This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Thanks for the post! You've saved me some internet digging time - for both the twists as well as the Reese's cups. After the 3 kids got home the other night I began sorting and automatically just threw all the twists into a "gluten" box since I assumed they were like twizzlers......I hope the troops overseas enjoy them ;-).
I read on another thread that while Kix are gluten-free ingredients, Gen Mills isn't stepping up to advertise or have them quoted as saying they are safe since they aren't guaranteeing the manufacturing facilities. I've been giving them to my 3yo and she's been fine with the Kix.
Thank you for posting this list! I thought we had our bases covered at pre-school but after my 3yo had 2 "abnormal" bm's after art class today, I'm questioning if she was glutened. So although I will specifically look at the bottles of paint they used (tempura or finger), I can also give them this more robust list of items to use as a reference. Good stuff!
When my 3yo was diagnosed, my husband ran out and bought all the super expensive organic gluten-free cereals. *I* buy her chex and kix and of course the Wegmans fruity pebbles. There are a few other options I've noticed on the regular cereal shelf, but since I haven't purchased them yet I can't recall. Chex does also make chocolate chex which is a GREAT snack!
At least there's a Wegmans! That is my savior here in VA and I can find ANYTHING I need there. Have your husband shop and stock up on replacement items if he can't influence the food preparation...........i.e. no flour in the turkey gravy, no stuffing into the turkey but prepared on the side. Have your husband get some Hillshire Farms turkey from the refrig. section (I know their ham is gluten-free) and pick up cupcakes/brownies/cookies from the frozen section in the Natural Foods part of Wegmans (that's where the AISLE of gluten-free foods in our store is). Go to the Wegmans website and pull down their gluten-free food item list to highlight what to shop for. They only list their brand names that are gluten-free but you should still be able to identify 95% of what you need and then go to the gluten-free aisle.
I will tell you that my 5yo (non-celiac disease) LOVED all things dairy - she couldn't get enough of milk, yogurt and cheese. However, after 1 winter with 4 dx's of pneumonia, we suspected food allergies. Got her b/w done and no allergies, no celiac. However, just to try it out, I took her off casein. OMG. Her GI issues improved (loose stools), her skin cleared up and we got through last winter without any chest colds. We allow her 1 dairy item per week and she drinks almond milk with dinner & breakfast; she's also on a custom-made multivitamin and omega 3 supplements. HTH!
We had taken my 3yo celiac disease off dairy as well at about the same time but never saw improvements........because it was the celiac that we didn't diagnose until a year later.
If you suspect celiac disease or food allergies, raise your concerns to your ped and they can run a bloodtest - celiac top 10 food allergens. If the celiac panel comes back positive (or you really question the negative result), then that is when you have to put your child under anethesia and do the endoscopy/biopsy. My 3yo did the procedure in August and it really wasn't horrible for her - worse for us seeing her go to sleep and having her be unconcious. But we had to get over our fears b/c we needed to get the positive biopsy for the celiac disease diagnosis. She was only out for maybe 20 minutes, woke up a crank (but that's not unusual for her) and was just fine.
I would suggest getting the bloodwork now while she is glutened. You don't want to have to re-gluten her when/if you want to test for celiac down the road.
We experienced something similar, but with my 3 year-old. We thought about putting my 7 year-old son on a Gluten-free Casein-free diet to help with his Sensory Processing Disorder, but only went CF when a peptide test came back negative for gluten intolerence. My 5y.o. went CF too just to test her and lo and behold her illnesses (4 x pneumonia in 1 year) and skin issues, cleared up. We added the 3y.o. to the list of CF as well to address her tummy/poop issues.....no such luck. At her 3y.o. appt, our ped ran a celiac panel to rule it out so that we could move on and try to find the reason for the GI issues. She's now back on milk :-) and doing great off of gluten.
We have not found that eliminating gluten in the kids' diets has proven to be as difficult as we thought. My older 2 still have bread and bagels but 99% of everything else in the house is gluten-free - pasta, pretzels, chips, cereal (i.e. chex), cookies, etc. All things that complement naturally-occuring gluten-free foods - meats, fruits, veggies, rice, rissoto, etc. The only issue we have are with chicken nuggets since we can only get Ian's in our area. And my celiac disease girl loves her gluten-free donuts and waffles.
