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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About Fey

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  1. I have been gluten-free since June, no cheating with only a handful of CC problems. I went gluten-free due to a migraine that lasted several weeks without relief, and that went away within 24 hours of going gluten-free. I have also experienced relief from other symptoms (anxiety, depression, joint pain from my lupus, less fibromyalgia flares, etc), so my doctor won't label me celiac without positive tests, but agrees with me on a gluten-intolerance/allergy diagnosis. Over the past few weeks, I have been experiencing discomfort and URQ abdominal pain. All the symptoms that I got rid of going gluten-free returned with a vengeance, as well as continuous nausea. Another weird symptom is numbness, tingling/pins and needles feeling on the right side of my abdomen, going up to my face as well. I was plagued with terrible C, no movement for 12 days, so I went to the ER after trying every single home remedy (and some prescription lax) for C I know about. The doctor was dismissive, only did an X-Ray, ordered an enema and sent me home with a prescription for Milk of Magnesia. The C resolved itself, but the pain in my URQ intensified, spreading to my right shoulderblade. The pins and needles sensation also got worse, and I felt dizzy after every meal (regardless of fat content). My family doctor ordered a HIDA test, and it came back with a high ejection fraction (80%, I believe), and my gallbladder had started contracting before they even ejected the CCK. The last 30 minutes had me forcing myself to remain still through the pain of the obvious spasming and incredibly pain from the CCK injection. I ended up in the ER the next day, where this time they did all tests (CT scan, X Ray, blood work for clots and CBC, nuclear medicine imaging) but they sent me home with a referral to a GI doctor and a prescription for Protonix. I found this while searching for answers but the ER doctors said they'd never heard of an overactive gallbladder, so they couldn't help me. And they wouldn't admit me for a GI consult "just" based on pain. I was able to schedule an appointment with a GI but it's not until Nov 4th. I'm planning to print the article out and bring it with me, but I'm afraid he will also dismiss the symptoms especially since I wasn't "properly" diagnosed with celiac. Has anyone else had problems with a hyperactive gallbladder and finding a doctor who "believes" it's a real issue?
  2. Shampoo And Conditioner

    At first I thought changing hair products was overkill, but then I realized that I touch my hair ALL THE TIME and I often eat finger foods and touch my lips with my fingers. As others have mentioned, anything you wear can end up in your mouth, and I think a lot depends on your personal habits. My eye make-up, for example, I'm not too worried about... I don't touch my eyes often, if at all-- if I do, it's with the back of my hand, not my fingertips. Lipstick, however, is definitely a big issue for anyone with celiac OR gluten allergy/sensitivity. If you do use beauty products that contain wheat, then I'd assume taking extra precautions in food handling and preparation might help to keep from contaminating yourself. Not eating with your bare hands, using gluten-free hand sanitizer before cooking, etc.
  3. - Within the first couple of hours: major C, followed by random anxiety attacks that aren't justifiable and come out of nowhere. - First 24-48 hours: extreme moodiness, and headaches that don't go away with my trustworthy Excedrin Migraine... if 4 Excedrins don't get rid of the headache, I know I have a major gluten-triggered migraine on its way. - Next few days: body aches (fibro flare) & nausea. Typically I'll feel better anywhere from 2-3 days after being glutened, but it can take as long as 5 days.
  4. Celiac And Anxiety?

