This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I could be wrong, but I was under the impression that Muscle Milk was NOT gluten free. This could be why he gets migraines after drinking it? My mom orders a special gluten-free protein shake for me and her while my dad (who is a non Celiac) drinks the Muscle Milk. I also drink Ensure Shakes for extra calories and vitamins and those say Gluten Free right on the bottle.
You really need to force yourself to eat and up those calories. I cannot stress this enough. I lost 25 lbs. rapidly due to emotional stress/lack of appetite and was also not getting enough calories each day. About 2-3 months after I lost all the weight, my hair started falling out of my head. I have lost about half my hair volume. This is a nightmare, and it's a fairly common occurrence after rapid weight loss and calorie restriction. I'm also a member of a forum called Calorie Count, and there are so many women on there who lost weight too quickly, cut calories or starved themselves and are now dealing with massive hair loss.
Thanks everyone for your replies. I guess I haven't been doing as bad as I thought. I have been eating a lot of fish, avocados, eggs, peanut butter, nuts, red meat, milk products, soy products, etc. I add flaxseed oil onto everything I can for extra cals. I also supplement with Ensure shakes and gluten-free protein shakes. I usually intake anywhere from 1,600 to 2,200 calories a day, but I'm still not gaining weight. I'm going to continue tracking my calories and try to up them by another 500 a day or so and see if I start gaining again. Thanks again, everyone!
My doc tested for everything including my thyroid and everything came back normal. As I mentioned, my hair loss didn't start until after I lost 25 lbs. really quickly and was underweight. I had not previously had problems with hair loss, and all my doctors are pretty much in agreement that eating right and getting my weight up will eventually cause the hair to grow back (it's the same kind of hair loss that anorexics experience after starving themselves for a period of time). I was underweight and not eating right for about six months hence the hair issues.
I am definitely going to start eating more rice! I hadn't even thought of that, and I'm sure it's packed with carbs and will help me put on weight. Thanks for the suggestion.
Back in February I lost 25 lbs. due to an emotionally stressful event. Around the same time, I started a gluten-free diet due to experiencing symptoms of Celiac after eating grain based foods (my mom has Celiac so it runs in our family). The drastic weight loss caused a lot of other problems, the worst of which has been extreme hair loss.
For 3 months now I have been eating better, but I am finding it difficult to eat enough on a gluten free diet. Before going gluten-free my diet consisted mainly of grain products which are high calorie and vitamin fortified, and I never had problems maintaining a healthy weight or issues with hair loss. I have gained about 8 lbs. back by forcing myself to eat, but for the past two months my body has stopped gaining. I am stuck at 125 lbs. at 5'8.5". I am also concerned that I'm not getting the vitamins and minerals I need to help regrow my hair because it is still falling out at an alarming rate.
I really don't know what to do. I have cheated a couple of times and consumed grain products, but I normally feel bad after eating them. I have never been diagnosed Celiac but do experience a lot of the symptoms. I am finding the gluten-free diet very limiting and unappetizing, but I am too terrified to go back to eating grains for fear I'll make my issues worse.
Can anyone recommend some high-cal gluten free foods that I could eat? Also, how do you get additional nutrients when you're no longer eating vitamin fortified grain products?
I just posted a similar topic because I did not see this one. Basically, you have answered my questions! I have 8 cavities at the age of 24, gingivitis that may morph into peridontal disease. My mom also has Celiac and has 18 cavities, crowns, caps and receding gums that will eventually require a gum transplant. We also both have yellowish-transparent teeth that I guess is due to thin enamel?
Sucks that Celiac can cause this. I am scared that in the next 10-20 years, I'll have twice the cavities and will need major dental work to fix all these problems (I don't have dental insurance either). It's such a nightmare!
I also noticed that my symptoms worsened after a stressful breakup and 25 lb. weight loss. Prior to that I had been noticing some Celiac-like symptoms, but they definitely got way worse after those two events occurred.
I have also read that when you are anorexic, your body stops making certain digestive enzymes. So when you do start eating again, you find that you are intolerant to a number of foods i.e. lactose intolerant, gluten intolerant, etc. For some people, I think it's only temporary, but if you are predisposed to Celiac I would guess it could trigger it.
I went to the dentist last week, and I have 3 more cavities. This brings me to a total of 8 cavities, and I am only 24 years old. My dentist also said I have gingivitis that could result in peridontal disease down the line if I don't take excellent care of my teeth from now on.
