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Not2sure added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)Blood Test For Celiac Came Back Normal-Or Did It?Hello All,
I'm 'not2sure' and I am posting because I wanted to know what you all think. I have read lots and lots about Celiac and I think that my symptoms correlate, but on the other hand I'm beginning to think I might be wanting to test positive for Celiac as I don't want any other diagnosis, such as pancreatic cancer or something more severe.
I had no previous symptoms before having my colonoscopy, but since 3-26-10....I've had irregular bowels, diarrhea, orange oil droplets in toilet, movements several times a day and at some point needing to be very close to a bathroom at all times.
I finally gave in and called the colon Doctor after getting concerned. Loosing weight was the big factor as I only weighed 100 lbs anyway. They got me in pretty quick and ordered a fecal sample to run test on and we set another appointment about a month away. Meanwhile, I googled orange oily stool and found so many different reasons for that symptom. I ruled out the others mostly because I didn't want to have those diseases, and I was kinda hoping it might be Celiac, because Celiac might be easier than anything else more severe. Sounds crazy huh?
I decided to remove wheat AND dairy from my diet and when I did, things improved. When the Doctor's office called to tell me my stool sample was normal I asked them to test me for celiac and asked that it be done before my next appointment to save time. I'd been off of gluten for 2 weeks at the time and they told me that it wouldn't matter. After all I'd read, I questioned that but did the blood test anyway. By the way the day before I had my blood drawn I decided that if I must ad gluten back in then I would. Oh my goodness.....I had severe cramping and couldn't get away from the bathroom all day and night. I could clearly see that I was having a reaction, but I didn't know if it was from wheat or dairy or both, because I didn't think about the dairy and pizza with cheese and a bagel with cream cheese. All I know is that I didn't continue to eat either at that point and I went and had the blood test done the next day and decided not to eat any more gluten or dairy if I could help it.
They called today to let me know the results were back and that it did not show celiac. I expected that it might be negative because of all that I'd read and since my symptoms hadn't been around too long, but I also expected that I might have a gene, since I'm a type 1 Diabetic AND having these symptoms. So when I asked about the Gene she told me that it didn't show a Gene for celiac either. I was puzzled, so I went and picked up a copy of the results and will paste it below.
Now What? I did go ahead and order the Enterolab kit and have sent off my sample. Just waiting for those tests results as well.
It appears to me that I do have a gene for celiac, or am I misinterpreting this info? Being Type 1 Diabetic with this gene and also having the symptoms, I'd like to know what you all think? Homozygous DQ2.5 (DQA1*05:DQB1*0201)
Thank you all so very much for taking the time to read this lengthy introduction!!!!
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Not2sure added a topic in Gluten-Free Foods, Products, Shopping & MedicationsTostitos Baked Scoops- Anyone Had Trouble With These?New to the gluten free arena. Been off gluten for 3 weeks now and have seen tremendous improvement with my symptoms, but this past weekend I had several things that I hadn't been eating that might have caused the symptoms to reappear. I had the baked Tostitos scoops and was wondering if they might be the culprit. The ingredients don't mention any wheat, but the bag also doesn't say gluten free. What do you think?
I am a type 1 diabetic and also had to treat a low blood sugar reaction with some sugar tabs. I later looked at the ingredients and it said that they contain dextrose, so is that the same as dextrin that's mentioned on the forbidden foods list?
Then if that wasn't enough I just read where sunscreen's might be the culprit as we were out on the boat on Sunday and I applied sunscreen to my body.
So which is it? Can anyone help with these questions?
Thanks a bunch!
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Not2sure added a topic in Celiac Disease - DoctorsBorland-Grover Clinic Said Ok To Be Off Gluten And Get TestedI'm a newbie trying to figure out what to do. I've experienced diarrhea for a few months now along with greasy/oily stool, and have lost weight, which I didn't need to do. I've had fecal fat, bacteria and parasite testing done on my stool and they all came back normal. So the Doctor's PA and I spoke about the possibility of Celiac Disease and she's ordered blood work to test for it. The doctor's assistant and I spoke today as I wanted to know what type of test would be ordered and she said that it's a test for Celiac and that they draw blood, freeze and send to a lab in South Florida to be tested. I asked her if it would matter that I'd been off of gluten for about 2 weeks and she said no, it wouldn't matter.
So I'm confused as I've read on the forum that a person should be on gluten when getting tested. I want to know what others think. She said that they test for antibodies and if I have them they would show up whether I've eaten gluten or not.
Let me know what you think, so that I have a clear understanding of what to do before I get tested.
I also wanted to say that my bowels have cleared up tremendously since getting off gluten with no diarrhea and no obvious oil in my stool.
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Not2sure added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsWondering If Anyone Has My Same Symptoms?I posted yesterday and had no one reply, so I'll try this again. I'm experiencing some strange behavior in my bowel, that has only occurred since my recent colonoscopy. Thinking that I was having trouble after taking the laxatives that it might take a while to recover, but it's been over two months now and I've lost some weight, feeling tired and am having lots of diarrhea with only stool. I went back to the colonoscopy doctor and they ordered stool tests which all came back normal. No bacteria, no parasites, and normal fecal fat. So I did some research on line to see what might be causing it, and that's when I thought it might be an allergy to Wheat, so I cut out wheat and it cleared up for 4 days in a row, and then I must have ate something I didn't think had wheat and it came back, so I consciously made an effort again to not eat any wheat and this morning my bowel was normal again.
Since I've had no symptoms of pain or discomfort, I was wondering if anyone else had experienced what I have? It's too early in the process to know what is going on, but I have another appointment with the doctor the end of this month. I've read if I should get tested for Celiac that I should be on wheat before testing. Right now, I'm trying to stay off of it to see if my condition clears up.
Anyone else having any similar issues?
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Not2sure added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsI'm Not Sure What Is Wrong With MeI am a 50 year old Type 1 diabetic who recently had a colonoscopy done. No previous symptoms, but my aunt died of colon cancer, so when I turned 50 I thought it was time to have one done. Found I had a diverticulum, Doctor said to come back in 10 years. However, ever since the cleaning out I've had irregular bowel movements, including oily stool. No other symptoms except frequent BM's, oily stool and loss of weight. I am only 94lbs now, so I can't afford to loose weight. I went back the colonoscopy doctor after having these symptoms since late March. They asked for testing on my stool, which I haven't heard back on yet. I don't go to a primary till the end of June, so I did a little on line research and have been experimenting with the possibility of celiac disease. No pain, no nausea. When I read a little about it I thought I would try eliminating wheat from my diet and low and behold it cleared up for 4 days. So I immediately thought that's what it is. However, now I'm starting back with the oily stool and diarrhea. So, I'm lost for what it might be. I just think it's strange that I had no symptoms before the colonoscopy and now my bowel is horribly messed up. I think I eat pretty healthy. Any suggestions or similarities?
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