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ancoon added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)Strongly Positive Blood Tests, Inconclusive Biopsy?After years of intestinal symptoms and other health problems, I read an article about celiac disease and asked my doctor for the blood tests. I had the tests done, and was referred to a gastro. who said that the tests were strongly positive, and scheduled a biopsy to confirm. At his recommendation, I went gluten free for 2 months and my symptoms completely resolved. I resumed eating gluten for 1 week prior to the biopsy and felt terrible.
I had the biopsy, and the gastro. said that although my biopsy looked abnormal, it was not necessarily indicative of celiac disease. He said that it looked like there could have been only partial damage due to the fact that I had only had gluten for 1 week prior or 'focal celiac disease'? He wants me to remain on the gluten free diet and have the blood tests redone in September. He said that if the test showed improvement and my symptoms remained resolved, that he would feel comfortable with a final diagnosis of celiac.
Does this sound right? Can anything else cause positive celiac antibody tests? He said that the blood tests were very convincing... so why do we need to wait? I feel confused and just want closure.
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