This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
It's good to hear you are doing well. I used to post more 4 years ago when I went gluten free and I always loved your spunk and spirit. The gluten-free lifestyle does get easier. I have had to go deeper with my healing as I was diagnosed with another auto-immune disease this past March (Sjogren's) but I love that I've been able to manage both diseases with diet (for the most part…Sjogren's is proving to be a bit stickier). Learning to love real and nutrient dense food took time, but it is so worth it. Our bodies are amazing and can heal themselves with proper TLC. I think it's a "great" time to be gluten free. There is so much more awareness that even 4 years ago when my family went gluten free. Feeling better is worth every step of this arduous journey.
Hi. Bad mom here. I am over 4 years gluten free as is my daughter. The house and kitchen are gluten free. My 11 year old and I have this down. EXCEPT for the fact that I am an idiot. I switched us to a new shampoo without reading the label (insert head smack here) and after my daughter broke out with a terrible rash on her scalp I *duh* realized that WHEAT was right there on the label had I bothered to actually read it.
We tossed the shampoo 2 weeks ago but we are both still miserable. At this point we are using homemade soap with castile oil and rose oil. Neither of us have experienced this kind of contact rash before. Back in the olden days before I was diagnosed my rashes DH rashes (from eating gluten) lasted about 3 weeks.
Does anybody have any experience with this? Is there anything else I can be doing. We are so itchy!
Well, I realize this is bringing up an old post but I did promise to come back with my review. We got back Saturday from Now Sapphire Resort Riviera Maya. My report isn't quite as glowing as gancan's but it was okay. I think if you are extremely sensitive to cross contamination, or even just pretty sensitive, you may find it difficult to navigate eating at this resort. My daughter and I have been gluten free for over 3 years, (me almost 4) and I think had we taken this trip 3 years ago it would have made us very sick. In the past few years we've been able to get some dairy back including butter which was great for this resort. All our gluten free foods were dripping with butter. I sort of found some safe things to eat at the beginning of the week and stuck with those. In situations where we did have to pull out the allergy cards I thought the staff was very helpful, and the chef would prepare special meals, but usually without any sauce or seasoning whatsoever so the food was pretty tasteless. I'm getting pickier about this as I'm learning more about cooking and making healthy foods that still taste good.
My daughter (age 10) did stay home from school yesterday because she wasn't feeling well. She couldn't tell me if this was a food reaction or actual sickness (virus) but sometimes it is hard to tell the difference. I came back with a tiny little dh rash and I think some eczema on my back (although my husband insists is looks like a bug bite?) So…a little recovery time. I have made my peace with traveling. I know that I must be getting some gluten when I travel or eat out, but I am not willing to give it up so I do the best I possibly can when I eat outside of my control. I know I got some this week just because of the rash, but honestly I felt pretty good and had minor joint pain and stomach issues. To me I'm okay with that (to travel) but I can see where this might really hit someone else very hard and ruin the trip. Hope this helps.
For me joint pain from nightshades does seem to be cumulative, but I don't know if this is typical. My diet is mostly paleo, but I am not really a fan of low carb, so I use white potatoes and some rice, and even orange juice to get enough carbs to feel good. But a few weeks ago I was getting massive hip pains and I realized I'd been eating potatoes every morning for several days. So, now I think I'll just eat occasional spaghetti sauce (tomatoes) and continue to eat potatoes when I travel, as a steak and plain baked potato seems to be the fail safe for the gluten intolerance.
Yesterday I did have spaghetti sauce and was even waking in the night with joint pain...so it's a bummer. I just don't know if I'm willing to entirely give up another food.
I'm so glad you have your diagnosis. I hope this doesn't sound at all cruel, but whenever someone in my life tells me they are diagnosed with celiac, I actually feel a little happy for them because I know (if they stick to the diet) that they are going to feel so much better very soon.
I second the Udi's chocolate muffins. They are so good. They actually still make me a little sick, but sometimes I just have to do it, like a birthday.
I do not have a celiac diagnosis, because after a negative blood test (hadn't been eating gluten for months) I just could not face going back on gluten for the endoscopy. But whatever you decide to do is fine. If I had the blood test I'd probably call it a day, but some people like to know the extent of villi damage.
One more person to advise that dropping dairy means ALL dairy. I continued for about a year to just use cream in my coffee and had pretty bad D almost constantly. It was when I finally dropped all dairy that I started to heal from the damage dairy was doing to my body.
And I know it's frustrating when you feel like people are telling you that things are all in your head. I know a lot of people on this board have felt that way for sure! This should be the place that you don't feel that way. Getting rid of gluten, corn and dairy cleared up 90% of my issues. The frustrating thing is that uncovering the rest of the puzzle is hard. And it seems like food sensitivities can come and go (I've had to drop eggs, but then got them back)
This process will teach you to listen to your body, and not worry so much about outside noise. I don't use this board much anymore, but in the beginning this place was an absolute lifesaver.
