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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity

MichMoo's mom

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About MichMoo's mom

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  1. I am on the board for peace of mind. I think of her gluten allergey as a mosquito bite: YOu know you shouldn't itch them but it feels good when you do and then you are miserable. HOw many times have your parents told you to clean your room? Do you do it or wait until you can no longer find that pair of shoes? I keep chanting for her to come to this site. For the last three maybe five years I have been trying to figure out why she gets tonsils that kiss and no response to anitbiotics. Her complaints of cold heads, numbness in her fingers and toes , nausea.......... The freakin phone call telling me that she has celiac came when I was sick with bronchitis and just discovered the air conditioner had fallen on it side in the attic.{ Does when it rains it pours fit?} I immediately put her on a gluten free diet knowing it was going to be a roller coaster ride.She looked great for the first time in years. So now that her tonsils remain kissing We need to figure out if it is a gluten reaction or a need for removal. A surgeon fixes things by surgery..... So of course they want to do a coblation. SHe is anemic 29 to 31 for a HCT for the last three years which by the way I questioned after I asked to read her chart. They assumed she was anemic due to being a menstrating female.This was the needle in the haystack moment. THe kid only gets her period every three months so how could her anemia be this severe? I swear if I was rich I would be sending you'll deep tissue massage gift certificates. THe kid can tie her shoes, ride a bike, drive a car,,,,,,,, and yes she needs to take responsibility for what she tosses in her mouth. She is learing the hard way. I question therefore I seek answers. TY for the glutamine powder and ghee insight. She says that drinking lots of water even though she vomits it and eating blueberries does make her feel better faster. Melon was also a guick help.
  2. My computer screen keeps jumping so I will keep this short. Reading other board posts has made me more focused . SHe was a happy babay and somewhere along the way got really difficult. Ironically her favorite food is PASTA. Looking back on her life the last few weeks I can see that she is happier since going off gluten. At times she would be angry, sensitive, difficult which I really think is due to the gluten allergy. I see her reaction to the gluten as a toxin attacking her brain, joints and stomach. Anytime she has been glutenized I force her to drink and poo. I encourage her to drink water and eat fruit. I found that blueberries made her headaches and vominting subside much faster. To thos who post thank you. to hose who will read this... REad as much of the board as possible casue there are so many solutions posted . Thank YOU
  3. Thank You for taking the time to post. I looked into alternative housing for her since her dorm does not allow hot plates or microwaves. A local campus hangout offers gluten free snacks, drinks, and sandwiches. This hang out has been her huge safety net so she can continue to socailaize and EAT. I think ... know she must be more proactive and follow a strict gluten free diet. At first if she cheated she had mild sypmtoms now she reacts faster and more intense. I thought I had some time this summer to educate her but is she isn't willing to listen , I am not going to waste my energy. Personally I am exhausted. I fought with the medical staff last winter until her symptoms worsen and they knew soemthing else was happening. I asked" are we looking at a combination of problems or are all the issue related?" She has been ill since the beginning of school. IN reviewing her diet I saw she was eating contaminated food. THe chocolate milk I buy has gluten free on the label so she assumed she was okay . I came to this board cause I have no idea how some of you function. It is horrible when I have to spend days holding her head womiting and the doctors say she has a cold . an UTI or a stomach virus. Now that she is in college and I get the skyps calls I can see the weight loss . I do think she needs to refuse to eat it unless she knows for sure it is gluten free.
  4. I have been reading this website since May and using other internet websites to guide my daughter. I cried when I actually was able to log on a few days ago.I am sure I cried from relief and frustration . It has been a rough year and at times I feel that this nightmare is never going to end. Huge hugs to those who post their advice. My child has been complaining of cold hands, dizziness, vomiting, nausea, severe headaches, tonsillitis, tingling in her hands, and fatigue for the last three years. Her CBC shows she is anemic ,29 HCT. The Docotor said she is a menstrating female so she dismissed the low count. Everything blew up this past winter. SHe again had tonsillitis , nausea and vomiting for weeks.The docotor said she had a virus but her tonsils were oozing and kissing. SHe then developed hematuria and spent a night in the Er since she was unable to stop vomiting. THe Hospital staff asked me if I had any questions as they removed her IV, "Yes what do I do when this starts again"? The resident, intern and Nurse were silent. In MAy I was called and told that her IGG was 19 and that she has celiac disease. I asked if I needed to see an Gi specialist but was told to see a dietician. I immediately placed her on a gluten free diet. Within a month her color improved and she no longer looked bloated. She ate a bagel and a day later was back to the headaches, vomiting and dizziness. She said the bagel was delicious but she will never eat one again . I sent her off to college with guidelines and two books: Living gluten free for dummies and the gluten-free Diet. It has been really difficult cause she lives at the health center. I think she finally gets that she is still eating gluten contaminated food { choclate milk}and that is why she has lost weight and again with huge swollen tonils. We jsut saw two otolarnygologists to see about a tonsillectomy. I called the physician whose staff told me she has celiac to find out her exactlab results. They are saying that she may have celiac and Her IGG is 19. "What is normal?" " up to 11 is the normal" It has been a really tough year . They want her to see a GI specialist and have the endoscopy done. NO WAY. I have spent many nights holding her and emptying her trash to know she will not tolerate gluten. It use to be that she would react in two to three days after cheating but now the symptoms appear in an hour or two depending on the meal. She has gotten better but has eaten contaminated food such as sushi. The cafeteria adds wheat to their rice to make it stick. What would you do? Do I need more blood work? Do I need to spend another 800 seeing a physician. I have only been given one number an IGG of 19.