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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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  1. nah, it's not 4 slices, it's less.  if i ever have to do a gluten challenge (which is eating gluten for a period of time before being tested for antibodies - what you are describing)  i would be wearing OUT some pizza, lolz.  good gluten-free pizza is the holy grail for me :/  haven't had good pizza since i started the gluten-free diet.   anyhoo - you say you are having trouble with other grains as well - if you can't get tested for celiac i would encourage you to have testing to rule out other health issues.  you know, crohn's, gall bladder, etc things that would make digestion difficult.  and you can certainly have a blood test to see if you are lacking in vitamins and minerals.  if you have been on antibiotics it could have messed up your gut flora, so the sauerkraut, yogurt and probiotics will help if that's what it is.  deep breaths - most people don't have holes in their intestines, even with celiac.  if you've been avoiding gluten most of your life, you might not have alot of damage at all.  see what a doctor says welcome to the forum & good luck.
  2. yayyyy!   because i'm *always* suspicious of vinegar.....    i know, i know, if it's distilled, it should be fine.....  
  3. i am 5 years gluten-free (celiac) and a couple of weeks ago i took a couple of big swigs of my daughter-in-law's regular gluten beer by accident.  i had mostly neuro issues but not the knock down i was expecting.  i hope this is proof that i am healing and diet is totally worth it.  i haven't been sick (cold, flu, virus, pneumonia, etc) in, like, 4 years, so i guess my immune system is working as it should.  i used to be ill all the time   especially fall/winter time.  it's nice to be able to enjoy the holidays  
  4. not only is celiac difficult to diagnose, the medical community loses alot of $$$ if that is indeed what is wrong with you.  an undiagnosed celiac sufferer is a gold mine because your immune system isn't working properly, so you will be susceptible to many other things.  it is also a future gold mine, because chances are that you will develop other more serious complications are pretty certain.   it's my conspiracy theory that they really don't want to dx us because they will lose a ton of money.     i used to get pneumonia, for example, every single year.  without fail - as soon as the weather started to change down here and the holiday stress started, i would get sick and have to take super duper antibiotics.  in the past 5 years (since i have been feeding my body the right 'fuel' and absorbing my nutrients and vitamins) i've not even caught the flu.  not even a sniffle.  because my immune system is working like a boss.  my husband even got knocked down with that nasty virus last year and spent 3 days in bed - NOTME!  lolz     just sayin'    good luck!
  5. Gluten Withdrawal?

