still do sometimes. Stomach Acid levels decline with age and affect the adsorbtion of Vit B12. Has your Dr ordered the test for B12 and Folic Acid levels? Some people need injections of B12 to keep their levels up. I used sublingual 1000 mg B12, B6 and Niacin but found it disagreed with me so took the injections for a month or so then started using Betaine HCl and eating red meat and liver. For that tired feeling I eat vegetables and a little meat for breakfast. Later on I have some cereal with a combination of 1/2 ripe banana, prunes and either apples, pears or nectarines. My next meal will be greens, 1 egg, cabbage, carrot and sometimes beets with mayonaise or vinegar. If I'm hungry in the evening I eat broccoli, string beans and another carrot. I find the food lists from the Specific Carbohydrate Diet helpful in choosing the foods I eat.
  11. Gluten Free Diet In Asia

    I just saw your message, hope you are still checking back. I would buy a small rice cooker and if possible take along a bag of gluten free rice. Baked potatoes and yams in the skin will be OK. Millet and buckwheat may be available. Disposable dishes/plates/eating utensils. I you have some specific concerns just ask. I have a niece who has spent 2 summers in China and I'll ask her.
  12. Help

    I was having the same problems with foods when I was diagnosed. It has taken a while to add foods back to my diet. It helped to follow the online SCD diet. Bananas give me stomach aches but now I eat a lot of them. They have to be very ripe, no green, lots of brown spots. I can peel them, dip them in Vit C or lemon water and freeze them in small bags for snacks. They are OK cooked with gluten-free millit, rice or buckwheat cereal. I can mash them with cooked winter squash, raisins, cooked pork, pears, coconut. Unless they have been frozen I have to mix them with something. Fruits I can eat are apples and pears. Prunes, dried cranberries and raisins I soak in Vit C water to deactivate mold toxins. Can't tolerate grapes or fresh prunes/plums. Grapefruit, tangerines OK but oranges less OK.
  13. Over about a 10 year period my weight went from about 140 lbs to less than 100 lbs. 5 years gluten and cow dairy free I'm still trying to get back up to 120 lbs, a good weight for my age. I have gained a few lbs but then lost it when I was glutened or developed intestinal overgrowths of yeasts and bacteria. Right now I'm able to eat more but have not added any weight. I also had some intestinal parasites which I got out using herbal remedies. I eat a lot of ripe bananas ( no green on them, lots of black spots) buckwheat, rice and millet cereals all gluten-free. small amounts of meat once or twice a day, one egg a day. winter squash, carrots and green veges. Sheep's milk yogurt. Apples and pears. prunes and small portions of organic raisins, cranberries. I buy a bunch of very ripe bananas, slice, dip in water with Vit C (lemon works too) then freeze in small bags. Makes a delicious snack. There are some websites where you can calculate the calories in the food you eat. Other websites where you can calculate the fiber content of the foods you eat.