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trilobitian added a topic in Gluten-Free RestaurantsParents Love To Go Out To EatI live away from my parents and currently live in Rochester Minnesota which houses the Mayo clinic so the amount of gluten free awareness in this city is abundant. (Which is really nice!) My favorite is Chipotle and has so far been the safest place for me to eat and I have not gotten sick.
However, when I go home, I'm going to a much smaller city (~30,000) people and my parents absolutely love to go out to eat. They consider it to be a treat to take me out to eat when I come home to visit. However, pretty much every restaurant at home when told I can't have gluten say to me "What's gluten?" and it's the biggest danger sign that I can face! I have to explain very in depth to them but I have yet to eat at a place at home that seems to "get it right" Always getting sick!
I've asked told my parents that if they want to treat me the best thing is to cook at home. They truly understand what's going on with me (even though I've only been diagnosed for half a year) and I can eat great food, worry free at home! Unfortunately, they still want to go out to eat all the time. We don't have any outback steakhouses and chipotles at home and I'm not home enough to make a big deal out of it to restaurants I'm going to visit once or twice a year. Any suggestions?
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trilobitian added a topic in Celiac Disease - Teenagers & Young Adults OnlyUnusual Celiac CaseHello all. I'm new to the forum (I have been perusing it for a few months now but never registered) I am 25 years old and was just diagnosed with Celiac disease in February.
I started going to the Mayo clinic because I had chronic hives (the second time in 4 years that I have had these hives that just don't go away.) My doctor and I spent many weeks and months trying to figure out why I had these hives. In the processes we discovered my immune system was in really bad shape. And then one of my tests came back positive for celiac sprue. So I was transferred to a new doctor who did the upper endoscopy on me and declared that yes, I did have celiac disease. So I've been gluten free now since then.
I went back to Mayo about a month ago and discovered that my immune system is not improving, it is continuing to drop.
My hives area also not going away.
We're beginning to think that these are not related to the celiac at all.
I have found that I seem to have a sensitivity to Annatto. So I've cut that out of my diet. My hives definitely get worse after I have that. And now I'm suspecting soy. I've read that soy has been discovered to have a lot of gluten contamination from the GROWING process. Ugh. (This genetic modifying and monoculture the United states loves so dearly is out to kill us celiacs I swear) So now I think I need to watch my soy intake.
As of now, I've had hives for over a year now, straight with only a few weeks here and there where I had some relief from them.
My doctors are suspecting possible common invariable immunodeficiency and I'm going to be (hopefully) finding out on Friday if I do have that, and what it means for my medical future. (expensive- that's for sure)
I used to work at an Environmental Learning center where our meals were served in a dining hall and I couldn't control all of my diet. I have found that one of the best things for me coping wise was to get my own apartment with my own kitchen. I know that it is cheaper to have roommates. But it was something I just could not deal with learning to cope with this diet and having to deal with roommates who want to have their own diet and all the possible cross contamination. I feel in control of my diet and I know that if I get a gluten attack, it was my fault and much easier to determine what caused it. It's also been a lot easier when I don't have to watch other people eating things I can't eat and smelling all that yummy food that I can no longer have.
I'm so glad I was diagnosed after college though! I think college would have made coping with this disease TEN times more difficult. And it's hard enough as it is!!!
Anyone else out there with some unique symptoms and other intolerances?
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