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This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
BeckyWJ added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms6 Year Old With NauseaMy six year old son has had nausea for about 3 weeks. He says he feels like he will throw up, but never does. He eats, but usually not very much at one time because it makes him feel sick. He has 2 siblings who have had gluten issues in the past, so that made me think he may, too.
He's had no gluten for 3 days, but still feels nauseous after he's taken several bites of anything. With his siblings, no gluten had immediate effects, so his non-response is disheartening.
A few questions: How many days should I keep him on no gluten before I move on? Should I also keep him off dairy? If so, should he also stay off any food cooked with dairy in it?
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BeckyWJ added a topic in Celiac Disease - Parents of Kids or Babies With Celiac DiseaseSleep Apnea And Celiac?Noticed Friday night that my 4 yr old son has sleep apnea. Normal 5-6 breaths, then no breathing, then a gasp, a cry and normal breaths for 5-6 breaths, etc. this lasted for about 15 minutes. Though he hasn't been tested for celiac, three of us have gluten issues (from siezures to hallucinations), so I wondered if there could be a connection? He is underweight for his age, which I know can be a gluten issue.
He's been off gluten since Saturday. Yesterday his nap was normal for the first time in months (he didn't wake crying after an hour...I'm thinking his nap pattern may have been due to the apnea. I watched him closely during that nap and no apea). Also, since being off gluten, he hasn't cried out at all during the night. For the past few months he would cry out at night, but not really be awake. This would last off and on for 15-30 minutes. We're thinking now that that may have been the sleep apnea. The only reason I noticed this Friday night was because he slept with me that night.
So...any of your children deal with sleep apnea before going gluten free? Any of your children have enlarged tonsils before going gluten free (his tonsils are huge, but his doctors have never been concerned).
Thanks for any insight!
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BeckyWJ added a topic in Celiac Disease - Parents of Kids or Babies With Celiac DiseaseIntroducing Myself!I am a mom of 5. My 10 yr old daughter and 6 yr old son most certainly have gluten issues. My daughter had horrible headaches, hallucinations, and altered neruological functioning almost once a day for several months (maybe almost a year) before we stumbled upon the cause. I assumed her headaches were migraines. Doctors were no help. Her "episodes" usually lasted 2-8 hours. After one episode lasted 24 hours, we took her to a children's hospital er. They weren't much help, either. They did, however, do CT and MRI scans to rule out tumors or bleeding on her brain. One dr. did suggest a psychiatric issue. They did a referral to a pediatric neurologist in another city. We went to that appt with me believing he would tell me it was migraine-related and give her medicine to stop it.
When the neuro said it was definitely not migraines, I was floored. He made an appt for a 24 hour EEG since she was having the rections every day at that point. That afternoon, an aunt told me food could cause wierd stuff like that. Since I was at the end of my rope, we decided that over the weekend, we would restrict her diet. That night I did some internet research and decided that it could be gluten, so Friday night was her last gluten meal. That Saturday she had a mild, about an hour long episode, and that was the end of her symptoms. Well, almost the end. We had a few cross contamination episodes, and she couldn't tolerate anything gluten free that had been "processed in a facility with gluten". We ended up not doing the 24 hour eeg since her symptoms were gone! She's been gluten-free for about a year.
My 6 yr old son had a seizure disorder for which doctors had no explanation for. I read that some seizures were caused by gluten, so we put him on a gluten-free diet. No more seizures. Except for the one time I doubted my diagnosis and let him eat pizza. The next morning he had a seizure. He's been gluten free for a couple of months less than my daughter.
Thanks for letting me drop in!
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BeckyWJ added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsNeed Input On Blood Test ResultsGliadin Antibodies IgG AB: mine <1 when <20 negative
Gliadin Antibodies IgA Ab: mine 2.2 when <20 normal
Tissue Transglutaminase IgA: mine <1.2 when <4/0 normal
BUT...my Tissue Transglutaminase IgG is 12.0 when <6.0 is normal.
The last one is what my dr. is concerned with, but I can't see a GI until the end of this month. Is celiac possible with only that one possible result, or would that one positive result indicate a different auto immune disease?
I was tested because of bloating, tiredness, and a few other things. I have a 10 yr old daughter who has tummy aches, migraines and hallucinations if she eats gluten and a 6 yr old son who has seizures if he eats gluten. And a dad whose tummy hurts if he easts gluten. I don't remember the specifics of my daughter's blood tests, only that the dr. said they came back not indicating celiac. We declined the biopsy because with her symptoms, there's no way we're going to feed her gluten (and our dr was fine with that decision)! Neither my son or dad has had any celiac blood tests. All that to say that we do have a history of problems with gluten.
If you have any insights into my results, I'd appreciate your help!
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