    yeah, withdrawal is a thing - some people get it, some don't.  it feels like the flu (mine lasted 2 weeks) so, i just treated it as such:  nap when you can,(many, many naps!)  lots of fluids, etc, i think i took some tylenol for head/body aches.  it should go away soon, or your days should start getting progressively better.  hang in there
  6. ^^^this.  is what i went through for 25 years.  treating every symptom separately (yessss, i had all the pills ALL of them - i notice now there is a new drug out for 'IBS-D' that makes me scream at the tv "DO YOU MEAN CELIAC???!!!"  i'm sure if i wasn't already dx'd my doc would be running to the prescription pad...)  i've been treated for migraines, vertigo, allergies <i still have some that are seasonal) the dreaded "IBS" , colitis, loss of appetite <those pills are why they invented bed trays hahaha might as well just stay in bed they made me so doped up i couldn't take them but one day!)  i've passed out at home, passed out at a restaurant <scary!)  fatigue, the big 'D' and as a last ditch idea, my g.p. wanted to try One More Thing before they hospitalized me for malnutrition.  all my vitamins were tanked, as are yours, which is a pretty big indicator that your intestines aren't absorbing nutrients.  sooooo many things in your post have resonated as similar to my experiences, it WILL mess with your whole body, including your reproductive system (have had a miscarriage and other problems)  my blood test for celiac came back negative, because my dumb doc told me to try the diet prematurely (you should be consuming gluten before the test and i was not) but my GI declined to put me on a gluten challenge for the scope or to be retested because as soon as i stopped eating gluten, i began to regain weight (i was 5'8 97 lbs before i went on the gluten-free diet - i looked like a damb skeleton   )  eventually, following strictly gluten-free, the inflammation in my whole body went down and my symptoms started to disappear.  i even had a 'background headache' that i didn't realize i dealt with every day because pain was the 'norm'  - so, i didn't notice this headache until i woke up one day and it was gone.   please do keep an open mind that if this is, indeed celiac, it will change your quality of life for the better!  sure, it's an extra pain in the ass to eat carefully, but sooo worth it.  celiac is systemic, meaning that it affects your whole body (including neuorological symptoms!) so, you could be pleasantly surprised to have multiple (seemingly unrelated) symptoms to clear up after going gluten-free  - if your doc is ruling out all this other stuff, (mine did the same) chances are you may have celiac.  like i said, your post is hauntingly familiar as far as ringing bells for me.  but i am not dr. google lolz good luck and welcome to the forum.  we need more poop experts <totally cracked me up !  
  7. LOLZ !  "here i sit, all broken-hearted....."     it took me years to re-learn the art of the fart.   OP - have you tried digestive enzymes or probiotics?  i have experimented with them until i have the perfect combination that works for my body.  digestive enzymes will help to break down food in your stomach (i take them with every meal) and probiotics will help to restore the flora (good bacteria) in your intestines.  i hope you feel better.
  8. if i had to eat gluten again for testing, i would be wearing out the pizza!!!  because if you hafta go gluten free after all this, good pizza is far and few between, lolz - just about mythical   as in, i have heard tales of decent gluten-free pizza, but i've never been lucky enough to ever eat any.  blech.   good luck with your challenge      ps - brain tumor cracked me up - 'funny not funny' is my sense of humor  
  9. LOLZ!  mine was $3, too!    that is too funny!
  10. i use back bay brand (on sale at big lots!  yay!)  ingredients:  water, alcohol, and vanilla bean extractives    no problems and i have used nearly half the bottle.
  11. i drink 'regular' lipton tea every morning (no fancy flavors, just hot tea) and do not have any issues with it.  
  12. How Do You Limit Your Iodine?

    someone told me (so, this is not presented as a scientific fact) (it might have been on this forum) that ibuprofen contains iodine.  so, in the beginning, i was avoiding it until my skin cleared up.  now, i don't have the headaches i used to have or that lovely joint pain, so i probably take 2 per year.  and then my scalp will break out, so i figure it is that...?   or, whatever is making me have a headache bad enough to take a pain reliever makes my scalp break out, lolz...  
  13. I Can't Help But Wonder About This...

    i stay away from iodine (except for naturally occuring as in fish) because, no matter how long i've been gluten free, it still makes my skin rashes flare up.  for what it's worth, i think science has MUCH TO LEARN about gut flora and its very important role it plays in overall health.     my husband was tilling the garden to plant last spring and he tilled up a nest of bunnies.  their eyes were closed, they were the youngest bunch i had ever tried to feed, but i tried it anyway, as i have had success in rehabbing wild bunnies into young adulthood for release back into the wild.  ie:  when they were able to eat greens/vegetation, i would release them.  until then, i fed them 'puppy formula' that i got from the pet store.  well, they were doing pretty well, their eyes opened and they were active, so i let them try to eat grass/greens.  the next day, their little bellies bloated up and died.  i found out later that they need a certain enzyme FOUND IN THE MOTHERS FECAL MATTER in order to be able to digest anything but milk.   they acquired this enzyme by nursing therefore getting it from her body.   another thing i noticed is that my kids weren't as ill when they were little than my sister's kids were.  i was shocked by this, as she is a much better housekeeper than i am (i'm like:  good enough.  a little dirt won't hurt you.  husband is a big fan of 'the five second rule' etc) and she is into sterilizing her floors.   but her kids picked up every bug that came around.  mine were exposed to the same germs and were fine.  as a society, i think we're probably cleaning ourselves to death.
  14. is it possible you are still getting gluten somewhere?  even a little bit?  that's wierd with the fever, though.  <have you been tested for lyme disease?)  are you eating dairy?  vertigo would be a neurological symptom and neuro is always the last to leave the symptom party (sorry) i still have balance issues (less and less, but i guess i'm gonna hafta give up tightrope walking LOLZ j/k )