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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About Eilidh

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  1. Hey, I am 17 as well and I live near Vancouver. I feel so alone with this disease because I know no one with it my age. I would love to meet people or just talk to people and exchange ideas/good recipes with people.

    You said your mum owns a gluten-free bakery? What is it called? I would LOVE to try it out :)

  2. Hi, I am 18 and was diagnosed with the beginning stages of Hashimoto's disease 4 months ago. When I found out, I did a bunch of research to find out how to treat it. In the process I found out that Hashimoto
  3. I agree. I have been on the diet for 7 years now and the more time that goes by the less and less I crave gluten. I know that I can never cheat because it effects me so badly, so why even sulk about it! I also believe that if we aren't supposed to eat something, then we should eat it... pill or no pill.
  4. Hey, All the symptoms you mentioned, including the pins and needles feeling, are symptoms of celiac disease. I suggest you Google celiac and see what other symptoms come up. Also, the meds you were on couldn't have caused you to have an allergy... If you have the gene than it gets triggered by stressful or traumatic experiences. It sounds like you had the gene already and the antibiotics triggered it into effect. It does suck, but it is better to follow the diet and feel good, then not and feel crappy all the time. Hope you feel better soon!
  5. Hey laughingchicklol, My heart just went out to you when I read this post, that is an awful experience! I have known that I was celiac since I was 12. I was never an unhealth kid, but I had stomach problems and skin rashes mostly. When I went gluten-free, hardly anyone knew what gluten was, let alone what it was in! So, I got a ton of cross-contamination, and was still sick for at least 2 years. Now, most of my family has dicovered that they are celiac, and my mom runs a gluten-free bakery. She has had to learn a lot about celiac disease and because of my own interest in it, I have done quite a bit of research as well. What I have learned is that it takes a while for your gut to heal, before it can start digesting again. It sounds like you were effected pretty badly, so it might take you gut longer to heal. I'm not a doctor, I am only 17, but I hope that you know that things will get better. I have met hundreds of celiacs now, and not one that I have talked to has said that they feel worse when eating gluten free. Some have said that they dont feel any better, or they dont notice a difference, and almost everyone says they feel great...but it always takes time. I really hope that you start to feel better, and I wish I could be of more help. Seeing another doctor would be a very good start, ask if they have any more suggestions or tips or new research to help you out. I always suggest to other celiacs to do as much research as you possibly can, the more educated you are, the more you can help others. Good luck! Eilidh
  6. Yeah, its definitely an awkward subject to bring up with someone your about to kiss. I have gotten sick from kissing guys after they have eaten gluten, though my symptoms usually come in the next few days. Where as, if I eat gluten myself, or get CC, then I get sick within a few hours. Partying is the worst. I have gotten sick many times because I have forgotten that, just because I don't drink beer, doesn't mean that they don't. The only thing that works for me is getting the guy to brush their teeth before they kiss me. It is a bit of a hassle and kinda awkward at times, but a bit of a hassle is better then not kissing at all.
  7. New Symptom!

