This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
Where can I buy gluten-free stuff?
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BTW, for your pie cravings, crumble up a bag of any gluten free cookies real good. Mix them up with a couple tablespoons of melted butter and put it in the bottom of a pie plate. Save a little of it for a topping. Put in your favorite filling if you don't mind the canned or boxed kind, then add the remaining crumbles... Maybe add whipped cream on top.
I'm just sorry for all of your pain. I have a gluten-free son to feed and I worry about him being on his own in a few years. It's not easy!
He fills up with lots of gluten free oats with milk every day!!! I know- not THE best, but he gets so hungry and wants something quick.
Praying for you. You can get through this.
That is very unique. My poor gluten-free cousin works in doc's office where pharm. reps bring in lunch and goodies everyday and never anything gluten free, even though it is on the signup calendar. I tell her to put "Dr." before her name and see if that gets their attention!
But good for those people who thought of you. Doesn't it make all of us want to find out what people around us truly need- and not just what we want to give them.
So I think an angel can come from above and tell me she is not celiac and I would stick to this diet no matter what. Her pediatrician says I'm a littlebit crazy and stuburn because my daughter was "perfectly fine" "there's nothing wrong with her" but NOW I can say that, NOW THAT SHE'S GLUTEN FREE
LOL! My kids' docs thought I was crazy too. Funny thing though - now that they see how well the kids are, they are supporting us. They are human and trained in their ways. But honestly, I think too many moms underestimate their wisdom and instict when it comes to their kids. So - don't cut yourself short. You are abnormal for not taking the doctors strict advice and going out on your own for answers.
By the way - you can make fantastic pizzas with gluten free crusts. And if I don't have crusts on hand or the time to make one, I keep tostadas on hand if the kids have like a pizza party to go to, and I just put cheese and pepperoni on top of those. Not the same as a pizza but better than nothing.
This cookbook saved my sanity in feeding my family: "Recipes for Gluten-Free fun eats from breakfast to treats" Lots of kid tested food that are pretty simple to make.
Have a great day in the Caribbean!
Camp went GREAT! I called the kitchen ahead of time and they actually were trained in how to handle gluten free diets! They even told me how to pack his food. It was expensive - I spent about $170 on gluten free foods for a week, but - they were mostly prepacked, meal sized and microwavable. I got a list of the menu and tried to pack food similar to what other kids were eating. I labeled it in a baggie which meal was for what day and mealtime, then I stored everything perishable in an icechest with dry ice.
Kids at camp were jealous of the foods my son was eating (especially the precooked ribs that I packed), and saying "I want to go gluten free too!")
I even put in some gluten free graham crackers for smores, which my son said was okay.
The only thing he said that didn't work were the gluten free hamburger buns that he said just crumbled.
This camp, by the way, is Kanakuk in Missouri, if anyone is interested in sending their child to an awesome camp where they really care.
Pricey camp, but worth every penny.
Thanks again Victoria and Googles for helping me get serious about this and the tips!
I'm glad your daughter is better! And GOOD FOR YOU MOM for tracking down some causes. You must love her a lot, and you've saved her from likely YEARS of sickness, poor performance, and even early, painful death.
I also have a 10 year old daughter who is gluten free, as am I and my 12 year old son.
Lots of sage advice on here from people who have been at the diet a lot longer than me, but I will tell you that I wish we had done endoscopy testing to get an official diagnosis. It would be nice to say "we have celiac disease" and know it's official.
- #1 Reason: We would have an official diagnosis to now sound the alarm and pass this information down to future generations - to say, "YES, we have this DISEASE in our family and you may too". Otherwise relatives just don't seem to take it seriously. And people may say.. "yeah.. grandma jo was allergic to something..."
Since I've had two grandmothers on the fraternal side die, one of stomach and the other of intestinal cancer, and an uncle now very ill with stomach protein problems.. I take this seriously.
-#2 Reason: Other people, like friends, school, waiters, etc, also seem to understand better when you say "disease", thus making life easier instead of saying "we're allergic to wheat". ( This is getting better though since more people being diagnosed these days and info spreading). Not that I care what people think, but if they have anything to do with food around my kids, I want them to take it seriously.. to know that yes, you can't set the sandwhich I packed my kid to eat at your house on the cutting board where you just made your kid a wheat PB&J. Now - most people do care, and try,... but it takes just one self-focused idiot who doesn't care, and ruins my daughter's next two days getting over being glutenated.
So again - great job, and it's so nice to know that something as simple as taking gluten out of your daughter's diet is changing her life. It's worth it, and life will get easier for you as you get used to this diet.
Let me know if you ever need any tips on feeding hungry gluten-free kids on the go! We eat a lot of corn quesadillas with meat, cheese, whatever.. beans.
More info and tips in my profile.
(PS - And for those who suggest I just lie and say we have Celiac Diease - I tried that, and first - my kids know I'm lying, because truly we don't know that, we just know gluten makes us sick, and secondly - people then start asking all of these questions, and if they ask about testing I'll have to backtrack and explain all of that! And I'm a terrible liar. And .. I do not feel led to subject us to eat gluten for weeks to then get the endoscopy. Maybe me at some point, but not now.)
I'm getting worried:( Will think thru all of this.
His symptoms are not as bad as mine and my daughter's, he gets more tired than anything if glutenated. Still, it would take away from the fun.
Thanks for these tips though. Being the adventurer he is, he's got to learn to travel and eat gluten-free, like you do Victoria. And thanks for the camp counselor viewpoint Googles.
If he was very sensitive, I would not send him. It looks like I will just need to pack a lot of food.
Any tips on sending a week's worth of food to camp on a bus? My plan so far is to label everything by meal and day and pack it in dry ice. College kids will be running the kitchen and my son will not be allowed to prepare his food.
A lot of things on the camp menu he can eat, so I'm just subbing the things he can't, like parmesian chicken, burritos, roast, pizza, brownies.... lots of cooking to do!
But the camp is 6 hours away and I have to put him and his food on a bus.
Great pudding tip! Thanks!
And yes - we love betty crocker. I've relied on her cake mixes, and some non gluten-free kids thought it was "okay", but when I made this other recipe before the kids thought it was better than wheat cake. So - you know kids - the last thing I want is for her friends to go "yuck!"
Good luck with the party and that cake!
Happy 9th to your daughter!
Thanks Jeannie - You helped me realize that I should double the recipe for a cake, because this is only for 12 cupcakes. So thank you! I'd love your choc cake recipe when you have time to write it down. - Bobbie
My daughter turns 10 Friday, and she wants these gluten-free cupcakes in a recipe book for her class birthday party. That is no problem, but for a birthday cake later that night, she also asked if I could do the cherry recipe. I am not an improv baker, and as expensive as the flours are I don't want to mess up! So what do you think - would this cupcake recipe work for a cake too?
Flour Blend (and if you don't have this- it is SO good for any flour substitute):
1 C. white or brown rice flour
1 C. sorghum flour
1 C tapioca flour
1 C cornstarch
1 C almond or coconut flour
1 jar cherries
1 C sugar
1-1/4 tsp baking powder
1/2 tsp salt
1/2 tsp xanthan gum
1/2 C vegtable oil
1/2 cup soymilk (or other milk)
1 tsp vanilla
mix bake 20 min at 350 degrees
What do you think? Would I use this for a cake recipe too? I wonder what temperature I'd cook it at for how long - 350 for 25 is what another cake recipe says - but that is for chocolate.
And this is from "Recipes for Gluten Free Kids" that a friend got us from Sams. I LOVE this cookbook.
I LOVE this site!