This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I have not had hormone changes since going gluten-free (that I have noticed) but it definitely takes your body longer than 2 months to heal itself on this diet. I was on it a year before I stopped completely having symptoms and gastrointestinal problems. Give your body time to repair and prepare for a pregnancy. I've been gluten-free now for about 3 years and was worried about infertility. But I am pregnant now - and it only took us 3 months once we started trying. I credit being careful about the diet and allowing my body to do what it needed to do.
Thanks so much for all these tips! I am traveling to Frankfurt and Heidelberg next week and will definitely need access to safe gluten-free snacks since I'm pregnant and can't take the chance of contamination.
I can completely sympathize with your cravings because even though I'm newly pregnant I've been trying to stick to a very strict gluten-free diet for months now to prepare my body for pregnancy.
I would definitely recommend trying Pamela's gluten-free baking mix - it's great for pancakes and waffles and I think your kids might like it, too. My spouse loves it and the taste and consistency are just like regular pancakes. I'd also recommend getting some of the frozen gluten-free English muffins (again, good consistency, not powdery). You can also make gluten-free cornbread with regular (not self rising) cornmeal by adding some baking powder and salt along with oil or buttermilk. When I need a sweet snack or quick breakfast I just spread some jam on the leftover cornbread.
Best of luck with the cravings! I am not looking forward to that part of pregnancy because I have very little willpower.
I found out today that I am pregnant, though only very early, about 2 weeks. I'll definitely be sticking to a fully gluten-free diet and will be alerting my doctor to some of the complications that can arise from a pregnancy in someone with celiac. But at the very least, I know I can get pregnant and that's a good sign for someone who's had this condition as long as I have.
Thanks to everyone who replied - these positive messages are definitely what I needed! I've been back on a strict gluten-free diet for a few weeks now and it's been easier to stay faithful since I have a worthwhile end goal (besides my longterm health, of course!). I just made an appointment with my endocrinologist to have my thyroid levels rechecked and a nutrient test to make sure my body is fully ready to support a pregnancy. Fortunately, my thyroxin levels have been pretty solid for the past few years and I have taken B-12 shots for about 2 years along with multivitamins so I'm hopeful I won't have issues there.
Pregnancy is already such a stressful event and having these health issues certainly makes the stakes higher. But I agree with you that I need to do my best to lower the stress and to relax and enjoy my free time. Since I'm in the middle of my dissertation and plan to start looking for a job this fall I don't know if that will be possible, but I will certainly try and will ask my husband to help find ways for us both to de-stress.
I've bought an ovulation kit and have been reading extensively on fertility, so I feel prepared to start and will keep my fingers crossed that it doesn't take us a long time to conceive. Thanks for your supportive words!
I can completely sympathize. When I first went on a gluten-free diet I lost weight rapidly - about 25 pounds - and felt great. Since then, I've gained all that weight back plus some and feel like I have no energy. Since I've gained so much weight while on a restricted diet, I often cheat on gluten-free. I mean, if I'm going to gain weight anyway I might as well have the foods I want, right?
I'm now trying to start back with a serious and strict gluten-free diet but without substituting special gluten-free carbs. I think many people - including my husband and family - have tried to be very helpful by making and buying me Udi's and other gluten-free brands. But many of these gluten-free products are very unhealthy and don't benefit you except to provide a (less than yummy) substitute for carbs. When I first went on the diet I did not buy or use these substitutes and I think that made a big difference in my initial weight loss. It's going to be difficult to convince everyone that I don't want these gluten-free products since they are trying to be generous and conscientious, but I think it's necessary.
I have been on a gluten-free diet for 3 years though I have not been very faithful to the program in the past few months. I am not immediately sensitive to gluten (delayed reaction - usually 2 days) so it's easy to dismiss the consequences at times. I also have hypothyroidism and migraines and am on medication to treat both. Neither of my doctors is a specialist on celiac (I live in a small town) so they don't give me very specific advice. I learn everything from books & the internet.