For sure yes. (I have problems with both lactose and casein)
Through the process of elimination, I realized that most of my crippling stomach issues were actually from dairy rather than gluten. The gluten was causing MANY other symptoms, but the dairy was giving us (my grade school daughter and me) both hives, allergy symptoms and very very very bad, ahem...stomach issues.
We have been gluten free for 3 years and this summer have re-introduced butter. My daughter seems to have zero issues, but I still get allergy symptoms if I have very much. That is about as far as I'm willing to go, although I'd love to be able to eat greek yogurt.
Our dairy substitutions are coconut milk (Native Forest out of the can), rice milk and sometimes almond milk. After a few years of this I still occasionally miss gluteny products, but honestly the milk doesn't bother me anymore.
Kindly say your piece, then leave it up to the other person.
When I was 42 I went gluten (and dairy and corn) free after many years of symptoms, but 2 years of rapidly failing health. I watched my younger brother suffer from the same health issues and be diagnosed with diabetes at age 40 but refuse to even consider going gluten free (His gastro tested him for celiac, and he had negative tests so he was told that gluten wasn't an issue). Well,now he is 42. I just saw him a couple of weeks ago and he finally decided to go paleo to feel better after doing all of his "own" research about the subject. So maybe 42 was the magic age for my family.
I have a feeling that your brother may get fed up and explore what he needs to do to feel better on his own. I had people (not doctors, just concerned friends) screaming "You have celiac" at me for a year and I just told them they were nuts. When I was at the point I was crying "uncle" I was ready to listen. I hope your brother gets there.
When I am 100% paleo including no wine (*sob*) I feel amazing. I can even "cheat" with a few lentils and white potatoes here and there and still feel pretty good. I tell people even if eating this way (all the meat) takes some years off my life, I'm okay to feel so amazing everyday. Especially when you consider the contrast from before my diagnosis (ncgi) 3 years ago.
Great that your nausea has passed. That was my most unfavorite symptom of all.
That is quite a story. Realizing that I have an auto immune disease and that I will still have very bad days even when being as careful as humanly possible has been one of the hardest things to come to terms with.
Sadly I have been gluten, dairy, corn and soy free for over 3 years, and I still feel the absolute best every morning, until I eat something. Even after my morning cup of coffee I still feel great. Until food.
My feeling is that I have a leaky gut that just needs to be addressed once and for all. I feel like I should go on the GAPS diet but after already giving up so much I'm just not psychologically ready.
I will say that I still feel about 4,000,000 percent better than I did 3 years ago so I know that everything I've done so far is working. I just need to find the final piece of the puzzle.
My path was so similar to yours. I had a host of health problems that the doctor would shrug off. My mother had already been told to go gluten free by her GI a couple of years earlier, so based on that and another friend's advice (she had given up dairy, soy and wheat) I tried the diet for 30 days. Well...the short story sort of picks up kind of at the same place you were. An allergist I was seeing was fairly certain I had celiac disease and was encouraging me to go on gluten for 8 weeks...and I was like..."Forget it, lady" I was feeling so amazing, I was actually dreaming that I was 16 years old (I was 42) and felt like shouting from the rooftops: "Gluten free saved my life."
I just could not do the gluten challenge. Just couldn't face it. And I knew no matter what the diagnosis I was through with gluten. In some instances I think it would help to have the actual diagnosis (family of skeptical doctors) and I really wish I'd lied about the diagnosis from the very beginning. But I didn't really understand celiac or gluten intolerance at the beginning. I do tell people in restaurants that I have celiac, because I really believe that I do. Just self diagnosed. So...you're pretty young. It might be convenient to have the diagnosis in the future, but since we don't need a doctor's prescription to eat what we eat, I just manage it on my own. I cannot eat dairy or corn (same response as gluten) and only eat soy with sushi (gluten free soy sauce)
Absolutely 100% gluten free. No question.
Personally I think I do have celiac based on the fact that I had a very specific rash from eating gluten, but by the time I got myself to the doctor I had been off gluten for 2 months and even though the doctor was pretty sure it was celiac I wasn't willing to do a gluten challenge.
That said, after 3 years of eating gluten free and constantly reading about it, I believe that there is gluten intolerance that doesn't present as celiac disease. And it's very serious. I believe some people with gluten intolerance develop celiac disease, some get arthritis, some get chronic fatigue, etc etc. I'm glad NCGI is finally starting to get some attention because I worry that a lot of people who need to be gluten free test negative for celiac and then go on with their lives as if gluten isn't the problem ( My younger brother for example)