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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store.


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About notme!

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  1. What do I even do now?

    try food journal/elimination diet. i have just recently had to cut out eggs (yay what a difference!!) but it took the food journal to figure it out. i was blaming, like, twenty other foods! it's tricky mixing food allergies/intolerances with celiac. a food journal will help you pinpoint the culprit. don't panic
  2. eggs are not my friend. unless they're in something baked (ikr ???) i can't digest ANYTHING if i've eaten an egg. somebody told me duck eggs might be ok, but i don't know any ducks <i quack myself up ) i was busy giving up multiple other foods, when the innocent looking (and perfect protein, as i am underweight, so always trying to pack on the protein) egg is causing all the trouble. i even had salad (gasp!) the other night and everything was a-ok! i've had a hard time digesting raw veggies, but i was pleasantly surprised. still have issues with soy, but i avoid most processed foods. that seems to do the trick with soy good luck - i hope you find your answers!!
  3. try skipping the dairy for awhile. if your villi are damaged, the ends of them is what makes the enzyme to digest dairy. so, give them a little time to heal, then you can add it back. i think i stayed off dairy for about 6 months. i still have a little trouble with it, but i went undiagnosed for 25 years, so there was probably lots of damage good luck! you might want to read the newbie 101 thread (locked topic in the coping section) lots of practical info. glad you're feeling better.
  4. here is some helpful reading for you good luck and welcome to the club you never wanted to join
  5. ok, sorry it took so long to get back! my one friend said that he has dr rimma sherman in west orange. i think she is a holistic md but if that doesn't work, she might can point you in the right direction. lolz, from the tone of my friend's answer, i can surmise that he hasn't had such a wonderful time with g.i. docs up there, either!! makes ya wonder why the medical profession is so loathe to give a celiac dx..... is it because they can't sell you a pill or a cream or a treatment.....
  6. i have since moved to east tennessee, but i have friends up there who are celiac - whereabouts are you? i can probably recommend a few restaurants if you're in north jersey
  7. ps - completely missed that you also have hashi's - and two docs told you it's unrelated??!! wow. just, wow. makes ya wonder if they just want to make $$$$$$ treating the many symptoms of celiac...........
  8. yes, false negatives are common. my blood test came back neg, but i was already gluten free (at the advice of my doctor....) so antibodies aren't present when we are not consuming gluten. there are other reasons your test could be negative. i know that the science kids on here are going to want the test parameters as well as the results. i went for years suffering with the "ibs" "diagnosis" <and, it's not a diagnosis, it's a symptom) or they told me it was 'colitis' - i lost so much weight the doc was going to put me in the hospital on a feeding tube. not to mention the lovely migraines, terrible fatigue, itchy beyond belief rash, and constant "D" i honestly thought i had cancer or something. so, i got tested for EVERYTHING else (to rule it out) and when they did my endoscopy, the doctor could actually see the damage... then the proof was in the puddin', after going on the gluten free diet, all these mysterious, seemingly unrelated symptoms cleared up. my hair stopped falling out, my balance is better (not perfect, but i went 25 years misdiagnosed) i've not been sick in the past 5+ years, not a sniffle, not the flu, not the pneumonia i had every single winter!! because my intestines are actually doing their job and my immune system is rocking like a champ if i were you, i would get other things checked to make sure you weren't missing something different (chron's, thyroid, the dreaded cancer, gall bladder, etc) get the scope, and if your bloods are still neg, try the gluten-free diet. i was ready to bury a potato with a statue of buddha on the north side of an oak tree during a full moon singing a tom petty song when i finally started to feel better. <you get my drift lolz) good luck from a jersey girl (west milford born & raised - clinton rd was my backyard )
