This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
My doctor didn't say that I don't have celiac, she simply said the biopsy and serology came back negative. She wants me to continue of the gluten-free diet until we get some more answers in regards to possible causes of the ongoing issues.
It's possible that I could be getting CC, I eat out a fair bit and live with my non-gluten-free parents. The thing is, my symptoms usually pop up 3-4 hours after eating if I get glutened. The recent issues have been happening more quickly after meals, I'd say within a half hour or so. I can eat the same foods and sometimes get sick, sometimes not. There are certain things I know always make me sick (lemonade, coffee and watermelon, for example), but they have nothing in common.
Rawr. You just confirmed my suspicions (which I didn't want to be true!). I've got a (second) lactose tolerance test in 2 days, so we'll see what that says. Like I said in the original post, she's also retesting the genetic bloodwork.
My doctor promised that 2 days was enough, but who knows. I think I'm going to start keeping a log again and see if there are any common denominators. I was so happy to get the celiac diagnosis because I thought I could fix everything...guess not.
I'm very confused. I was diagnosed about a year and a half ago with celiac based on these bloodwork results:
Deamidated Gliadin Abs, IgG: 51.1
Then I had an intestinal biopsy and more bloodwork the other day (new GI) and nothing pointed to celiac. The supposedly 99% reliable biopsy came back negative (I was told to eat gluten for 2 days before) and the bloodwork came back all normal (the serology, not the same one as before). She's going to redo the genetic tests and see what shows up.
My question is...what??? How can some be positive and some be negative, and what does that mean at the end of the day? Do I have celiac or not? For those two days that I had to eat gluten, I didn't get as sick as I should have. I'm also still getting sick even while being totally gluten-free. What the heck is going on?
I agree that it is somewhat understandable to not know what gluten means. But this poster was diabetic (double-checked several of her other questions), meaning this failure to google could have had serious ramifications. If you have an issue with a certain type of food, you usually know what you can and can't have.
The acidophilus sounds like a good plan, I shall check into that. Several people have mentioned the dairy thing to me, and it confuses me slightly. In the quest to diagnose my tummy troubles, I've been tested for lactose intolerance, and it's been negative. But does that not necessarily mean that cutting out dairy wouldn't help?
I unfortunately can not take a semester off. To be on my parents health care plan, I need to be attending school full time. I will definitely talk to my doctor thanks.
I'm still fairly new to being gluten-free, so my body is still adjusting, and I'm figuring out just how strict I have to be. Because of this, I'm still getting sick on a semi-regular basis. I've already missed 2 classes because I got glutened last week, and had D for several days...not good for the first week of school. In most of my classes there is a strict absence policy: 3 strikes and you're out, unless you have a doctors note, or something comparable. If you're not there for more than 15 minutes of the class (including leaving in the middle), it counts as half of an absence. But if I get sick, there's really no way to avoid it. Even if I were to go to class, I'd definitely be in the bathroom for more than 15 minutes of the three hour classes, so it's fairly pointless to go at all. I know that I'm going to exceed the number of classes I'm allowed to miss because of my stomach, or other gluten-related issues (my joints get so bad I literally can't get out of bed sometimes, let alone be able to drive to school). What can I do about this? Is there somebody at the school I should talk to, or get some sort of letter from my doctor?? My grades have suffered for most of my life because I've spent half the classes in the bathroom, and this needs to change! Help!!!
We are planning on moving in together as soon as we can afford it. Even though I'm working full time, he doesn't have a job (and he graduated college this year too, so he hasn't got classes either), so it's not really in the cards til that happens.
Thanks for your advice, I will think all of this over.
I've only been gluten-free for 4 months, and pretty much know what I can and can't eat. My parents, however, are having a harder time adjusting, and can't really seem to get the cross-contamination issue set. They will, for instance, pick me up a burger or something, and neglect to tell me that it originally had a bun and they simply removed it, or use ingredients in things that they don't expect to contain gluten, then tell me that they're sure it was gluten-free. For the most part, I make the meals in my house, but on the rare occasion that they cook, I need to read all the labels of everything they've used.
This has only happened 2 or 3 times since I went gluten-free, but I do get ill for several days each time. I think my boyfriend's frustration is more residual from before the diagnosis. I used to be sick at least once a week, leaving major dents in our plans.
First off, I love my boyfriend with all my heart, and a lot of that has to do with how compassionate he is. We've been dating for almost a year and a half, more than a year of that being before I was diagnosed. Whenever my stomach is acting up, he immediately asks if there's anything he can get me, and is generally very understanding about it all. In all past relationships, I've worried that my health is going to ruin things. I know if I had the choice, I would not want to put up with any of the lovely side-effects of my conditions, and I therefore wonder why any man would voluntarily subject himself to all that wonderfulness that comes along with being a part of my life. My boyfriend has always assured me that none of this bothers him. Until tonight. I've been working 35 hours a week, as well as having a full class schedule (I'm a sophomore in college), so we haven't really had any couple time lately. Tonight I had some rare free time, so we planned to go out to dinner. A few nights ago, I got glutened (CC), and my body is still making sure I know, so dinner was off. He tried not to show it, but I could tell he was upset, and I asked him about it. He admitted that it was getting frustrating for him, plans getting constantly postponed or cancelled because I'm sick. Of course the frequency has decreased since I've gone gluten-free, but as I'm still figuring things out, it's occasionally happening. The most frustrating (for both of us) is that it often hits right when we're about to...get intimate. Given my hectic schedule, and the fact that we both still live with our parents, the occasion comes around rarely, and so when the opportunity presents itself, it's nice to be able to act on it. But more often than not, I end up in the fetal position crying in pain, or in the bathroom for an hour. All of this is kind of putting a strain on our otherwise great relationship, and I'm worried that it's going to lead to our demise.
How do I help him with this? He knows that it's not my fault, and hates that he feels this way, but he can't help it. And I totally understand, I just hate that this is hurting him. Any suggestions on how to handle this?
I've never heard of that, but that wouldn't surprise me. I've had 15-20 bouts of parasites (always one of two species) in the last 10 years. After being diagnosed as Celiac, I thought it may have been the other way around...damaged intestines caused me to be more susceptible to the little buggers. Who knows!
I've had ongoing stomach issues my whole life. I got unofficially diagnosed a few years ago, gave up with no improvement and have now officially been told (yay bloodwork!) that I am, in fact, gluten intolerant. It's been about 4 months now, and I haven't seen that much improvement yet, although I've got a few other minor health things going on too, which prolly don't help.
Idk if anybody's tried it, but Redbridge is actually a fairly decent gluten-free beer. Even my bartender boyfriend agrees, and he's kind of a snob when it comes to that stuff. It's made from sorghum, which is (if I remember right) an African relative of corn. I'm not sure how readily available it is, but I know a lot of the speciality-type places (like Whole Foods, Trader Joes, DiCiccos for NY kids) carry it.
For me it seems to depend on what I've eaten recently, and what it is that's glutenous.
If it's a drink, it's pretty much immediate (maybe a 10-15 minute delay at most). If it's food, almost always between the 3 and 4 hour marks. Even my boyfriend will occasionally shout "horray!!" when it's been 4 hours since I've eaten something questionable, and have yet to rush to the bathroom.
He doesn't mind Redbridge, but he is a connoisseur of all things alcohol, especially beer (just got his bartenders licence last week actually), and I wouldn't make him give that up. I guess we'll just have to be extra careful. Grrrr.