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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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  1. About ten years ago I developed an ache and dull pressure in the right side of my abdomen after taking probiotics for a couple of weeks.  It was accompanied by cholestasis-clay colored stools.  I lived with it and about six years ago finally got a CT scan, which only showed mild gallbladder inflammation.  About four years ago I went on the Specific Carbohydrate Diet four two months, and within that time I stopped getting the ache and the cholestasis cleared up, only to return slightly within the last year after going back to a bad diet which included wheat (I'm gluten intolerant) and occasional dairy (I'm also casein and whey intolerant).  Although it had returned slightly, it wasn't anything alarming and I just shrugged it off.  Two weeks ago I had a large bowl of white rice and black eyed peas, and my right side began aching badly to the point that I could feel it somewhat in my back, along with increased cholestasis.  It was only rice and peas, no butter or any additional fat.  This began a pattern that I can't seem to figure out.  It seems that most starch, possibly all grains, are causing my right side to feel swollen and bloated.  Sometimes I can feel it all the way down around the inside of my right hip bone.  I seem to be okay with potatoes and sweet potatoes for the most part, although sweet potatoes do give me diarrhea sometimes.  For the past few days I've been trying to do the GAPS diet, but I can't tolerate the broth so I'm having to skip that part and just eat meat.  Animal fat doesn't seem to cause the abdominal swelling, although last night it seemed that a pork country rib did cause it.  All the meat I'm eating does seem to be making feel unwell though, as if my body is rejecting it.  Another problem I have is that I can't tolerate probiotics or fermented foods.   It seems that I'm in a catch 22; eat starch and I get the abdominal swelling, or eat mostly meat and feel terrible all day long.  Fruit doesn't seem to cause swelling, but I'm hypoglycemic and can't eat too much of it in one day, which is also the reason I can't live on potatoes and sweet potatoes.   Have any of you had an experience like this?  Can any of you offer any suggestions?  Thanks.
  2. Sounds like me. I don't have full blown Celiacs, but gluten and casein intolerance, which has resulted in leaky gut syndrome and chemical sensitivity. All I know is that it would be a good idea to avoid all grains, nuts, seeds, and legumes for a while and give your intestines a chance to heal. This is hard for me because I'm sensitive to so many things. It's a struggle to find things to eat. The GAPS diet or Paleo diet may benefit you.
  3. Thanks. That was an interesting article. Unfortunately, it doesn't appear that I will be able stabilize my gut until the benzo withdrawal has run its course. I can't tolerate any supplements at all. The reaction I have to supplements, coconut oil, and other foods is actually an increase in benzo withdrawal symptoms(this is actually typical of benzo withdrawal). This is compounded by the fact that I have leaky gut syndrome, which I have actually had for years, but never made the effort to correct it. Now I have a pretty good idea of how to correct it, but it looks like I will have to wait until I have healed from the benzodiazepines. I'm struggling right now to find things to eat. Between leaky gut and withdrawal my system is extremely sensitive to many things, and I have gotten to the point that I'm having to rotate what I eat so I don't become intolerant to it.
  4. I think I will definitely try buckwheat then. There aren't enough foods I can tolerate in order to make recipes, but I'll try to find some buckwheat that I can eat as a breakfast cereal.
  5. I meant white bread made from wheat. I was looking for wild rice the other day but couldn't find any that wasn't mixed with another type of rice. I'll have to try that again along with buckwheat.
  6. I'm wondering how other people with leaky gut handle millet. I don't digest grains very well in general, but millet is actually a seed, so I was thinking about trying it. The weird thing is that I'm gluten intolerant, but I can actually handle bread easier than other grains. Rice and quinoa destroy my stomach. I think my main gluten symptoms are depression, fatique, brain fog, and occasional joint pain, with minor digestive problems.
  7. The biggest problem I have with the GAPS diet is that my system is very sensitivie to bone stock and vegetables. I am currently going through protracted benzodiazepine withdrawal and it has caused a lot of problems in my nervous system and digestive system. It seems that foods with the highest nutrient levels give me the most problems. Apparently my body has a hard time processing these high amounts of vitamins and minerals.
  8. I'll start with my question about exotic grains. I can't handle quinoa, white rice, or brown rice. They all cause stomach and other sensitivity reactions. I want to try amaranth and buckwheat, but are these any easier on the gut than the afore mentioned three? Secondly, lately I have been becoming intolerant to anything I eat for more than a couple of meals in a row. I'm now having problems with beef and chicken, and after a few meals of ham, it seems pork is causing a problem. It has been suggested to me that I go on a rotation diet which consists of many "exotic" foods. The exotic and uncommon meats are easy, but I'm having a hard time figuring out what starches to eat. The familiar starches I can handle are: sweet potatoes, canned(only) english peas, some beans, and possibly yams. I'm thinking about trying beets, water chestnuts, and possibly turnips. Familiar starches I can't handle are: white potatoes, all rice, corn, quinoa, carrots, wheat, and squash. I need help figuring out what other starches are out there that I can try. I've looked into tapioca, amaranth, and buckwheat. I can't tolerate bananas, so I think plantains are off the list. Other things I can't tolerate are: all fresh or frozen vegetables(canned seem to be okay, except for carrots). All fruits, nuts, nut milk, lentils, garbonzo beans, ceyenne pepper, lemons, coconut in any form, olive oil, flaxseed oil, and any form of herb, vitamin, probiotic, mineral, or any other supplement. A medication I was taking left my system very sensitive, thus all the intolerances. Not to mention I had undiagnosed wheat, dairy, and egg sensitivities for years. Thank you.
  9. What are you eating on the paleo diet? What paleo foods have you eliminated?
  10. What is it about eating meat that you are against? And what are you eating currently that is causing problems? If you're eating grains and legumes you should stop. This includes peanuts and peas. You can try adding these things back later, but remember that they are high in lectins, which are irritating to the intestines. I think you will find it difficult to heal while eating a vegetarian diet. Without animal protein and fats you are left with only carbs for a source of fuel, and just about every carb source is hard on the digestive system. You can try potatoes, sweet potatoes, yams, and other tubers and root vegetables, but if you have a flora imbalance these things will cause problems. Fruit is also likely to be a problems early on. You'll need to start eating a lot of avocadoes and coconut products for the energy producing fats. Remember that nuts are also bad while healing the intestines.
  11. Sick From Soy

