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discodiver added a topic in Celiac Disease - Coping WithGluten/celiac And Anxiety.I read so many posts listing GI problems as the typical symptoms of gluten ingestion. Does/has anyone experienced anxiety/depression as a symptom? I am battling this with my very life at stake and it sure would help to hear from someone that has gone through this.
Extreme brain fog that wont go away, dizziness, anxiety, insomnia, pounding heart, sweating and confusion. I was admitted into the ER this past Friday for these symptoms, my wife thought I was having a heart attach, and all my blood work came back fine, xrays came back fine and the doctor said my EKG was perfect.
The problem is I have not ingested any gluten, that I am aware of, for the past week. I know things like this take time and am really hoping this gets better.
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discodiver added a topic in Gluten-Free Foods, Products, Shopping & MedicationsCarmel Rice Cakes?Would anyone happen to know if Quaker oats Carmel Rice Cakes are gluten free? I read the list of ingrediants on the package and did not see any type of gluten/wheat ingrediant. Keeping my fingers crossed.
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discodiver added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)Our Suffering May Help Others.The last week has been nothing short of hellish for me. As I get older I become more sensitive to the gluten stuff and even the smallest amount causes me missery. Yesterday I purchased some Gluten free waffles from a local grocery store. About 5pm yesterday I decided I wanted a few and out of habit pulled out the family toaster....what a huge mistake. I never thought that simple cross contamination would put me through that much pain and suffering.
Today I purchased my very own toaster, skillet, cutting board, spatula and a big plastic tub to keep them in. What I've noticed is once I've been "glutened" my symptoms last about 24 hours. Today my head is beginning to clear, depression is beginning to lift and my anxiety is calming down. Body aches and pains are starting to lessen and life is once again worth living.
I've been going through this for severl years and am actually contemplating some kind of local business/health food store/cook book to try and help others suffering from this terrible affliction. How many years have we all needlessly suffered from this disease because modern medicine wont/cant/refusese to help us just because big pharma has yet to develop a pill for us. The first drug company to get a "Gluten" pill to market will make zillions of dollars.
Im actually excited now that I have my own toaster because I have 3 loafes of Glutino Gluten Free Raisin bread in the freezer. 3 weeks ago I put two slices in the "family toaster" and about an hour later reacted harshly. I just thoght I was reacting to something in the bread..when actually it was cross contamination.
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discodiver added a topic in Celiac Disease - Coping WithWhat Does Gluten Free Mean?Does "Gluten Free" mean "Wheat Free" and does "Wheat Free" mean "Gluten Free." I'ver read a few articles stating just because a food item declares itself to be gluten free it may still contain wheat.
Last night I decided to try the "Gluten free Moo Goo Gai Pan" from PF Changs...2 hours later I was in horrible pain which lasted all night. That was the only thing I had to eat yesterday. Is this ever frustrating.
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discodiver added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsHow Does This Happen?How is it that this celiac/Gluten intollerance seems to happen overnight? I seemed fine up until last year when I first began to notice problems. For 46 years I ate bread, cake, pie, croutons...etc with no problem. Then BAM..overnight it seems I'm allergic to the stuff. Stress, allergies, environment? Anyone have an idea? I would love to hear your story.
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discodiver added a topic in Celiac Disease - Coping WithGuluten Free Pancake MixLast week I purchased a bag of gluten free pancake mix...it's expnersive. $19 for a 2lb bag. Anyway...I made a batch, followed the instructions carefully and about 3 hours later felt like crud. I also have a bad reaction to the Glution Gluten free Raisin bread. This stuff is wonderful but for some reason I cant tollerate it. Anyone else? I'm new to this forum so please excuxse the amount of topics I post...I'm just excited to have found this place and hope to find some answers to help me. Right now I could not be more misserable than I am. Thanks.
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discodiver added a topic in Celiac Disease - Coping WithNegative Celiac Panel Test (3 Times)I've had 3 celiac panel tests done and each one has come back negative. I love my GI doctor but she thinks I'm crazy with this "Gluten Intollerance" stuff. I've also had 3 colonoscopys done and she has also told me that there is no evidence of Villi damage or Celiacs Disease. It that is true...then why do I feel like crud after eating a hamburger? This past Sunday I felt great and the family decided to stop and get something to eat. I ordered a hamburger and onion rings and with 3 hours of eating them my anxiety/deperssion was out of control. I could not think straight, could not concentrate and had a rage that scared me.
Here is the strange thing. I do not seem to experience the typical GI problems associated with Celiacs disease/Gluten Intollerance that most people do. My problems are all with anxiety, muscle aches, headaches, joint pain, extreme fatigue and brain fog. Could this be so? Anyone else have a similar experience.
Also...how long do typical symptoms last after eating gluten? I know we are all differnt but a general time frame would be wonderful. As I mentioned earlier...I had a hamburger Sunday afternoon and I still feel like 10 miles of dirt road. Thanks in advance for any help.
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