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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity

    bonnie blue

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    About bonnie blue

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    • Birthday 07/14/1965

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    • Gender Male
    • Interests my four beautiful daughters, sweet grandson, and my wonderful husband. I love to bake, lol. I just enjoy being with family and friends and having fun!!

    bonnie blue's Activity

    1. bonnie blue added a topic in Celiac Disease - Coping With   

      Last Round Of Chemo Done!
      Good morning friends,
      Well I am all done with my three rounds of cocktails, can I get a Woo Hoo!!! I am scheduled for the removal of my stomach on January 27th, so basically I have 23 days to eat all I want to eat, of course no gluten, lol. The doctors are so pleased with my progress and actually think I will have an easier time with the surgery and the new diet because I already know what my body can and cannot handle, what will cause the big D, make me sick, etc..... So thank you Celiac Disease!!!!!
      Now dont get me wrong I know that this will not be easy, but I do feel pretty good going into this, I can look at this two ways, I am getting my stomach removed, ummmm ya that is not going to be fun, or I can look at it as I am getting rid of the organ that has the cancer so that I can move on and live my life, there will be major dietary changes but heck we have all been through that!!
      It's kinda funny people say to me well at least you wont have Celiac Disease anymore, ummmm ya I will, I just laugh it off. People dont understand I dont mind having Celiac, its the Cancer that pisses me off, lol.
      There are certain things I miss, you bet, but on the other hand I never feel like I am missing out on good food, I eat great food everyday!!!
      So I just want to say to everyone we have Celiac Disease, Celiac Disease does not have us!!!
      Oh and to let you know I got the cutest little blond wig and I am rockin that new hair, you know they do say blondes have more fun
      Have a wonderful day everyone, thanks again for all the support and hugs, take care
      • 13 replies
    2. bonnie blue added a post in a topic Good News- No Cancer   

      Wonderful news!!! So happy for you there was no cancer, sending out healing thoughts to you as you get off your meds, and when you are feeling better you should defenitely celebrate!!! Have a wonderful day!!!
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    3. bonnie blue added a post in a topic Help Me Please!   

      I would also agree that you have solved your mystery, but you also need to find a good doctor who is knowledgeable in Celiac disease. Finding the right doctor is so important, it took me over a year to find a good gastro, but they are out there. Be an advocate for your health, this is your life and your body, only you know when something is wrong. I wish you much luck, and sending out big hugs and healing thoughts!!
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    4. bonnie blue added a post in a topic Perfect Bumper Sticker For People Like Us!   

      I love this!!! I want this bumper sticker!!!
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    5. bonnie blue added a topic in Celiac Disease - Coping With   

      2Nd Round Of Chemo, Done!
      Hello to all my friends,
      Well the 2nd round of cocktails are done and I am happy to report that this time was much easier, mainly fatigue but nothing I couldn't handle. I have one more round the 28th then surgery to remove my stomach in February. Ok so that is freaking me out a little I am doing all I can to get my body ready, physically, mentally, and spiritually so that my healing process will be easier. I just want everyone to know that I am doing well the doctors are very pleased with my progress, they actually thought by this point I would need a feeding tube, but I fooled them all and I am actually gaining weight!!! So I have this break now to enjoy Christmas with my family, so for now the words, Cancer, surgery, and chemotherapy are banned in my house. I just want to enjoy this next week and only have some fun!!! Have a wonderful day my friends and thank you again for all your support.
      • 14 replies
    6. bonnie blue added a post in a topic Out Of Surgery   

      I cant say anything about the gall bladder, I just wanted to wish you a good recovery, give yourself time to heal, and I hope this helps you out. Sending out healing thoughts and big hugs.
      • 0
    7. bonnie blue added a post in a topic Thank You Everyone!   

      This is a wonderful community of people, I consider them my second family.

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    8. bonnie blue added a post in a topic Doctor/dietician Appt Tomorrow...   

      Again just a suggestion, my sister-in-law has this and she is basically maintaining a good lifestyle with the dietary changes. And if your not having your regular gluten side effects I wouldnt think that you are getting gluten in your diet. Talk to your doctor about this, and your dietician they should be able to help you out. Good luck and again let me know how it turns out.
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    9. bonnie blue added a post in a topic Doctor/dietician Appt Tomorrow...   

