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Melissaann829

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About Melissaann829

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  • Birthday January 10

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  1. I feel you, girlie. I know how you feel with regard to the social outing but it does improve. My family thrives on big "food" gatherings and last year, I skipped out on Easter dinner because i didn't want to watch everyone eat the foods I miss so much. It does suck. I do ok with restaurants now because my friends/family know the places i can comfortably eat gluten free w/o a hassle from the staff. No one wants to be the weirdo at the table saying "Do you know what meals might be gluten free?"... and then the waitress looks at you like you're a total moron. Nice feeling! I typically just order a steak in the restaurant without seasoning or a cheeseburger w/o a bun.. and I am good to go without looking like I have a serious medical problem in need to management to come out and talk to me. I will admit that i am sick of rice and potatoes at this point. I have Hypoglycemia also, so the carb choices are wearing thin for me at this point! I, too, have "brain fog" and a horrible memory. I've had my thyroid checked and it is normal. Can't explain why that keeps happening either. I try my best to keep a positive attitude but I still experience bodily pain that I can't seem to get a grip on yet. I am seeing a physical therapist for that. Anyway, there are others out there that understand you! Vent here anytime! It does help to vent to people who truly understand! Melissa
  2. I've had over 10 years of illness... back and forth to every kind of doctor there is to see if someone could help me. I had no way of linking all of my health issues to "one condition" such as Celiac. ....Finally a diagnosis... I've been gluten free for a year now and today, i feel sad.... Probably because I am in physical pain. Will I ever feel like me again? I've shrunk in height (which explains the horrible bone, joint, foot pain), and now I am experiencing back pain along with it. I am in physical therapy -- I am only 37 years old and I weigh 138 lbs. I feel like my body will never be the same. My foot pain came back -- some days are worse than others. I am assuming this nerve pain is permanent considering it is not improving anymore than "what is".. although I'll admit that it feels 10x worse when I eat gluten accidentally. I am a generally happy person, however, this bodily pain has put a damper on my social/active life. I used to love soccer and now I think to myself, "Oh Gosh, how bad am I going to feel the next morning after a soccer game?" ..or "What if I sprain my ankle again?" ....there is often times a loss of feeling in my feet (or the opposite which is stabbing, burning pain). Anyone else experience this type of thing? Words of encouragement out there? Thanks, guys! Melissa.
  3. Interesting stories, everyone! Thank you! I did a self test on accident. I was feeling so much better that I decided to wean gluten back into my diet. After a week or so of that ignorant move, my feet were in pain just like they had been years ago! It was crazy! Needless to say I am back on my gluten-free diet since I've been so miserable. My stomach has been hurting and I've been exhausted, achy and stiff. My joints all hurt. Crazy.
  4. I had pancreatitis twice before being diagnosed with gluten sensitivity. I ended up bed ridden in a hospital on a feeding tube! It sucked!
  5. That was so mean of your doctor! Geez! I had joint pain, foot pain, stomach issues, even Pancreatitis, over many years of being misdiagnosed. I had been feeling better lately so I decided to wean gluten back into my diet! Guess what happened?! My feet began to throb in pain and my eyes have been burning a lot. So, that was proof enough for me to know that my diet is def impacting my aching body! I am back gluten-free now.. again
  6. I went through several weeks of hell after going gluten free. I had a variety of painful detox symptoms. It was terrible. My whole body ached and my feet would get sharp, shooting pains. All of this calmed down eventually but for many weeks, I dealt with rashes, pain, cysts, you name it.
  7. I actually get burning sensations in my feet and sometimes my stomach too. I cheated and ate some gluten this past week and now I feel miserable. Lots of symptoms. Uhhhh.
  8. I've had foot pain for years, but over the past few years it had progressively gotten worse until I was finally diagnosed by my local doctor with Celiac Disease. Once following the strict gluten free diet, I found it was also helping the mysterious foot pain and slow ankle sprains healing in my feet. Am I the only one to notice/have this?
  9. Wow. I am so glad I found this site and have such great people to talk to about this. I can't thank you all enough. Last night I had baked chicken with parsley, a few bites of potatoes and a lot of green beans and broccoli and I was able to actually sleep a full night for once. I didn't feel mentally "shakey" and crazy like previous nights since following my dietician's recommendations. She told me i should be eating a "CUP" of rice with each main meal because I needed the carbs.. but i looked at the back of the box and thats a TON OF CARBS to woof down at once. I'd hit a high and feel energetic and then start crashing hard and feeling anxiety, the shakes, inability to think, etc. Its been a terrible rollercoaster and I paid $100 for that visit. This morning i had a half a gluten-free raisin/pecan bread with peanut butter and walnuts. So far, I feel ok. Thank you all. I love the snack ideas. How about apple slices with peanut butter? I assume that would be alright too?
  10. "Missy's Mom" - that made me smile. I go by "missy" and My mom - Janice - we always hear people in our family saying ... "... Missy's Mom". Cute.
  11. Thanks guys. Well, because my stomach started off so fragile at first my dietician recommended I stick to white rice and potatoes to ease my digestive track. Umm.. not to question her advice, but white rice made me feel like a yo-yo about 2 hours after eating it. I have switched to brown rice (as of yesterday) but found it wasn't digesting that great - I wake up and drink a glass of carrot juice. Is that bad? Then I'm eating egg whites and a few apple slices for breakfast. Shakey feeling follows. I dont know if i should eat more chicken? More cheese? Something fatty and pray it digest ok? I'm constantly eating blan, boring chicken and ground turkey for dinner because I'm still inflammed from the whole process. It took 10 years to diagnose my Celiac Disease so I'm a little messed up right now. Any ides would be so much appreciated. I've read your blogs. Do you think i should cut out brown rice then too?
  12. I was diagnosed with Celiac on 9 September 2010. I've had Hypoglycemia (as a result of Pancreatitis) about 6 years ago. I'm strictly following the Hypoglycemia/Celiac Diet yet my body is still going crazy. I can't seem to control my blood sugar at all and I dont know why?? My body is up and down, hormonal, and on a psychological rollercoaster these days for some reason. What am I doing wrong? Any diet ideas? Personal stories? Insomnia has kicked in because my sugar levels are not balanced. Melissa
  13. I was diagnosed with Celiac on 9 September 2010. I've had Hypoglycemia (as a result of Pancreatitis) about 6 years ago. I'm strictly following the Hypoglycemia/Celiac Diet yet my body is still going crazy. I can't seem to control my blood sugar at all and I dont know why?? My body is up and down, hormonal, and on a psychological rollercoaster these days for some reason. What am I doing wrong? Any diet ideas? Personal stories? Insomnia has kicked in because my sugar levels are not balanced. Melissa