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nurse93 added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)6 Months Gluten FreeHi all, I have not posted since Aug 2010 right after diagnosis. Its been a heck of a journey for me.Coping with the possibility of heart surgery and then celiacs. Just wanted to share some news. Had a celiac panel last week. GI doctor wanted to see how I was doing on the gluten free diet. I had mixed feelings about what the results might reveal. I have not put one thing in my mouth that I did not prepare myself or check the label carefully, except a couple of meals my husband prepared. He really is getting good at preparing meals gluten free. He has a cheet sheet with all the ingridients that are forbidden.I couldn't help wonder if the test came back elevated what I would do. I knew i was diligent with my diet, toiletries, medications etc. I though if my numbers came back elevated I might as well be eating gluten. On the other hand if they were normal I had been doing it right. Well I'm pleased to say that my tests came back negative. All levels normal. Looks like i have the hang of this. For all those just starting out it does get easier. Next I would like to try eating out. I have been putting it off for six months. I am just so afraid of getting glutened. Anyone try BJ's gluten free pizza? I think they have Redbridge beer too. Thank goodness for Redbridge beer.
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nurse93 added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsGoing gluten-free TodaySo today is the day I start my gluten-free diet. I am not having any GI symptoms, and was wondering once I start the diet and if I accidently ingest gluten will symptoms arise? I am starting with the basics as many of you suggested. I hope I can do this. Would hate to induce symptoms when I haven't been feeling bad.
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nurse93 added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsNew To Forum Lots Of QuestionsI will try to make it brief. but I would like to give a little hostory. 8 months ago diagnosed with microscopic colitis. Told my GI doc that I learned there was a link to MC and celiacs. He dismissed my concerns. Also had endoscopy which showed blunted villi. Fast forward to recently. I have a heart condition that I've known about since 2008 and was told that sometime in the future would need open haert surgery for valve replacement. Then all of a sudden I was scheduled for August 11th of this year. This week. On my heart forum there is a lady who has celiacs and she said she had to have a tissue valve instaed of mechanical due to celiacs and absorbtion issues. Went back to my GI doc and told him I needed to be tested. He reluctantly agreed. He called me friday night (while I was having a beer) and told me I had celiacs. Test was greater than 100 and that normal was 5. I continued to drink my beer and another.. Sorry for long post. But now have lots of questions, have not gone gluten free yet spent today with hubby cleaning out cabinets and fridge for my gluten-free foods.Spent 2 hours in the supermarket. Also puchased some books to try and figure all of this out. Oh and good news saw a specialist and had more tests and they are postponing my surgery for now. I thought heart surgery was going to be tough, I think this may be tougher.
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