My husband and I want to start trying to get pregnant, but I am very nervous about this since the celiac and hypothyroidism both pose dangers to the fetus and can cause miscarriage. I'm 36 so I don't feel we can wait much longer. I've been back on the gluten-free diet for the past few weeks and have worked to be careful about what I eat. How long should I wait before going off the birth control? Does anyone have suggestions for making pregnancy successful while on a gluten-free diet? I would really appreciate any advice!
My fiance' and I would like to try to start a family once we're married in December. I am 34 and he is 32 so we don't want to wait much longer. I have celiac and have been on the gluten-free diet pretty faithfully for over a year. I also have hypothyroidism, migraines, and dermatitis which I'm fairly certain are all related to my gluten allergy.
I've read (and seen on this forum) that celiac can cause infertility, miscarriage, and other problems with pregnancy. My OBGYN doesn't seem very concerned, but she also doesn't seem to know much about celiac. What should I be aware of as we try to get pregnant? Should I try to find an OBGYN who specializes in mothers with celiac? Is there even such a thing? Also, is there anything I can do, besides sticking to the diet, to make pregnancy with celiac safer and easier?
I'd really appreciate any advice from people who have dealt with this issue.
Yes, I absolutely had the same experience of a "trigger" event which started the celiac symptoms. I have always had a stressful lifestyle, a very "Type A" personality. But my symptoms didn't start until I moved back to my hometown for a new job. It was a welcome event and I didn't consciously feel stressed out. But I broke out in dermatitis all over my body (no doctor could diagnose what it was, kept saying it was a fungus) for over a month. Then the stomach symptoms started soon after. My doctor agrees this was probably the moment my celiac started.
To be honest, though, knowing that I needed to be on a gluten-free diet was very freeing. It was easy at first for me to be on the diet because I could see clear changes to my health. But now, being gluten-free adds to my super-high stress level. Though my fiance' is very caring and tries to accomodate the diet, he gets frustrated by my diet restrictions. I get stressed out about eating at restaurants and going to friends' houses because I can't often eat what is offered. And lately I've been extra stressed by a new job and planning a wedding so I'm more likely to "cheat" and eat gluten when safe alternatives are hard to find. It is EXTREMELY stressful to have a food allergy when everything around you promotes a gluten-full lifestyle.
As a graduate student, I can completely sympathize with your predicament. I definitely cannot afford to see doctors as regularly as I would like and the tests to diagnose celiac are expensive.
My big question would be, "Do you feel better on the gluten-free diet?" My celiac tests were inconclusive but going on the diet made me feel better almost immediately. My migraines - which were terrible before - have improved drastically. My skin also looks better and I'm feeling more positive.
The weight loss happens when you first go on the diet, but it should even off after a point. If it does not, there may be something else in addition to your gluten-sensitivity going on. You might have to bite the bullet and go to the doctor.
When I started the gluten-free diet over a year ago I quickly lost about 25 pounds. I looked and felt great and found the diet relatively easy to handle.
In the past few months, though, I am tired all the time and constantly crave carbs like ice cream and cornbread - just because I can have them, I think. My thyroid is regulated (I do have hypothyroidism) and I'm being careful to eat gluten-free, but I've gained back the weight and then some. I'm hungry almost all the time and portion-cutting hasn't really helped.
Any advice? I'm especially frustrated because I'm getting married in 3 months and want to lose weight for the wedding.
I was diagnosed with celiac about 6 weeks ago and would love to find others in North Mississippi. In addition to the difficulty of living in a small town and trying to find gluten-free foods, I've found it challenging to talk about the disease since food is such an important part of life in South. Very few people here are even aware of vegetarianism and veganism, much less what a gluten-free diet is.
There are no support groups anywhere close by but I think an informal friends group would be just as helpful. I'm a Southern girl and think we should be able to figure out a way to enjoy food and friends while still eating to protect our bodies.