    My anxiety has decreased about 80% since going gluten-free. Two and a half years ago, I'd quit my job, couldn't drive due to blacking out from anxiety in my car, had problems going to public places like grocery stores, and I was pretty much agoraphobic and depressed. Took a few months (last year) of trying different medications to get me to the point where I could function in society again. I have all but done away with my anti-depressants as well. Before if I skipped a dose, it was noticeable, now I got 2-3 days before realizing I've forgotten. Next appointment with my GP, I'll be discussing getting off them altogether
  5. Yes, it's a risk eating out-- or eating in. Any meals prepared by other people could contain sneaky gluten, and even food we prepare could have traces still. I went gluten-free due to a month-long migraine that wouldn't quit... it quit after 24 hours of being gluten-free. Last Friday I wasn't able to pack my own lunch, and decided to order a gluten-free meal from one of the 15+ restaurants in a mile-radius from my office. I went with a pricier place, figuring they'd have a better-equipped staff to handle food allergies. Looked at their gluten-free menu (they had one online), ordered a salad per their specifications, and put "ALLERGIC TO GLUTEN" in caps with my online order. Picked it up, checked to make sure the meat had no marinade, made sure it had no fries, etc. Poured the dressing, ate a couple of bites, and realized the chunky stuff in the dressing was gorgonzola-- the gorgonzola their gluten-free menu stated possibly contained gluten. I didn't really feel sick Saturday, figured maybe the gorgonzola I got was a gluten-free version of the glutened dressing, and I was home free... until the worst migraine of my life came around Sunday. Stomach issues, fibro flare, migraine that didn't improve with anything (ice, darkness, rest, migraine meds, painkillers, I tried everything)... had to take a day off work on Monday. All because of one salad On the bright side, it makes the cravings and the little devil on my shoulder shut up. Every time I miss Oreos, or whenever I'm tired of spending my days off cooking and planning out meals for the week, I remember just how miserable I was this weekend. And my boyfriend, who hasn't really dealt with a full blown glutening since I went gluten-free seemed to realize just how important it is for me to stay the course on this... and why I now have my own utensils/cutting board/etc.
  6. From what I've seen in this board so far, it's common to feel worse on the diet before you feel better. If any of your tests were high enough to concern/impress your doctor, it suggests there's a lot of damage already done to your system, which means your immune AND digestive system are affected, not to mention neurological, dermatological and other complications linked to celiac disease/gluten intolerance. I started the gluten-free diet recently, and have had lots of ups and downs, and it's hard when symptoms you never had before, or haven't had in a long time, appear AFTER you go gluten-free, but it's part of the healing process, and consequences of long-term immune system complications. And if your doctor does diagnose celiac, even if you feel worse without gluten, you have to remember that some of the complications (GI cancers) could happen after years of "silent" symptoms. Stay gluten-free, eliminate as much of other allergens as possible, and slowly rebuild your diet.
  7. I have the same issue. I'm trying magnesium supplements, Pearls acidophilus, lots of fruit... and when it gets too bad, I try Target brand's women laxatives. They're easier on my system.
  8. A few days after going gluten free I also had awfully itchy skin, though mine was food/medication related, I believe. Hives and the whole nine yards. To be safe, I did get gluten free shampoo, conditioner and soap. I'm still itchy occasionally, but it doesn't stick around.
  9. My mom had low BP issues, and ate olives in bulk. Easy and quick snack
  10. Headaches?

    A month-long migraine was what made me research Celiac and gluten-free diets. I've had daily headaches for YEARS that would subside with a daily dose of 2-6 Excedrin Migraines per day. Then this migraine came that nothing would fix it, including every migraine medication out there... I spent an entire month nauseous and sick. Second day of being fully gluten free, the migraine went away. Now I'm back to my daily headaches and Excedrin migraine regimen.
  11. Hey guys, Thanks for all the suggestions. Got new cutting board, utensils (bright red & in separate drawer so my SO won't use them by mistake), set of pots and pans. Working craaaazy hours, but it seems the fatigue is finally on its way out. I had bad C last week, and took a cocktail of lax, acidophilus bifidus, magnesium and fruit... after a painful 12 hours, I felt like new. The brain fog has cleared, the fibro flare has subsided, and I'm taking 1000mg of magnesium before bed. Went grocery shopping yesterday and after crying at the fact that Larabars were not on sale, everything went pretty well Boss is ordering pizza for everyone today, but I'll be gladly eating my packed lunch (bean and potato soup, salad with gluten-free dressing, mortadella slices rolled up, and diced mangoes and kiwis).
  12. Those sound a lot like my anxiety attacks. When they were really bad, I couldn't go into stores without getting the racing heart/difficulty breathing. I also had them in my car, which is why I stopped driving for almost 2 years. Then I began having them as a passenger, out of the blue. My anxiety has dropped about 80% since starting the gluten-free diet 2 weeks ago. The fact my anti-anxiety meds are not gluten-free isn't helping either, but I'm getting a gluten-free brand in 2 days
  13. I have been wondering about shaving creams and DH. If a shaving cream contains gluten and if there are antibodies in our blood (and under the skin), it would stand to reason that a nick while shaving could cause a reaction. But I haven't found any info on that :\
  14. Thank you! I've had my thyroid checked many times and they never found a problem. Next time I get bloodwork from rheumatologist though, I'll ask for a fresh panel. Also, I do have Lupus as well, so I can explain away all the symptoms just not why they're here *sigh* Stress from going gluten-free, body healing, weather changes, work stress... or gluten/CC. So many options, will have to work harder on preventing CC and hope it clears up before my next doc appt.
  15. Thanks for all your answers, guys! I "decontaminated" my kitchen two weeks ago and separated everything in the pantry (left side is gluten or unknown, right side if gluten-free, all of my stuff is clipped or sealed. There's one bag of regular flour in the kitchen and it's closed and in a completely separate cabinet from my gluten-free flours and other ingredients. We don't really bake, so that full bag has been sitting around for over a year. Not throwing it out due to... relationship compromise. As long as it's closed and sealed, it can stay, if it has to be used, I better not be around, and it better get put in a sealed cookie jar. Cutting board is being the hardest thing to manage, so I'm not using it directly, just putting things on top of it. I've spent over $400 above normal in groceries/meds/doctors/books over past 2 weeks, so having to put off some of the other things I need (i.e. new pots and pans, new cutting board, new utensils). And I confess I'm still suffering from a bit of information-overdose, especially with the brain fog. Just today I realized I was using a steak knife to cut through an adhesive :\