My mom has Celiac Disease, and at 50 she has had over 18 cavities, crowns, caps, etc. She also has receding gums and will need a gum transplant eventually. My mom and I also have yellowish almost see-through teeth which I think is probably the result of thin enamel. My mom thinks that the Celiac has caused all these dental issues. My dad and my sister, who do not have Celiac Disease, have very white teeth. My sister, who is only a few years younger than me, has no cavities, and I take way better care of my teeth than she does.
Does anyone else have a lot of dental problems and does it go hand in hand with this disease? Or did I just inherit my mom's bad teeth?
Thanks for the info. It's very concering to me that my doctor, who has been a great doctor and has helped me deal extremely well with other health problems, has no idea about how these blood tests work.
I told my doctor the same thing, and she assured me that if I had Celiac, the antibodies would be present in my blood stream in higher numbers, regardless of whether I was on a gluten free diet or not. I politely told her that I didn't think that was the case because I had heard numerous stories of negative bloodwork but positive biopsies. But now I'm not sure who to believe!
I recently went to the doctor and had bloodwork done. This is the second time I have been tested for Celiac in the past 5 years, and both times I came back negative. On a scale of 1-17, my TGA level was 5, which my doctor assures me is very low. However, she said that if I feel I am benefitting from the gluten free diet then I should stick to it.
The problem is that I'm having a hard time gaining weight on the diet. About 6 months ago I went through a really bad breakup and dropped 20 lbs due to lack of appetite. That weight loss caused my hair to start falling out, which I am told is quite common when your body isn't getting the calories it needs. My doctor has told me that in order to get well again, I need to start eating well and gaining the weight that I lost back. Unfortunately, I really feel limited by what I can eat on a gluten free diet. In the past month I've gained 6 lbs. back but that's only because I've been force feeding myself fattening foods like peanut butter and purposefully eating more calories than I need. I worry that once I start eating a normal amount again, the weight will once again drop off.
When I was on a non gluten free diet I had no problems gaining weight and had a very full, thick head of hair. However, I had problems like stomachaches, headaches, fatigue, dizzyness, etc. and a HUGE appetite. My mom has been diagnosed Celiac, and I have noticed that certain drinks/foods, particularly beer, cause my body to go haywire. To me, this evidence points to Celiac, or at the very least, a gluten intolerance.
Is it common to get negative blood tests but still have Celiac? Should I stick to a gluten free diet or eat what I want so I can gain weight again? I feel like I'm starving on this gluten free diet!
I feel for you. I am 5'8" and weighed in at 116 lbs. two weeks ago at the doc. My regular weight is around 135 lbs. so I've lost almost 20 lbs. since going on the gluten free diet (although I'm not sure how much of this is related to the diet and how much is related to psychological stress/appetite loss due to a breakup -- probably a combo of both).
My doctor has recommened that I gain weight which I have found difficult to do since all I eat is lean meat, fruits, veggies, nuts, yogurt, protein shakes, etc.). I think I've put on 2-3 lbs. in the past three weeks by basically forcing myself to eat. I have been eating spoonfuls of peanut butter, drinking protein shakes and indulging in fattening snacks like potato chips and chocolate in order to gain some of the weight back. However, it's important that you continue to eat healthy. Get lots of protein from lean meats and nuts. Eat your fruits and veggies. I also eat/drink a lot of soy products.
I understand your concern though. My weight loss has caused a plethora of other health problems including hair loss and extreme fatigue. Just do your best to eat healthy and keep your weight up. You may want to consider vitamin supplements too.
Kind of gross, but I have experienced this, and I have found that it occurs either due to constipation or when hemorhoids (sp?) are acting up. Haha, this is embarassing for me to talk about but there you have it.
If you feel better on the diet, then stick to the diet. I went to my doc yesterday, and I told her I believed I had Celiac based on my reactions to gluten containing foods/drinks like bread and beer. She wants to do a blood test to confirm. I told her I had been on the gluten free diet semi-strictly for about 5 months now (I cheat here and there). She said that the antibodies would still show positive whether I was on the diet or not. I think she's wrong (kind of scary that the person in charge of my health doesn't know these things, but I've found most docs ignorant about Celiac). Regardless of what the blood test says, I'm staying gluten free.
Thank you so much. I am relieved to hear this. I have been worried about this to the point of obsession and cannot stop feeling anxious about it. I have to admit that I haven't been very strict about the diet. There have definitely been times when I have cheated in the past 5 months. This probably isn't helping the situation so I am going to be very strict from here on out. I also am taking Country Life Maxi Hair vitamins.