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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

scuzy

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  1. Anyone In Florida?

    I can vouch for the kissing thing, IT SUCKS!!!!!!!!!!!!, I guess everyone is different though, but one night I kissed a guy after he had eaten pizza a few hours earlier and I still got glutened... I read in a book somewhere that if you are dating a not gluten free person make sure they brush there teeth before you ever kiss them to avoid the horrible consequences.
  2. Yes, before I went gluten free and even when I get glutened now, I do feel that I get sick a lot more than normal people. lol, just another symptom we all have to deal with I guess...
  3. - Lots of D, maybe upwards to 5 to 6 times a day - I break out on my scalp (and it's itchy) for a week or two - A sharp side pain, possibly my kidneys, within one week of being glutened - Hungry almost all the time, it's like I can't get enough food, yet I don't gain any weight (which is a good thing) - Tired all the time - Brain fog - Clumsiness, broke my toe once by kicking the couch, and I drop a lot of stuff - I think that's it...
  4. Gluten Free Wheat!

    I told a waitress one time that I had a gluten allergy, and she replied with "So you are allergic to dairy?"...
  5. Almost Cried At Work!

    I get that too, well most of the time. I am finally getting way with my family that I live with. We even made an entire gluten free dinner (with an awesome chocolate cake) for some guests one night. Everyone loved it... if only people gave it a chance they would see it's not bad.
  6. True. But is it possible that the gluten has damaged them somehow? And that it could have caused some other medical condition that we should know about? I mean kidneys are very important.
  7. Hello, ( I posted this on the pre-diagnoses part as well, not sure how many people read both) I have self diagnosed myself with Celiac Disease back in August. I have been feeling sooooo much better since I have been gluten free. It took me about two years to figure out that I had Celiac Disease and am wondering what kind of damage could I have done to my body within those two years of horrible symptoms. Before I went gluten free I would get these really sharp pains in my lower right back (the doc says the kidneys). I noticed that when I went gluten free they almost went away. I also noticed if I were to get one of those painful episodes it was always around if I got glutened by something. So since I don't have health insurance I never went to the doctor for it. I finally went the other day because I had a really really really ext... painful episode for about 5 hours. The doctor felt around and said that he felt a mass on my right kidney and he also found blood in my urine. I had a CT scan today and the doctor called me to tell me he was stumped. Everything came back fine, there was nothing abnormal about the scan, he has no idea what is wrong with me. I mentioned to him I believe I have Celiac Disease so he said that it could be causing pain and that when my insurance starts next month to go to a Gastroenterologist. So my question to everyone is... Does anyone know if Celiac can cause kidney problems? And how would the doctor figure it out if I am gluten free? I would hope he wouldn't have to gluten me to figure it out...
  8. Hello, I have self diagnosed myself with Celiac Disease back in August. I have been feeling sooooo much better since I have been gluten free. It took me about two years to figure out that I had Celiac Disease and am wondering what kind of damage could I have done to my body within those two years of horrible symptoms. Before I went gluten free I would get these really sharp pains in my lower right back (the doc says the kidneys). I noticed that when I went gluten free they almost went away. I also noticed if I were to get one of those painful episodes it was always around if I got glutened by something. So since I don't have health insurance I never went to the doctor for it. I finally went the other day because I had a really really really ext... painful episode for about 5 hours. The doctor felt around and said that he felt a mass on my right kidney and he also found blood in my urine. I had a CT scan today and the doctor called me to tell me he was stumped. Everything came back fine, there was nothing abnormal about the scan, he has no idea what is wrong with me. I mentioned to him I believe I have Celiac Disease so he said that it could be causing pain and that when my insurance starts next month to go to a Gastroenterologist. So my question to everyone is... Does anyone know if Celiac can cause kidney problems? And how would the doctor figure it out if I am gluten free? I would hope he wouldn't have to gluten me to figure it out...
  9. I want to comment on the scalp itching symptom that went away. I have been gluten free since August or last year and my scalp had always itched like crazy and I would get pimples and stuff on it. I finally found a shampoo that I could use along with vinegar that would get rid of the symptoms. The other day I was given baby shampoo to try, to see if it had the same effect, my symptoms came back but not as bad. So I decided to try another shampoo(that I had always used before, with symptoms), so that I could compare the ingredients and find out what is making it do that, the reaction was the same mild reaction from the baby shampoo. Then reading this post made me wonder if it was the gluten that was making me have those reactions to shampoo, but why is it taking SO long to fully go away. Because man do I miss regular shampoo... It has gotten less severe, but still VERY annoying and uncomfortable.
  10. I know weed will suppress the symptoms from eating gluten (and yes I know or am sure your body would still attack itself), but one time every year or so won't kill me. And will the herbal incense do the same? I am only asking because I really WANT some pizza, real pizza and I don't want to do anything illegal to have some. Has anyone tried any of the herbal incense? Wicked X? K2? Mr. Nice Guy? Or any others? And were you able to "cheat" without any symptoms?
  11. I have been against smoking my whole life, but finally I had decided to try it so that people could stop calling me sheltered and stuff. But anyway, I tried it once (before I was gluten free, still having all my symptoms and stuff) and I had no D for like 2 days!!!!! It was amazing, I thought it was a weird reaction at the time and I normally would pee like every hour, but when I tried pot I was peeing every half hour, but no D!!! I'm not sure I agree with it being legal or how it could affect your life, but it did make me not have D while I was eating gluten and that says something.
  12. I posted this on the pre-diagnoses but I might get more responses from the post-diagnoses section. So as the description said I used to pee about every hour. I didn't drink a lot, but after measuring my input and output one day I found that I am normal, but I would always pee 3 oz, aside from when I woke up in the morning and it would be about 8 to 10 oz. The doctor told me that because my output was less then my input that there was nothing he could do, except maybe run some expensive tests, but I don't have health insurance. I have now been gluten free for over 2 months and I can now go between 2 to 4 hours without a trip to the bathroom. So has anyone else had a frequent urination problem, that has lessened or done away with the gluten free diet? Does anyone think it might be related to Celiac? Thanks
  13. Hmm, it's interesting to read that you now can go up to 6 hours, maybe after a few more months I can go that long. I did look into the Interstitial Cystitis that cassP mentioned, and it said that people who have it commonly have IBS ( the most common miss diagnoses for celiac). But who knows, I'm just glad that I might have something to look forward to in a few months. Thanks you guys, and hopefully I will get some more input to see if there are more people who have (had) this problem.
  14. I have had the same issue of eating when I'm not really hungry. I was so used to eating all the time because my body felt starved of nutrients. I think it just takes some practice, it's kind of like if we had to learn how to walk again, but with food.