This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I know that this post is out of date from when this topic started, but if you still have the "shiner" problems, it's most like b/c you are allergic to Lactose and/or casein (which is a common side-effect celiac disease).
Actually, they are called shiners...
"The symptoms of milk protein allergy can manifest in the skin, the digestive system, or the respiratory system.
Skin reactions may include an itchy red rash, hives, eczema, allergic "shiners" (black eyes), and swelling of lips, mouth, tongue, face or throat.
Digestive system reactions might include nausea, vomiting, diarrhea, gas, bloating, or abdominal cramps.
Respiratory system reactions include runny nose, sneezing, watery eyes, itchy eyes, nasal congestion, wheezing, shortness of breath, or coughing; or even anaphylactic shock.
Some children may have reddish ear lobes or a glazed look in their eyes. Other symptoms that may be attributed to milk allergy are bed wetting, lethargy, and inattentiveness."
It's worth checking into by getting blood allergy tests for it. Good luck
PS - Since I have found out of have celiac disease and dairy allergies, being on a new diet, my eyes are improving more everyday!
You DO have symptoms of dairy allergies and eating dairy daily makes them a lot less strong. Take out all dairy and caesin (a hidden ingredient in a lot of foods like soy products), and see if it goes away. Don't write it off just because you've had dairy all your life
Get tested for Lactose and Caesin allergies through blood work. Get tested for the top 100 food allergies if you can.
When getting my food allergy results back, I was extremely taken back that I am allergic to all dairy, gluten, etc. etc.
I would suggest that a lot of you do have an allergy to lactose and probably caesin - a milk protein. Caesin is found in a lot of soy products and other products. Because celiac disease causes a dairy allergy too, I would suggest you to get food allergy blood work for the top 100 foods.
Also, my naturopath put me on betaine HCl, which I take with a meal, and it alleviates the bloating and gassy heavy stomach.
"supplementing with betaine HCl (a compound that contains hydrochloric acid) often relieves the symptoms of heartburn and improves digestion, at least in people who have hypochlorhydria (low stomach acid). The amount of betaine HCl used varies with the size of the meal and with the amount of protein ingested. Typical amounts recommended by doctors range from 600 to 2,400 mg per meals."
You sound just like me! My naturopath put me on Bentaine HCL, which really works! I take it at meal time, and my stomach and burping problems are gone. Here's a description:
"supplementing with betaine HCl (a compound that contains hydrochloric acid) often relieves the symptoms of heartburn and improves digestion, at least in people who have hypochlorhydria (low stomach acid). The amount of betaine HCl used varies with the size of the meal and with the amount of protein ingested. Typical amounts recommended by doctors range from 600 to 2,400 mg per meal."
You can get it a a health food store. Good luck!
PS- sounds like you are allergic to dairy and/or caesin (used a lot in soy cheese). I am, probably caused by celiac disease. I would get food allergy blood work for the top 100 foods. And you can see your gluten allergy levels now that you have been on the diet too!
I am looking for a Doctor in BC that specializes in celiac disease. Can anyone suggest a good doctor?
Also, I have got only positive blood work. Now being gluten-free, I don't want to get a biopsy, nor feel it is necessary. I do think I need a coloscopy, right? Any other necessary tests to check health?
Also, does anyone get their vitamins covered by medical? Having celiac disease, I would hope that the gov't can provide some financial support when not taking chemical medicines.
Thanks Everyone! Wow, this message board is so helpful.
I am in the same boat as you Stef, - newlywed looking to have kids within 2 years. My husband is so worried about our kids getting it. I can't see it all being that bad, especially because I am a very organic person, and am into natural health and eating well. If my body rejects a processed grain and another mammals milk, is that so bad? I think it is healthier.
I'm more concerned about the damage my small intestine may have, as I am unable to go to the washroom without herbal suppliments for about 15 years now... Doctor's didn't see it as a concern, it took a Naturopathic Doctor 1 visit with me to get me tested for food allergies. I hope that the damage can be reversed. Does anyone have the same problem, and did you find results after going gluten-free?
Secondly, I am now freaking out about infertility, and haven't even mentioned it to my husband. I wonder if Doctors can give you a fertility test if you have celiac disease?
You all must be frustrated trying to figure out where this may have come from in your families. My parents don't seem interested in being test - so stubborn!
Thanks for your help! Yes, I'm from New Westminster. I will try the tax thing for a while, and check about this Kinnikinnick brand everyone's talking about. I don't eat much bread anyways, but I would like to have my pizza and food like that on the weekends.
Thanks for your help again. I will keep searching this forum for more info.