This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Whereabouts in the world are you? It looks like you are from USA from your use of the word candy. I have never heard of a low iodine diet do I googled it (and DH). I hope the lid helps you. I am sorry that you have to be on this diet. I found this website that says you can have dark chocolate, marshmallow, hard candy, jellies (tho according to the site I found no red dye is allowed), Popsicles. Could you make or buy a vegan gluten-free cake? I have made chocolate cake before that is gluten-free and vegan. The egg substitute powder would need checking. But apparently u can have cocoa at least
I am really interested in neurological problems other coeliacs suffer from. I have tingly fingers and hands, burning pain legs and arms all the time and fatigue almost all the time and occassional muscle cramps up the back of my legs.
The only vit I am low in is vit d which I am having d3 drops to boost. I have been dx with fibromyalgia. I have all the tender points.
My pain started about 1 year AFTER I went gluten-free. Pain started when I was on an antidepressant called cymbalta (which is actually the treatment for fibro). I am off cymbalta cos it caused terrible neuro side affects (hallucinations, body jerks etc).
Just thought I would share my experience in case anyone else has had this strange experience.
I am coming up to two years too. I have been posting a bit today just to let people know that your tastes and cravings can change. I still have and pain issues but am slowly working through them. It's great to hear you are doing better! Thanks for posting.
You may not like my reply. I am about 2 yrs post dx. I found I don't deal well with any flours or cereals.
My favourite snacks are a dried fruit and nut mix, date and coconut rolls (a new find at my supermarket - they are 100% date and coconut!) and I do love yogurt even tho I was told I was lactose intolerant. I gave up cow dairy for a while but didn't notice any improvement.
To begin with I desperately tried cooking my favs with gluten-free flour. Most work well. But I didn't get better and I got fatter.
I sometimes bake a gluten-free treat and have a small amount. My hubby eats the rest. To tell the truth I am much happier and healthier now I am not eating gluten-free cereals and cookies but it has been a long road. And now I am at that stage where I don't crave carbohydrate. Thank goodness.
Hi sharilee. I agree with the other posters. I too was regularly in tears at the supermarket and especially when travelling (work or holidays) trying to find something cheap and easy for lunch.
Be kind to yourself and allow yourself small treats. But - sorry for the but - reaccess your situation in a year or so. Hopefully you won't be like me but I have found I am healthiest if I avoid all the gluten-free cereals (fructose syrup is in a lot of them and makes me sick), cookies and cakes. I am now on a whole food diet to lose the weight I put on from those yummy gluten-free treats lol.
I am really enjoying my diet now. Fresh Fruit and yogurt for breakfast. Salad and chicken, salmon or ham for lunch. Stir fried veggies, tofu, chicken or fish on a big bowl of mixed greens for dinner. Mixed nuts and fruit for snacks. I truly enjoy this diet and am not hungry. And I don't envy other people being able to eat pastries and bread.
Be patient. Be kind to yourself and do have treats while you are feeling deprived. Reaccess in a year or so.
It's a long road to recovery for us coeliacs. I agree ditch the herbs. To the shock of my naturopath I couldn't tolerate any of her treatments that I needed to swallow. I gave up on her for a while but she dx me with blastocystis which is a parasite. A course of dr prescribed flagyl cleared that up. I had nausea and D for about 1 yr before the $10 course of tablets. Ah sweet relief!
I still have lots of problems almost 2 yrs after dx. I was dx with fibromyalgia 6 or so months ago. I still have depression that I was hoping would go away after going gluten-free (I am on AD which works very well). I have had to halve my working hours. I have sensitivity to lots of foods and am on a diet too now to lose the 12 kg I put on after celiac dx. (too much chocolate and too little exercise and too much testing all the gluten-free foods available).
Keep investigating other food intolerances such as fructose malabsorption and keep up your supplements. Whole food diet. Stay clear of gluten-free substitute processed food (keep just for occasional treat) Keep it simple. Good luck.
This is all very interesting. I have been gluten-free for 20 months and recently had a gastroscopy that showed full villi recovery and an excellent response to a gluten-free diet.
Hmm that's all well and good but I still have such horrible fatigue. I havent been able to work a full days work since becoming sick 2 yrs ago (fatigue was worst symptom). Brain fog has been bad. I am an engineer so I need my brain working!
