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Mari

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Mari

  1. Most helpful was the response by Scott Adams who posted some llinks to articles.
  2. Hi Shortsgirl - = So sorry that your parents are not accepting of your need to stay Gluten Free. You need to get out of this game they are using to convince themselves that you are a person that does not have this problem. Kitty knitty wrote that they are in denial. That is often a word associated with addiction. It is well known that wheat and or gluten...
  3. Hi Mitchmap, I've been gluten-free for 18 years. The Dr. did not tell me about the gluten challenge before taking the Celiac Panel blood test. The IgA was elevated but the TTG was in the normal range. I was eating very little gluten foods at that time. When I see a new provider they want to do the endoscopy (camera) but I tell them that if I'm glutened...
  4. Thank you Scott Adams. I was hoping for some references. My eyesight is poor so it makes it difficult to find references, difficult to read small print. I will share these links with my nephew.
  5. In the United States there is a laboratory - Genova Diagnostics, that offers very complete fecal examinations. I asked a Dr. to order a fecal test from them and they sent me a collection kit with dry ice. I collected the sample and sent it back the same day with UPS. The report was extensive and picked up a parasite and an intestinal pathogenic bacteria...
  6. I seemed to have had celiac disease from when I was about 3 years old and was diagnosed just before I turned 70 so I have been gluten-free for 18 years. I think that my sister also is Celiac but with quite different symptoms. She had extreme hair loss dating back to about her first pregnancy and has worn a wig for many years. Her son took the 23&me test...
  7. Hi Emma - I just wanted to share some information I learned after a Dr suggested that I had gluten intolerance and I began researching this problem. It seems that when a person begins to react to gluten grains that the reaction starts at the lower part of the small intestine just above the ileo-Cecal Valve. This is a small sphincter muscle on the right side...
  8. Hi Natalie14, To avoid having a reaction to small amounts of gluten in your food keep a supply of anti gliadin enzyme capsules to take with each meal. I use the product advertised here, GliadinX, but different brands are offered at your local pharmacies. One person suggested that you have your own gluten-free toaster. Also a rice steamer would...
  9. Hi Mads - I have wondered for years why so many Celiacs report having such immediate reactions to foods containing gluten. Others here have suggested you could have food intolerances or allergies which you may discover , remove from your diet and have less problems. But for more immediate relief it reminded what my health provider said when I told her...
  10. About 10 years before a Dr. suggested I might have celiac disease and ordered a Celiac Panel I began to have a strong reaction to hot peppers and now cannot tolerate any amount of hot peppers without reacting. Over the next few years I began to react to almost any spicy herb and despite being gluten-free for 17 years these sensitivities persist. Back then...
  11. Hi Jane07 - I tried keeping eat out of my diet but it did not work for me. That was 16 years ago and now there is a lot of advice online for Celiacs who want to be vegan or vegetarian, Put "gluten free veg" in your browser and many helpful sites come up. You may still need to add some supplements such as Vit B12 and D3. Your health provider can order some...
  12. Well this is Saturday evening and I hope you are feeling a little better. But if this is dragging on and still a problem it could be best to see your provider or return to the ER soon to have this checked out.
  13. I had that problem for years so I know how uncomfortable it can be. Now I don't have heartburn very often. The first remedy I found was an Aqueous (water based) Lugol's Iodine solution called Stomach Saver. I buy it online. If you use this start with only one drop in water then build up to the full dose. Do not use topical iodine solutions as they are not...
  14. Hello again Nikki - I think you and your husband are doing well. As long as you have an income you can put aside enough money to cover your expenses when you decide to retire. There are some good options. Some of the people in my age group and younger have gone to live in apartments in Senior living facilities. They have kitchens and all that you would need...
  15. Hi Nikki - I went through a period after I was told I had Celiacs when I was 70 of looking for a place to go when I retired. That was in 2006. I wrote to several places mentioning that I needed a gluten-free diet and had some allergies and was very sensitive to chemicals. No replies to those messages. I posted in several Celiac forums but did not find others...
  16. If this type of approach keeps you from having these episodes you have described then that is good. I hope so. If not you can read some of the other comments and work with your health care provider to find other causes of your episodes.
  17. Hi LindaLee - I have had a similar problem with constipation but not from an injury but it seems that I have narrow areas in my gut so that the bolus doesn't move along smoothly but gets hung up in these areas. I don't usually notice this when I am awake and moving around but it keeps me awake when I go to bed. Before I went gluten free I found that I could...
  18. Welcome To PPA Physician's Plasma Alliance is made up of healthcare professionals collecting and distributing specialized blood/plasma and other biological products throughout the world www.physiciansplasma.com Follow the link to find out all the diseases they are interested in and more information. I have not written them to ask what the plasma will...
  19. About 4 years ago I remember seeing messages from 2 people who had your combination of autoimmune problems. I searched for 'hemochromatosis celiac' - sone of the websites Celiac Disease and Liver Disorders Case histories show that iron overload and diagnosis of hereditary hemochromatosis often follows successful celiac treatment. Also, British patients...
  20. I was able to eat grain-free using the Specific Carbohydrate Diet. I find this diet satisfying - my staple foods were vegetables, winter squash, meats and poultry and found a source of organic, gluten-free goat's milk yogurt. There is a recepie book available. Using this diet I have been able to add back some small amounts of grains, mostly rice but sometimes...
  21. Several years ago a woman in the Army who had celiac disease wrote in. She had been deployed to Afganistan or Iraq to train Afgan/Iraqui soldiers out away from any city and was trying to live of the army diet and was having increasing problems. I think she was an officer and did not want her problem known to the army. gluten-free foods were not available...
  22. I wake up mornings with swollen eyes and bags and have not found that being off gluten has helped much. The only things which have helped was when I did a whole year or so of internal body cleanses (parasite, kidney, liver flushes and various liver support and toxin removing herbal programs). Its possible that you have some food allergies and if you are...
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