I'm new to this group, so I'd like to introduce myself. I'm a thirty something college graduate who was just diagnosed last year with celiac's disease. I've had symptoms all my life, but no doctor could come up with a diagnosis. I would have all the so called classic symptoms, constipation and diahhrea (with all the joy they bring), extreme edema, anxiety, depression to name a few. At one point a doctor told me that because I was extremely constipated, I needed to "eat more fiber... like whole wheat bread". I went back a few days later, (after sitting on the toilet all night after he suggestion), and complained that the fiber worked a little TOO well. She said "well then, try eating pasta, it should easier to digest". Wrong again doc... This went on for years with different doctors. I got pretty much the same response, or worse, they gave up on me or told me that I was putting on an act.
Anyway, I got diagnosed and am happier. I had to leave work several times and didn't come in at all because of my symptoms. I've tried to get FMLA through the doctor who diagnosed me but he refuses, saying that it doesn't pay since the Feds don't consider it a chronic disease.
How can it not be chronic if I can flare up if even the teeniest gluten crumb comes across my lips?!
Do I have any other legal recourse? I'd like to stay with my doctor because he does seem to be more knowledgable about celiac's disease than other G.I.'s im my area, but if I have to, I'll switch to another one.
I've almost beend fired in the past because of the "point" system. Each time I got sent home it was either a "half a point" for staying at least part of the shift, or a "whole point" for not coming in at all. We are allowed 8 points and then it's automatic dismissal. At one point, I was a little over, because they sent me home (a co-worker thought I was in too much pain and called my boss over. The boss sent me home even though I could have worked through the pain). They eventually let me come back, since I had a good work record, besides the problems with attendance. This being said, I still have occassional flares, from an unknown source of gluten, which I believe is at work somewhere.... and am afraid I loss my job if I have any more problems.
Please help me!