This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Here is my formula for a good night sleep:
Exercise for 20 minutes early in the day
Have a generous portion of protein with dinner
Have a small potato with just butter 3 hours after dinner.
The potato thing is from Kathleen DesMaisons book "Potatoes not Prozac". It is a program that naturally boosts serotonin levels. Your serotonin levels may be low due to malabsorption of tryptophan which is what serotonin is made from. Melatonin, which is what makes you feel sleepy in the evening, is made from serotonin.
I also suffer from Anxiety/Panic. I am eating gluten now because my biopsy is in May. The Anxiety is much worse now that I am eating lots of gluten. I did take Paxil for a while and felt great, but I do not like being dependent on drugs so I stopped. Since it worked so well, I believe that my anxiety is due to a seratonin imbalance as opposed to emotional/stress. I am really hopeful that the anxiety will go away once I go gluten free.
My panic attacks are only in the middle of the night. Do you have the same problem?
I am by no means a "Pro" yet. I have my biopsy on May 13. But I am planning on going gluten free after the biopsy regardless of the diagnosis, so I have been checking labels, looking for web sites, and contacting manufactures. I also plan to limit gluten for my two children (8 & 11). These are the gluten free items I think kids would like:
Act II and Pop Weaver microwave popcorn
Ore-Ida Golden Crinkles (not all Ore-Ida French fries are gluten-free, but I have the complete list)
IgA gliadin: 16 (normal < 10)
IgA TTg: 16 (normal < 10)
Fecal Fat: 425 (normal < 300)
I have the HLA-DQ2 gene
My numbers are quite low, but I had only been eating gluten for 6 weeks. My diet before was mostly high protein/low carb so I was not eating a lot of grains. I discovered I had a problem with wheat when I blew my South Beach Diet at Christmas time.
I am atypical with my main complaints being: upper back pain, achy bones, memory loss, unable to concentrate, irritability, headaches, and anxiety/panic disorder.
The only gastro symptoms I have are bloating, gas, and occasional nausea.
He tested me for anemia and I am pretty sure that I have the beginnings of osteoporosis causing the upper back pain and slight scoliosis.
My biopsy is scheduled for May 13 with a follow up on May 18.
I was very nervous about my appointment. I came prepared with general celiac information from celiac.com, and I rehearsed endlessly in my head what I was going to say. He turned out to be very knowledgeable about celiac and seemed to appreciated the fact that I was so informed. How cool is that! I definitely lucked out.
I brought my Prometheus kit to my doctors visit, but to my surprise, my doctor accepted the Enterolab results and scheduled me for a biopsy on May 13. So, I did not need to send blood to Prometheus after all.
Yesterday I met with my gastroenterologist for the first time. His name is Dr. Boisen in Anchorage, Alaska. He was great! He had heard of Dr. Fine and his research, and he accepted the Enterolab results, so I have my biopsy on May 13. He does the endoscopy himself and sends the samples to a lab in Dallas that specializes in celiac. I feel confident that when the results come back I will know for sure whether it is celiac or not.
Was your doctor receptive to the idea of using Prometheus labs? Had he heard of them or used them before? I have my appointment on Thursday and I am taking my Prometheus kit with me, but I do not know how he is going to react to me suggesting a different lab.
My daughter also tested positive to only the IgG gliadin. I have been researching this topic on the web.
I found one site at http://www.aal.xohost.com/ipe.htm that talks about intestinal permeability (a.k.a leaky gut). They claim that people with a leaky gut will test positive for IgG and IgA (gliadin and casein) antibodies. Interesting huh?
There is also an article on this site (celiac.com) that talks about Candida (which is one cause of leaky gut) being a trigger for Celiac disease
http://www.celiac.com/cgi-bin/webc.cgi/st_prod.html?p_prodid=859&sid=8f3Ivt0mJK4O2R5-44103066815.c9 ://http://www.celiac.com/cgi-bin/webc....44103066815.c9 ://http://www.celiac.com/cgi-bin/webc....44103066815.c9
Apparently, Candida looks a lot like gliadin.
This may explain why some people continue to get positive IgG and IgA gliadin results and still have symptoms despite being gluten-free.
There is a test for leaky gut. For more information check out http://www.gsdl.com/assessments/ip/
Thanks for the info. I did not get the same quote about the penicillin analogy, but it makes sense to me. It is unfortunate that your family doctor wont give you the diagnosis, but at least you know and are taking the steps necessary to be healthy.