  9. well. *iiiiiiiiiii* want a pity party!! after every day eating (what i thought) the incredible, edible egg for breakfast (the perfect protein source) i'm finding out by accident that i need to eliminate it!!! grrr!!! i had my suspicions, but i skipped it for a few days and have had unarguable results. so. mad. evidently, having it baked into something or cooked in a pancake or waffle is no problem. i do not understand. stupid junk body............ who said 'constantly reinventing the wheel' that's it, exactly. what is in my diet *this* week????? (((((((((((((((((((((((((((hugs))))))))))))))))))))))))))))) to y'all, amen to people who understand!!!!!
  10. or the time i amazed everyone with my ability to leap across the kitchen, screaming: "NOT THAT SPOON!! NOOOOOO!!" like i'm taking a bullet for a loved one LOLOLZ
  11. most packaged frozen pizzas don't 'like' me - i ate the freschetta brand (gluten-free) and it felt like i was digesting broken glass - not fun! the against the grain brand is one i can manage. idk why. i still have a little residual sensitivity to soy (but not all the time? lolz stupid body) and i try to stick with the brands that have the least amounts of ingredients (why would you put xanthan gum in sour cream....?!!) i expect that because i went so long being undiagnosed/misdiagnosed, i may still be healing, even at almost 6 years strictly gluten free. so, who knows the reason some things don't agree with my finicky guts, but i can say with a certain amount of certainty that it isn't from gluten in products labelled as gluten free. so, there's going to be a little bit of a shove back to somebody who tells me all packaged foods are labelled to fool the general public. someone anonymously spreading fear among people who are already overtly cautious about what we eat (and rightfully so! ) isn't something that we would like to leave up here unchallenged. for the future newbies when i was first diagnosed, i thought there was gluten in *everything* - i was so paranoid (my poor husband "GET YOUR BEER AWAY FROM MY CELL PHONE!!!!" <as if i go around licking my phone lolz) but everybody finds their 'groove' - takes a little time, but everybody gets there. a healthy fear in the beginning, until you get your 'gluten-free legs' isn't necessarily a bad thing i had the hardest time quitting licking my fingers that i had to start wearing food prep gloves when handling gluteny foods until i could break myself of the habit it's also funny that you can eat amy's stuff - that's my paranoid company because it says it's manufactured in a shared facility lolz, so, it just goes to show ya, to each their own!
  12. how are they 'gone' after deep frying.............? because of cc, i avoid mcd's - not a careful environment - even if they were trying to keep a fryer dedicated, too many opportunities for mistakes. i am in the u.s. ps - this is a very old thread, i suggest contacting the company for updated ingredient list
  13. o, barty, what can i say :(((((((( i am so sad :(((((((((( won't you at least try treatment :((((( my daughter's boyfriend was dx/d w/lymphoma stage 4 and that was 5 years ago and he is fine....... :/ they are doing magical things with meds/treatments lots of new stuff ???
  14. i eat honey with no issues. it doesn't matter, local or from grocery store, i'm ok with it. o, the age old tea bag question: nope, no wheat paste - i understand they are heat pressed so that the paper meshes to itself. i use red rose brand tea bags and they have staples (no good for microwave, but i always make tea with boiling water) if you are new to the diet, you probably still have a lot of inflammation and there are plenty of things that are going to aggrevate your gut until you beging to heal. try to eat plain 'clean' foods. i would probably eliminate dairy for awhile, in the beginning many of us had a hard time digesting it. i skipped it for about six months and then i was able to add it back in. good luck
  15. really and truly, it doesn't matter if you have celiac or a gluten sensitivity, if eating a gluten free diet makes you feel better, the hell with everybody else. goodness - he should be happy you're feeling better!! if you've ruled out any other explanation for your symptoms (i know most of us were pincushions/lab rats for a long time "maybe it's this - nope, maybe it's that - negative" ) i know all my friends and relatives were so happy when i got diagnosed and husband was happiest - especially when i was *noticably* better and started gaining back weight!! i hope he rethinks his opinion :/ that being said: my husband turns into the biggest a-hole on the planet when i am glutened when i feel better, he is really cute (hint: it's me turning into the biggest a-hole on the planet when i am glutened, lolz) i hope you feel better