    Hey, So I get mouth ulcers...but really badly. I only get one or two at a time and they last for up to 2 1/2 weeks! They are EXTREMELY painful and I end up eating very little food when I have them. The form that I have is called Aphthous ulcers. They are an auto-immune infection that often occurs when you have a low immune system. SO, when you get sick, or get cross-contamination, or eat gluten, your immune system has to work a lot harder to deal with the gluten and leads to low levels of immunoglobulin in the oral mucous membranes. Then if you end up injuring the inside of your cheek, your body has a very hard time replenishing your oral mucous membrane....leading to a canker sore or mouth ulcer. Thats at least as much as I could find out. They are not contagious, and so you didn't contract it from the kid with the cold. As for the pregnancy... celiac has been known to effect women getting pregnant, because the body takes such a long time to heal. When my mom was trying to get pregnant with me (before she knew she was celiac)she went to the doctor and he said that she wasn't absorbing nutrients, and to eat a lot of ice cream...and it worked. It might not be it...but it is all I can suggest. I hope this helps a bit. Good luck with the baby, Eilidh
  8. Hey Whalie, I am 17 too and have known that I am Celiac for 7 years. I have never used pot to numb the pain, because I get more then just pain when I eat gluten. My mom, my sisters and I are all Celiac, so we all had to make the transition together, and I guess that made it a bit easier. I had trouble with the fact that I was Celiac for years. But now, I have accepted that my body is never going to heal if I eat something that is killing it...and the pain is only going to get worse if I do. A few years after I was diagnosed , my mom's birth mom was diagnosed...then 2 of my mom's sisters (one of whom has 3 celiac kids). Now, the mother who adopted my mom has found out she is celiac AND one of her birth son! Crazy. This disease is hereditary, as I'm sure you have heard, so more of your family may be Celiac as well. The point I am trying to make is, that you are not alone. Numbing the pain is not going to cure you of Celiac disease, it is just going to take your mind off of it, but there is a healthier way, and that is to follow the diet. Really it is simpler than you think. I think the best way to get started, is to do what you already have done....get more info and talk to people. The more educated you are, the easier it gets. Ideally you would know, off by heart, the foods you can and cannot eat. But it is better to start off with something like a food dictionary. It might sound dorky, but it will be a life saver in the long run. Just carry it around in your purse or backpack. Next step is to read ingredient list. I know how time consuming and annoying it can be, but it will teach you to read closely and find the gluten hidden in so many products. After that, it is all up to you, ultimately you choose your own life. If you prefer to numb the pain, and watch your body suffer, thats up to you. But if you want to have a normal, fulfilled, and stomach painless life, then I highly suggest going on the diet and doing what ever it takes to stick with it. Email me if you want to talk more, Eilidh
  9. Hi, I am 17 yrs. old and live in B.C., Canada. If your daughter wants to email me, I would love to talk to her. I know how it feels, like most of the teens on this site, to be a young Celiac. It really sucks at first, but for me, it got easier. I have been on the diet for 7 years and I still get cross-contamination, I have also found out about a lot more foods that I am sensitive to. Celiac disease is and auto-immune disease, so your body attacks itself, and the first place to get hit, for most people, is the gut. When you eat gluten-free, your gut gets the chance to heal, and sometimes, people like me, discover other foods that they cannot eat. So, the fact that your daughter is still getting sick could be that she is getting some gluten in her diet somewhere, or her gut is in the healing process and is reacting to more foods that her body doesn't like. One way to find out, is to keep a food diary. It is annoying and hard, but it really does help. Get her to write down everything she eats during the day, and how she feels after. Let her know that she is not alone, and that there are hundreds and hundreds of other teens dealing with the exact same situation as she is. Good Luck
  10. Thats what I tell everyone. I known for 7 years, and since then a ton of my family has found out they have to eat gluten free. My mom now has THE best gluten-free baking business in BC, Canada, so I have it pretty good. But it is getting easier, people are really starting to least the people that I have met.
  11. So the bakery is called Laughing Daughters Bakery, we dont have a store front but you can find products on Salt Spring Island and on Vancouver Island in any of the Serious Coffee chains. If you have trouble finding places to eat, check the Search the area you live in or are visiting. My family and I found a few good places in Vancouver.
  12. Hey if you ever come to B.C...give me a shout, I know a couple others as well I live here and my mom has a gluten-free Bakery.
  13. That teacher is crazy and should not be teaching children! I am 17 and I have known for 5 years. Most of my family is celiac as well, so everyone knew. I didn't really have to tell my teachers because it didn't effect them, but when ever I do have to explain what celiac disease is to a teacher, they are usually understanding. The part that is hardest is the fact that I have to be extra, extra careful, and teachers never understand that I can be sick for a week if I get a crumb. As for telling friends, I have told everyone. I want more people to be aware of what celiac is. It was hard to see my littlest sister at 3 years old explaining what celiac disease is and asking adults "Is this gluten frwee?" The best advice I can give is to educate your child as best you can, so they can explain to other kids and adults what gluten is doing to their body. Life does get easier, and it is better when you feel like yourself.
  14. Hey I'm 17 and I live in B.C. Canada. I've known that I was celiac for 6 years. I live on an island where it is pretty common, because everyone is so intouch with their health. My mom actually runs a gluten-free bakery, so thats sweet, but there are only 2 teens here that know they have it. And I want to meet some more teens who know how it is. Anyone nearby?