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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About ideagirl

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  1. Undiagnosed W A Difficult Dr- Help!

    I've seen some info on the web about DNA tests for celiac. The disease has a genetic component, so DNA tests can be somewhat useful. The way celiac works is you have the genetic thing that makes it possible for celiac to get triggered in you, and then, if a trigger comes along, you develop celiac disease. Triggers vary pretty widely, but they boil down to serious stress (mono, pregnancy, other experiences that can cause serious physical and mental stress). And a quote from the U of Maryland center for celiac research: "What is the meaning of HLA DQ2/DQ8? As an autoimmune disease, celiac disease is the consequence of the interplay between genes and the environment (gluten). We don
  2. Have you told your doctor this? Not to freak you out, but worse things than celiac or IBS can cause symptoms like that. I would really recommend that you tell your doctor and, if you haven't had an internal scan (e.g., barium swallow, colonoscopy etc.) in the past few years, insist that you need one just to make sure that it's not something worse. It really puts your mind at rest to have a scan tell you there's nothing SERIOUS going on, so you can focus on IBS/celiac again... I'm speaking from experience (just had the full set of barium scans).
  3. With results like yours, who needs a label? I just got the blood test (results not back yet), and although my doctor doubts I'm celiac because it's rare (he thinks I have IBS, which is more common), he said... GUESS WHAT.... * Even if you're NOT celiac, you can still be gluten-intolerant; * And EVEN if you're not gluten intolerant, if you have any digestive issues at all he said, and I quote, "The gluten free diet is the easiest on the intestines." In other words, you don't have to be a full-blown celiac to benefit from a gluten-free diet. Your digestive system may still work a whole lot better when you avoid gluten, and as a result your whole body feels better. To understand this better, maybe a useful comparison is to people who are "insulin resistant"--that is, they aren't diabetic, but their body is acting like it has mild diabetes: it's not processing sugars and insulin normally. People who are insulin-dependent are in a gray area between "normal" and "diabetic," and they benefit from eating a diet like diabetics are supposed to eat. And some people who aren't celiac are in the gray area between "normal" and "celiac," so they benefit from the gluten-free diet celiacs are supposed to eat.
  4. I emailed the company that makes Vigo Mexican/Spanish/Cuban food to ask about gluten, because the ingredient labels are vague ("vegetable protein" etc.), and here's the response I got: Gluten Free Products: >Vigo Chicken Base >White Balsamic Vinegar Products with Corn Gluten: >Vigo Yellow Rice >Vigo Paella >Vigo Mexican Rice >Vigo White & Wild Rice >Vigo Black Beans & Rice >Vigo Santa Fe Rice >Vigo Risotto with Broccoli >Vigo Primavera >Vigo Rice Pilaf >Vigo Soups >Alessi Risotto's >Alessi Soups The only stuff they make that's got wheat gluten in it is their Red Beans & Rice and their Bella Yellow Rice. Yeeha!!! I can eat almost everything!
  5. I Need A Better Doctor

    I don't know if you've checked here already, but there's an alternative medicine place at 2345 S. Huron Parkway in Ann Arbor, near where Huron Pkway crosses Washtenaw. It's easy to spot, because it's located in two huge purple Victorian houses. There are a lot of different practitioners there, all of them holistic/naturopathic, including some chiropractor/MD's, homeopathic doctor/MD's, nurse practitioners, etc. I've heard great things about the place, so it's probably worth checking if there's anyone there who might be well informed about celiac. Since there are different practitioners, they all have different phone numbers. Here are a couple -- just call and ask if there's a general number, or a way to get information about all the practitioners who work there. (734) 945-4903 (734) 975-2444 734-973-3030
  6. Fair Diagnosis? How?

    Why wait for the diagnosis? Just go on the gluten-free diet and see how soon you feel better. If the gluten-free diet works, stay on it. You don't need prescription meds for celiac disease, so getting a doctor to validate that you have it isn't really necessary.
  7. Health Insurance

    I've never had that much scrutiny when applying for health insurance. I mean, I never had an insurance company actually ask to look at tests. They generally just ask what my medical history is (diagnoses, operations, hospitalizations, etc.) and my lifestyle (smoking, exercise), and in most cases they would still cover you but either at a higher price (this isn't legal in all states), or with an exception like they would cover you for everything EXCEPT "pre-existing conditions." Check with Blue Cross Blue Shield, or whatever they're called in your area (e.g., Highmark, Blue Cross, etc.). And call your state's department of insurance to see if they can point you towards insurers that won't screw you over. Also, if you have a good job (one that offers insurance), there are generally no tests at all--they just cover you as part of the job.
  8. I don't know of any that specialize in it, but I know there's a Dr. Paul Lebovitz at Allegheny General who is a gastroenterologist and also used to head their alternative medicine department--so he's probably a lot more aware of nutritional issues than most doctors (I mean, most doctors just want to throw pharmaceutical drugs at you). Also, he was quoted in an article about celiac disease:
  9. Hello, I have a bunch of Silk chocolate soymilk drinkboxes--I have them for breakfast--and they all say "Gluten Free" on them. Plus, the ingredients don't contain anything that could be a gluten source. Is there something different about the soy Starbucks uses, or were you thinking of a different brand?