This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I have been reading this post with interest. Almost 4 years ago, I wasn't feeling right and I went lactose free. I was better but since having two relatives with confirmed celiac disease, I thought I would eliminate wheat, as well. For 3 yrs I was gluten-free/LF. Last summer (of 2011) I reintroduced lactose into my system. I have been fine. I am now wanting to slowly reintroduce gluten as I realize it was dumb of me to go 100% gluten-free for no real good reason. I had the saliva test for the celiac gene (I don't have it) and had some type of blood test (the Dr. said that it was negative, as well). I have the same symptoms now that I had 4 yrs ago and I'm thinking it was just the lactose bothering me mildly. I know that if I go 100% back onto gluten, of course I'll have problems. I'm just wondering if anybody knows how slowly I would need to reintroduce it. Take something like a dinner roll and eat 1/8 or 1/4 teaspoon size of it every day for two weeks and then on the 3rd week, eat 1/4 to 1/2 teaspoon for two weeks etc? Or, is that unrealistically too slow? If I at all redevelop symptoms, I will quit the gluten. I just need to know, though, for sure in my own mind, if it's a wheat sensitivity or not.
I had the saliva test and it came back negative, too. I've heard you could still be gluten intolerant, just not have the gene to get the actual celiac sprue disease. Like you, I get horrible when not on a gluten-free diet and, like you, I am lactose intolerant. My mom and my aunt both have the celiac sprue disease and so I was aware of it but it didn't seem to manifest in me until I turned 50, a few years ago. And, again as far as I understand, the yucky poop you describe is the result of the malabsorption, for sure. Of course, you could always try for a medical diagnosis, but, short of that, if you feel better on a gluten-free diet, I say just go with it.
Wow! Even though these posts are old, they are helpful! I am 52 and self-diagnosed myself about a year ago. Both my mom and my aunt are diagnosed with celiac sprue. I did the Celiac ID spit test but it was negative. Still, I have been gluten free for about a year now, along with lactose free, and have done much better. Yet, this itchy ear I have had for 7 or 8 years doesn't seem to be getting any better. I also have DH, sometimes a mild case on my forearms, sometimes it looks hideous. I was told stress could do that and I am in a stressful job so I can't help that, I guess. Anyway, my right ear itches like crazy, smells bad most times, and, when I put a Q-Tip in there, it seems to be wet and stinks. I began telling my FP Dr. about it years ago. At first, he looked in there, with his otoscope, but saw nothing unusual. The next year, he gave me free drops to put in there but they burned so bad, I only tried them twice and threw them away. I have mentioned it to him in subsequent years but he always says he sees nothing. I don't know if I am still getting glutened or what?! My scalp itches a lot, too. I do eat popcorn (I noticed the post on popcorn) but not every day. I sure wish I could find out about my ear and how to make it stop! Thanks for all the posts!