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Thanks for your answer. After chidhood, I never suffered any symptoms of celiac disease (but I used to have terrible headaches up until 20 or so). I developed a tremor when I turned 30, and after a neurological workup revealed nothing, I decided to go back and get tested for celiac. Nothing! I do think I'll get tested again after our 2-month gluten fest (daughter is ecstatic and trying to hide any signs of diarrhea so that she doesn't have to go back to a gluten-free diet). I think the elimination diet is a great idea; the only problem is that without a diagnosis of celiac, it becomes too easy to slide back into occasionally eating gluten, since it seems to be in everything. And without the diagnosis, I feel overly demanding with family and friends who invite me to dinner and who then either have to make something special for me, or watch as I disdain their food for my own. The diagnosis would make my behavior less neurotic-seeming. I'm torn between wanting my child to have a firm diagnosis of something we can "fix," and wanting the tests to come back negative so that she can experience the joys of bakery breads, pasta, etc. etc.
Hi- I just joined celiac.com expressly to answer your post!! When I was 5-years old, I too complained of a "hot tummy" to my parents. They were never able to get a better description from me, and frankly, at this point, I have no recollection of how a hot stomach feels. It was my mom, not the doctors, who first suspected celiac disease. This was the mid-seventies and there were ABSOLUTELY NO gluten-free foods that tasted good (or at least, none that my mom we willing to buy or try). I remember not being able to eat any treats or goodies for 6 months. My mom tried to reintroduce gluten on my birthday and gave me birthday cake, but I immediately regressed and started to complain of a hot stomach again. Six months later, she tried again, and I was able to eat gluten and have been eating it ever since. (About 10 years ago, I had my blood tested and an endoscopy, and there were apparently no signs of celiac disease; just a high IgG). I really don't get it, because my symptoms were so extreme at age 5. I now have a 5-year old daughter, and she seemed to be developing the same symptoms I had and so we took her off gluten. A couple of months later, she started developing similar symptoms even without gluten - cramping and diarrhea -- and we found out she is lactose intolerant. After taking her off lactose, she seemed much better, so we reintroduced gluten. There were no dramatic consequences, but about a week later, she started complain of a "hot tummy" and started to have diarrhea again (no cramping this time). Our gatroenterologist told us to wait a couple of months while she keeps eating gluten, and then they'll try the blood panel and if necessary, the endoscopy. (I have to admit that when I was eating gluten-free with her, my stomach felt better as well) Oh, and the dr. had never heard of the hot stomach symptom!