      Hello and welcome, after reading this, your symptoms, the indigestion, fullness, and burping, talk to your doctor about gastroparesis (sp sorry) or slow stomach. They do have a very simple test for this, and basically you eat smaller meals 6 times a day, and they put you on a PPI for the indigestion. Again please just an observation, but be an advocate for your health. I hope all goes well for you, let us know how it all comes out.
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    10. bonnie blue added a post in a topic The Hair Is Gone Now, But I Dont Have To Shave My Legs!   

      I love the ideas about the hats!! My daughter actually got me a hat that looks like a cat, my grandson loves it, he really doesnt know what to do about bald gamma, he's not scared just the first time he saw me he said "Gamma where is your hair?" Too cute. I live in Nebraska so ya its pretty chilly, but I like just going bald around the house, it's more comfortable.
      And about my treatment 2 more chemo treatments this month, surgery in late January or early February depending on how I do with the next two treatments, then after I am healed and eating good again, 3 more rounds of chemo, so I am in this for the long haul. It will be a long road, but in the end I will be healthy again and that is all I am concentrating on, my nephew is to be married in late April and I fully intend to dance at his wedding!!! Thanks again for the support.
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    11. bonnie blue added a post in a topic Gluten Free Banana Bread   

      This looks so good, and a really an easy recipe I cant wait to try this, I am thinking this would be great for Christmas morning, yummy. Thanks for sharing!
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    12. bonnie blue added a topic in Celiac Disease - Coping With   

      The Hair Is Gone Now, But I Dont Have To Shave My Legs!
      Good morning my dear friends. It has been awhile since I updated but my first round of cocktails (chemo) was pretty rough. But I made it through, and getting ready for my 2nd round on the 7th. Just a couple of days ago I lost my hair, it was very strange just started coming out by the handfuls, I did cry a little but then I figured look you can get all depressed our look on the bright side, when I get up in the morning it only takes me 5 seconds to fix my "hair" I just put on a hat!!! And I also don't have to shave my legs anymore, Woo Hoo!!! So I am doing well I am meditating and doing Yoga everyday, and I am actually eating really well. I will continue the good fight and please know how much I appreciate all your support, sending out big hugs to all, have a wonderful weekend!!
      • 16 replies
    13. bonnie blue added a post in a topic If You Need A Laugh...   

      I laughed so hard I almost fell off my chair, isnt this how we all felt when first diagnosed!!! Thanks for the laugh, have a wonderful day!!!
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    14. bonnie blue added a topic in Celiac Disease - Coping With   

      First Day Of Chemo Went Well
      Good morning friends,
      Well yesterday was my first day of chemo, actually my daughter and I don't like the name so we have decided to call it the cocktail hour, sounds much better right. Anyways it is a very aggressive treatment, and of course with the Celiac disease that makes it that more fun. I have three chemo drugs, along with steroids, anti-nausea meds, magnesium, and I cant remember the name but also a drug to keep my white count up. The good news is that I have a port so it is only one poke at the beginning of the day, and you know what I can't even feel it, so that is good. Their main concern now is keeping my weight stabilized, my goal is to make it through the two months of chemo without having to have a feeding tube, so I am eating every two hours, just small amounts, my husband and girls have been great about reminding me, actually they made two signs for me in the house that say "Don't forget to eat!"
      So I am still in very good spirits, the doctors, nurses, everyone who is treating is very optimistic about a good outcome, I know this will be a very difficult time, the worst time will be the stomach surgery, but right now just taking this one day at a time. Thank you all so much for the support it means so much to me, sending out hugs and good thoughts to all.
      • 20 replies
    15. bonnie blue added a post in a topic Why Aren't Doctors Up To Speed?   

      I agree most folks in the medical community are pretty clueless. It took me almost a year to find a good gastro. He actually told me that I know more about Celiac then medical students, scary huh. We have to be advocates for our own health, and keep looking for doctors who will take proper care of us. Take care.
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