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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About LisaS

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    1. LisaS added a post in a topic I Need Help   



      This sounds like your doctor tested you for the HLA-DQ2 gene which is connected with celiac. Did she say anything about gene testing?

      You can still be gluten sensitive if you do not have the HLA-DQ2 gene.

      Lisa S
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    2. LisaS added a post in a topic Sleep Problems   


      Here is my formula for a good night sleep:
      Exercise for 20 minutes early in the day
      No caffeine
      No alcohol
      Have a generous portion of protein with dinner
      Have a small potato with just butter 3 hours after dinner.

      The potato thing is from Kathleen DesMaisons book "Potatoes not Prozac". It is a program that naturally boosts serotonin levels. Your serotonin levels may be low due to malabsorption of tryptophan which is what serotonin is made from. Melatonin, which is what makes you feel sleepy in the evening, is made from serotonin.

      It may take a few days to work.

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    3. LisaS added a post in a topic Anxiety?   


      Yes! read the book "Potatoes not Prozac" by Kathleen DesMaison. It does not work as well as Paxil, but there are no side effects. She has a web page at

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    4. LisaS added a post in a topic Glutamine?   


      Check out the Baxter web site at Baxter Glutamine. This is the product that I use. It is great for healing the gut.

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    5. LisaS added a post in a topic Anxiety?   


      I also suffer from Anxiety/Panic. I am eating gluten now because my biopsy is in May. The Anxiety is much worse now that I am eating lots of gluten. I did take Paxil for a while and felt great, but I do not like being dependent on drugs so I stopped. Since it worked so well, I believe that my anxiety is due to a seratonin imbalance as opposed to emotional/stress. I am really hopeful that the anxiety will go away once I go gluten free.

      My panic attacks are only in the middle of the night. Do you have the same problem?

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    6. LisaS added a post in a topic New To All Of This   


      Just some more thoughts
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    7. LisaS added a post in a topic New To All Of This   


      I am by no means a "Pro" yet. I have my biopsy on May 13. But I am planning on going gluten free after the biopsy regardless of the diagnosis, so I have been checking labels, looking for web sites, and contacting manufactures. I also plan to limit gluten for my two children (8 & 11). These are the gluten free items I think kids would like:

      Act II and Pop Weaver microwave popcorn
      Ore-Ida Golden Crinkles (not all Ore-Ida French fries are gluten-free, but I have the complete list)
      Tillamook yogurt
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    8. LisaS added a post in a topic Where You From?   

      Wasilla Alaska. The photo in my avatar is the view from my kitchen window.

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    9. LisaS added a post in a topic A Good One In Anchorage   


      Here are my Enterolab results:

      IgA gliadin: 16 (normal < 10)
      IgA TTg: 16 (normal < 10)
      Fecal Fat: 425 (normal < 300)
      I have the HLA-DQ2 gene

      My numbers are quite low, but I had only been eating gluten for 6 weeks. My diet before was mostly high protein/low carb so I was not eating a lot of grains. I discovered I had a problem with wheat when I blew my South Beach Diet at Christmas time.

      I am atypical with my main complaints being: upper back pain, achy bones, memory loss, unable to concentrate, irritability, headaches, and anxiety/panic disorder.

      The only gastro symptoms I have are bloating, gas, and occasional nausea.

      He tested me for anemia and I am pretty sure that I have the beginnings of osteoporosis causing the upper back pain and slight scoliosis.

      My biopsy is scheduled for May 13 with a follow up on May 18.

      I was very nervous about my appointment. I came prepared with general celiac information from, and I rehearsed endlessly in my head what I was going to say. He turned out to be very knowledgeable about celiac and seemed to appreciated the fact that I was so informed. How cool is that! I definitely lucked out.

      Keep us up-to-date on your progress.

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    10. LisaS added a post in a topic Sitting On Pins And Needles   


      I brought my Prometheus kit to my doctors visit, but to my surprise, my doctor accepted the Enterolab results and scheduled me for a biopsy on May 13. So, I did not need to send blood to Prometheus after all.

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    11. LisaS added a topic in Celiac Disease - Doctors   

      A Good One In Anchorage
      Yesterday I met with my gastroenterologist for the first time. His name is Dr. Boisen in Anchorage, Alaska. He was great! He had heard of Dr. Fine and his research, and he accepted the Enterolab results, so I have my biopsy on May 13. He does the endoscopy himself and sends the samples to a lab in Dallas that specializes in celiac. I feel confident that when the results come back I will know for sure whether it is celiac or not.

      So there are a few good ones out there.

      • 4 replies
    12. LisaS added a post in a topic Sitting On Pins And Needles   


      Was your doctor receptive to the idea of using Prometheus labs? Had he heard of them or used them before? I have my appointment on Thursday and I am taking my Prometheus kit with me, but I do not know how he is going to react to me suggesting a different lab.

      Good luck, and be sure to post your results.

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    13. LisaS added a post in a topic What Is The Igg Blood Test?   

      My daughter also tested positive to only the IgG gliadin. I have been researching this topic on the web.

      I found one site at that talks about intestinal permeability (a.k.a leaky gut). They claim that people with a leaky gut will test positive for IgG and IgA (gliadin and casein) antibodies. Interesting huh?

      There is also an article on this site ( that talks about Candida (which is one cause of leaky gut) being a trigger for Celiac disease :// ://
      Apparently, Candida looks a lot like gliadin.

      This may explain why some people continue to get positive IgG and IgA gliadin results and still have symptoms despite being gluten-free.

      There is a test for leaky gut. For more information check out

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    14. LisaS added a post in a topic Enterolab   


      Thanks for the info. I did not get the same quote about the penicillin analogy, but it makes sense to me. It is unfortunate that your family doctor wont give you the diagnosis, but at least you know and are taking the steps necessary to be healthy.

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    15. LisaS added a post in a topic Enterolab   

      I just got my results back from Enterolab and wondered if anyone else wanted to compare results. Here are mine:

      Antigliadin IgA 16 (Normal Range < 10)
      anti-TTg IgA 16 (Normal Range < 10)
      Fecal Fat 425 (Normal Range <300)
      anti-casein IgA 11 (Normal Range < 10)

      And, I have the HLA-DQ2 gene

      I would like to know what the top of the range is. I mean is 16 high or just barely positive.
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