Recently my symptoms have changed to more neurological. For past 2 months I have had spasms and twitches, weakness and aches in legs and arms and hands. I was dx with fibromyalgia but I am not convinced. I have double vision and light sensitive eyes that ache after looking at a computer screen. I do have a sinus infection that I am having surgery for in 2 weeks so I am hoping my eyes will be fixed but the surgeon isn't hopeful
I take the following supps - co enzyme q 10, Serracel, Glucosamine, magnesium, zinc, calcium, multi b, vit d.
I had an MRI and have ruled out ms. All other usual suspects such as hashimotos and hormones have been ruled out.
My household (husband and two teenagers) refuses to become gluten-free. I must admit I have considered moving out!
OMG. That was (is?) so me! I see a therapist who specializes in working with people who have food related diseases. At one stage I was afraid of food. I actually bought food powder so I could have a liquid diet! My therapist talked me out of that.
I am 20 months post gluten-free. For me my worst abdominal pains and gas disappeared when I was treated recently by a naturopath for blastocystis parasite with flagyl. Oh what sweet relief!!
In the past two months I have developed bilateral leg and arm pain. I was already dx with fibromyalgia ( about a week or two before the aches started). My dr told me yesterday that I am positive for flu a and b so I either had or am about to have the flu! I admit i have sinus infection and am booked for surgery on sept 28 but I am sure I would have noticed having the flu!! My aches have lasted months now
- the flu only lasts 2 weeks. So confused!
I also have diarrhea but not really bad - about 4 times a day. I had a follow up gastroscopy and I am all healed
I am really interested to read that these aches and fatigue may be caused by food. I am quite sick and tired of food - I must admit. I am seeing my therapist today thank goodness. It looks like I might have to reconsider food as the culprit.
Oh - I get lots of muscle spasms. Does anyone else get this in conjunction with constant fatigue and joint muscle aches? I have my normal below normal temperature.
Mcdonalds has a hot chocolate? Yum! I will have to check it out in Australia. Maccas is wonderful for it's gluten-free stuff. I have gone off hot chocs since becoming Coeliac because so many of them have gluten in them and it is annoying to have to ask to see the packaging.
Hi pondy. I was dx just over 1 year ago and have had very similar symptoms to yours. The pain under the ribs for me was gas pain. I am fructose malabsorbent, lactose intolerant and have had to cut out lots of other foods such
I was at my wits end starting to consider dx such as MS, fibromyalgia and was told I probably have IBS and another autoimmune disease such as sle or ms etc. I have just discovered I was infected with a parades called blastocystis. In a healthy person this single cell organism can live happily without causing any symptoms but in someone who is immunosuppressed or has digestive problems it can become symptomatic.
I have had 2 days on antibiotics and feel better than I have for 2 years!
Recovery can be a long road. Don't give up. Be systematic about which foods you eliminate first. Consider having breath tests for lactose and fructose intolerance. Avoid gas producing food such as cauli and cabbage. Reduce sugar intake. Try one type of food at a time and see if it makes a difference. Try rice milk with your cereal. At least this reduces your lactose load.
Hi brandy. I just noticed you said you had a pain behind the ear? I get an extremely horrible nerve pain in my ear. It is triggered by wind - not every time but most of the time it happens. I changed to cymbalta (an antidepressant) from another AD and have been pleased to note that the pain while still occurring is only faint now.
What is your ear pain like? Or is it related to menieres?
Hi yes, I am biopsy proven Coeliac. And I had the blood tests and the gene test too. I am having a repeat biopsy
this week to make sure I am healing but I expect I am ok since I have recovered from the deficiencies I had.
I got the results of a gastrointestinal function profile that cost me $500. I have yeast overgrowth but of more interest is the fact I have blastocystis hominis parasite. Apparently it is asymptomatic in lots of people (ie no symptoms) but it can cause lots of problems for someone who is immunosuppressed or has gastric issues! It is really difficult to get rid off apparently - just google bad bug blastocystis. I can't believe that a single cell organism can cause so much havoc!
I looked back thru my tests and I had a negative parasite stool test 1 yr ago after I became sick and was dx with celiac disease.
I travel a lot for work and have been lucky enough to have a few holidays since I was dx 15 months ago. Buffets are tricky but if I cannot ask for a gluten-free meal in advance (I did this on a posh dinner cruise and had a beautiful meal - the chef served me personally and he seemed really pleased tohave had the opportunity to be creative) always ask the head waiter for advice - they usually send someone out from the kitchen. They seem to be mostly pleased to be able to tell me what is safe and what is not. I then use my own judgement and choose the safest meals - ie roast beef and veggies. Easy.