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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store.


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About notme!

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  1. i would be eating pizza and donuts - two of my most missed foods and difficult to find a gluten-free substitute!  lolz, yup:  me, pizza, donuts, the bed, and the bathroom............... sorry about your dad - welcome to the forum.
  2. jello is fine.  maybe you are sensitive to something else.  
  3. it's such an odd thing - i would have never associated half of my symptoms to celiac but i have had amazing results - dx'd at age 47 and i'm 5 years on the diet - sooo many seemingly unrelated issues have cleared up.  so, it's not that far of a stretch that this could be caused by that pesky gene   nobody who treated my daughter could tell me what caused either issue (although she had irritated her eye at the time we saw specialists - somebody poked her - idk how many times i've been poked in the eye and my cornea didn't start peeling apart!)   and being as her eyeball is made of cartilage (?) they thought they should test for r.a. as well, which came up positive.  they put her on meds for the r.a. and gave her eye drops for her cornea.  went back numerous times and they told us it wasn't working....  they didn't know what was causing it....  shrug....  nothing else to do.  bye   (o, and that it would continue to get worse until she will probably need a corneal transplant)  so, yay.  celiac almost killed me (and over 25 yrs i was so sick) before they stumbled over my dx, and they were not really all that willing to commit to it!  so, without her being super convinced (or nearly dead)  i'm sure i can't get her to change her diet.  i did tell her that someone on my forum had symptoms similar to hers and her ears perked up, so please keep me posted as to your progress.  thanx    ps - 34 isn't that old, whippasnappa !!  lolz
  4. i'm not a doc fan, either.  you're like a cash machine when they can make all sorts of $$ on all your separate symptoms - how much $$ do they make with a celiac dx?   $0.00 !  because the ONLY CURE is the gluten-free diet, so, doctors lose $ treating your symptoms.  they also lose in the future, when you don't catch every damb germ in a hundred mile radius or when you don't develop something terrible from leaving it untreated.  your symptoms sound like mine were.  doctors jerked me around for 25 years!   i got a negative blood test (but they didn't use dgp....  big surprise...) and i was already gluten free but there was visible damage when they did the scope.    fast forward five years:  i've not been sick (unless i mess up the diet and that's not often) no pneumonia <all winter, every winter since i can remember)  i just came back from a church trip youth convention weekend - everybody is sick - guess who's NOT sick?  this girl.  my immune system is up and running woo hoo!!  quality of life   it's a thing   hang in there kiddo --  welcome to the forum.
  5. ugh, i'm so sorry this is happening to you   your post, however, is of interest to me as my daughter has been having corneal problems since she was twelve.  she was also dx'd with r.a. at the same age.   so, we attributed it to that sort of inflammation....  fast forward to my celiac dx (the 'hail mary' dx, lolz) and i am trying to convince her to get tested for celiac.  she is now 26 - i am so afraid of the damage she's doing.   what does your doctor say is causing it?  (half these medical people have no clue, i'm sorry to say)
  6. i grate my own cheese and pop it into the freezer.  like gem said, less crap added.  i'm a big fan of the less ingredients, the better.  cheese:  milk, salt, enzymes...  boom.  cheese.   generally, it's less expensive, too   so, the cheapskate in me likes that.  and, i can have exactly the brand i want (cabot extra sharp white cheddar?  yes please!!  )  that being said, i've eaten pre-packaged grated cheese with no issues.  cellulose isn't wheat or they would have to list it in the allergy part (it just says 'milk')  
  7. lolz " farewell to all pies tour  "     sounds about right !!  good luck !!
  8. lizzy, my stroudsburg friend is out of town on business, but when he gets back he is going to contact someone who he thinks has a kids' group.  he and his wife have 7 or so kids (stopped counting at 5 lolz) and they are vegan, so he might have some other local resources for your son.   i learned of some other celiacs/ncgi people just randomly (church, lions club,  grandson's little league, etc) by attending local functions.  if i know someone with a gluten problem is going to attend and there will be food served, i make something 'safe' to share with my gluten-free buddies   glad you found that blairstown group and when i find anything further, i'll post it.  give your kid a ((hug )))  from me.  it's tough enough to manage being an adult, poor guy!  
  9. my dad used to threaten to send me to blair academy when i skipped school, lolz - i had a friend who actually went there and she got into waaaayy more mischief than i did in west milford
  10. lolz - i got married in blairstown ('where hope is only one exit away', lolz)  are you in pa or nj?  close to hackettstown nj?  there is an awesome restaurant called 'mama's baci' that offers an EXTENSIVE gluten free menu and they have a dedicated kitchen.  you can even get sauces, bread, pasta, etc to go if you're in a hurry.  never have gotten sick there.  nice people - they might could steer you in the right direction.  or you could contact the hospital there and see if there's a support group - i know they teach classes for safe food handling there at hackettstown hospital.  i have a few friends who live in stroudsburg (east) i can ask, too, if you are on the pa side of the delaware
  11. since the new appearance of the site, we have been getting posts from people who either aren't signed up or aren't logged in properly.  these misguided posts end up in our inboxes and discarded - really a waste because there are some good comments and questions (some are particularly long) but unfortunately, we cannot even move them or return them because we have no idea who posted them.    so, please be sure you're signed up and logged in if you are intending to contribute.  if you're not, it will not post where you want it and it will be lost in anonymous cyberspace forever.  and nobody wants that  
  12. Tmi Topic: Poo Troubles

    lolz, k, "love" the quotation marks  
  13. Brian

    i had a rough first year (at least) navigating the diet.  i thought i could 'just order off the gluten free menu', basically.  that it wasn't 'that difficult, no problem.....'  so, i got cross contaminated quite a bit in the beginning.  when i finally managed to start cutting ALL gluten out i sure noticed when i got accidentally glutened (as did everyone around me) because i turned into a jerk.  i could hear myself in my head,  thinking:  man.  what a jerk!  but, it was a result from getting hit by the gluten monster.  this may be what is happening to you?  have you read the 'newbie 101' locked thread on the coping page?  it offers many helpful suggestions on how to keep yourself and your food safe and alot of things normal people don't have to worry about (but we do)   welcome to the forum  
  14. lolz - i wish i could take credit but i stole it from a meme - but i do like the positivity/sarcasm    
  15. yep, you are going to be detoxing -- mine was complete with withdrawals (sweating, shaky, sickly)  and i kept re-glutening myself because i had no idea what i was doing, so, one step forward, 1/2 step back, but after about 2 weeks of eating completely clean, each day began to be better and better.  i would advise you to read the 'newbie 101' locked thread located in the coping section of the forum. honestly, when i first found this forum, i read and cried and read and cried some more.  i could have written most of the posts i read.  o, wow, that's why i have this rash)  yes, i was treated like a crazy freak and honestly, doctors don't know enough or are seriously under-educated about this disease.  it's pretty important because it affects your whole body!!  you should start to feel better soon, but manasota is correct - make your own meals at least for awhile.  i still have a very short list of places i will eat outside of my own kitchen.  lolz - every day's a picnic, literally, because i'm always packing food to eat !!   i can usually time if i accidentally eat gluten to about 24-48 hours (it will come on gradually most times, starting with the headache)  and it will take 14 days to leave completely.  in the mean time, i'm taking long showers and drinking lots of water, saving time for naps and staying pretty close to the bathroom (sorry)  take heart, you will get better at keeping yourself and your food 'safe' - welcome to the forum   good luck!