    Don't consume soy if you're trying to heal leaky gut, even if probiotics help you tolerate it. There are too many gut irritants in it. If you tolerate the protein there is still the lectins that can be problematic. It's best just to avoid it, at least until you get better.
  12. Sick From Soy

    It's weird, but sometimes I can handle soy and sometimes I can't. I've actually decided to stop eating all together, though. I also get bad headaches, dizziness, and general weakness from soy, but no digestive problems. I think soy lecithin is used as an extender. I was watching something on television about all of the different uses for soy. It was actually interesting what all can be done with this bean. There isn't one particle that can't be used for something. Everything from "milk" to plastics. With so many people having bad reactions to soy, the growing consensus is that it isn't meant for human consumption. I think you can add every other legume and grain to that list, especially if you're trying to heal your gut.
  13. It sounds like your daughter is carb addicted. The things you mentioned that she prefers to eat are nothing but simple carbs with little to offer. Simple carbs are addicting because they not only trigger the brains reward center, but also only provide energy in short bursts. The idea that you need carbs is totally false. They will also do nothing to aid in proper development. Your body will operate much more efficiently when getting your energy from fats. Fats from animals and things like coconut and avocadoes. Buy your meat grass fed and free range to provide the proper omega-6 to omega-3 ratio, which is 4:1 to 1:1. Avoid things like vegetable oils, including canola oil. Also, the lectins in beans in grains are very bad for your digestive system, not to mention other things. I really think you should check out the paleo diet for her. It does involve eating meat, but maybe you could convince her to try it. Don't let the vegans and vegetarians tell you anything. They all survive on high amounts of carbs. If something is harmful to the body, should you really be eating it? Carbs make people fat and cause inflammation throughout the body. You should read about why grains and legumes are bad for you, as well as dairy. I have a theory on why your blood sugar didn't normalize when eating low carbs. I'm not a doctor, and this is just a theory. When you begin a low carb diet your body begins to use up it's sugar reserves. I wonder if your liver was releasing glycogen in an abundance. Again, I'm not a doctor and I don't even know if this would cause a blood sugar elevation. I'm sure you know more about it than me, but I thought I would throw that out there. As for they way you should eat, I think if you can eat meat you should. Since carbs seem to be okay for you, my opinion is that you should have a meal of meat and carbs, without overdoing it on the carbs. And I wouldn't worry about grains in your case. I read somewhere that balancing your blood sugar can reverse nerve damage cause by diabetes. Maybe a dietician could help you with this.
  14. Tomatoes?

    I do have leaky gut. I just wasn't sure if tomatoes could be doing any harm even if they aren't producing symptoms. Some people make it sound as though you absolutely have to avoid nightshades.
  15. Right now plain tomato juice is about the only carb source I seem to do okay with. I hear a lot about nightshades being bad for you while healing leaky gut/celiac damage. How do you know if tomatoes and other nightshades are causing a problem? I haven't really noticed any issues with tomato juice, and I don't do well with other fruits. I need to have some carbs in my diet so I at least have a little energy.