I scanned over a few of the prior posts and saw mention of a 504 plan, etc.
When I read your initial post and the effects on school that a gluten incident has, "IEP/504 plan/child study" was screaming in my head. I haven't done my research but it looks like others have and that celiac isn't directly covered. HOWEVER, if you approach your school administration, explaining the effects of this on your child's schoolwork, they should be open to working with you on accommodations. Step 1 is to focus on providing homework when your child is out, extended test times, etc. for when he returns to school before the fog clears 100%. Depending on the school, they may or may not require some sort of doctor's evidence with each gluten incident (if it's possible). Some schools are more flexible with what they will or won't do for you. Stay strong and know that your child has the right to FAPE (Free And Public Education). My friend has 2 boys with Cystic Fibrosis who are out of school enough to warrant IEP's so that they can get work at home while sick and make-up tests upon their return. They don't need any other accommodations, so I don't see why celiac wouldn't be similar except that it's not yet on THE lists.
And I will tell you that is possible to accommodations/services for illnesses that are not on THE lists. It's not easy though and they make you jump through hoops. My 7 year-old has Sensory Processing Disorder and it is not on most schools' lists of approved medical conditions because it's not a nationally recognized illness YET. However, we have been able to secure what my child needs in the school to give him FAPE - whether it is sensory breaks, extended time for writing tests, special education teachers to help him with his writing processing skills or social skill development. It was a long uphill battle, I won't lie to you. And some of the schools we've been in are easier than others and support us more. So there's no black and white. Hopefully if you approach your school admin. with your proposal, they will accept your ideas and help get them implemented.
I do need to say thank you for posting this issue you are having. I am putting it away for a few years down the road when my 3 year-old celiac is in school. No clue how sensitive she'll become since we're only 2 months diagnosed, but good information to have.
Sadly, that's the point I'm at. She's unwilling to accept responsibility for what my children did while under her care. The more I think about it all, the greater an issue it's become - far more than just contaminating my baby.
My 3yo had regular, always loose stools, going 3-4 times a day along with stomach pains. And when she got sick or would ingest a lot of gluten, it would be liquid. Almost immediately, her bowels improved. As soon as we got the celiac disease b/w back with positive results, we cut back on gluten. And then once we got the positive biopsy, she went 100% gluten free. Now, if there's cross-contamination or gluten ingested, we can tell b/c her bowels change immediately. I know it's the opposite side of things, but hope this helps!
Thank you all for your feedback. I may have to try the rat poison analogy with her. She just does not accept responsibility for my children's actions when they are in her care. It can & probably is more of an issue than just gluten. For now, she won't be babysitting and left alone with my kids. It's sad, but I'm not sure what else to do other than continuing to share all the celiac disease and gluten-free info I come across.
Wow. And I thought I've been through the wringer with my 7.5yo with SPD (Sensory Processing Disorder). I thought that it would be a little easier with my newly diagnosed celiac disease 3yo.
My point to the original poster is that you should not be forced into homeschooling. Especially if it is not the first choice of you or your child. Your school is required to provide FAPE. Granted, you may be at a private pre-school where you have to work with them to get things in place. But once your daughter is ready for public school, you may have to get more forceful.
I think it is harder in pre-school to catch everything since there are SO MANY more art projects than in elementary school.
Looking for help on how to educate and fix a VERY touchy situation re: gluten-free eating.
My mother is unwilling to be vigilent about what my 3yo eats, gets into, touches, etc. She babysat for us yesterday and we had an incident where 1) my mother cross-contaminated the butter (bagel crumbs ALL over it) and 2) where my mother had no clue what was in the goody bag my 5yo brought into the house. Aside from not letting my mother babysit or spend any 1-on-1 time with my daughter, how do I get through to her? When I called today to explain that my 3yo had ingested gluten somehow (evidenced by her abnormal BM), she was unwilling to take responsibility for what my daughter got into while under her care and hung up the phone on me. I've sent her lots of articles on celiac disease and gluten-free since getting the celiac disease dx in August. I've explained the damage to my daughter's intestine that takes place when she has gluten. I just don't know what else to do.
I am sure I am not the first parent to run into this. I feel like babysitters, daycare providers, etc. take this more seriously.