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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About Sharbysyd

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    • Birthday 03/08/1962

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    1. Sharbysyd added a post in a topic After Years Of Suffering, I'm Trying To Go Gluten-Free   

      I didn't know that some of the thyroid meds have gluten although it seems that Synthroid has sugar in them.  I'll keep that in mind.
      When I was on Synthroid only, I didn't do as well and felt much better when we added the Armour (NDT) so I don't think I would try going without that at this point.  I recently found an article on how most doctors don't know that NDT should be prescribed twice a day (breakfast and dinner) rather than once.  I guess prescribing it twice a day eliminates the problem I had of my t4 being too low with just the NDT while my t3 was in a good range.  That's why we added the Synthroid based on my  labs.  
      I now plan to find someone who will work with me and do the 2x a day thing and hopefully I can get off the Synthroid completely.  It's quite expensive anyhow.  I would not be without NDT though.  I have seen such an improvement on it in the past and after trying going back to just Synthroid, I noticed I never felt THAT good on it.  
      Regarding the diagnosis, I'll keep that in mind but since I've been trying to go gluten-free for the past week for over a week now I know that the test results would be affected so I may just wait and see what happens and then if I go back to gluten, I'll decide what to do at that point.  I wish I would have thought to get tested the last time I went to my PA.
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    2. Sharbysyd added a post in a topic After Years Of Suffering, I'm Trying To Go Gluten-Free   

       Thanks for the response.   I didn't realize that hypothyroidism present with a lot of the same symptoms as celiac or gluten-intolerance.   
      Actually my hypothyroidism hasn't been managed very well.  It was for a while and I was actually feeling pretty good but then they changed the formulation of Armor Thyroid and I started to not feel right on it.  I was very, very irritable on it.  Another one of my symptoms is sensitivity to medications.  I've also had some issues with and SVT, which I think may have been from having my thyroid meds too high.  I used to try keeping my TSH under 1.   My old doctor wouldn't measure my free T3 at all but this new PA I'm seeing is willing to do that.  The problem with her is that she is threatening to take me off of the Thyroid USP that I presently take along with Synthroid if we don't get my levels stabilized.  
      I haven't been good enough about working to get my levels stable since it's sometimes such an effort to go to the doctors and to have the blood work done.   
      Thanks also for the info on the thrombocytopenia.  I will check that out but I think my platelets have been in the normal range.  I think that they test those when I get my cbc.  I'll have to check my records.  I keep copies of all of my blood work in a binder.  
      I guess I'm confused about the testing for celiac disease.   I thought that you have to have the blood test and also the biopsy.  I don't think I'm wiling to do a biopsy but I would be fine with doing the blood test.  I just don't know when I would be able to get to see my PA and would thus have to put off trying to see if this helps me or not.  
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    3. Sharbysyd added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      After Years Of Suffering, I'm Trying To Go Gluten-Free
      I've suffered with fatigue for over 20 years and over time I've started to have more symptoms.  I was diagnosed with hypothyroidism about 15 years ago.  After a few years of suffering with insomnia, I discovered a magnesium drink that I now would not be without.   I've had GI symptoms over the years.   I remember several years ago I had a friend who used to mock me (in a fun way) about my belching.  I have diarrhea more often than not but I haven't told my doctor because I don't want to be pressured to go for potentially painful tests.  
      The weight has gone up over the years from being so tired and sedentary and eventually I was diagnosed with sleep apnea and started on a cpap.  I felt really good for a while but then that didn't work anymore.
      I have okay days and bad days and never know what I will feel like the next day.   I now do green smoothies every day which have given me a bit more energy to function.  
      I've tried so many things.... raw foods, juicing and more.  A few weeks ago I was having a bad spell and along with it I had more gas than usual.  My husband did an internet search to try to figure out what it could be and he was pointed to celiac disease or gluten intolerance.  I figure I've tried everything else so I've been trying to go gluten free for about a week now.  
      I'm not sure how well I'm doing since from what I read there is a big concern about cross-contamination.  I plan to keep learning and studying and trying and hopefully I will see some improvement.  I have so many of the symptoms.  
      My symptoms are:   fatigue, insomnia, GI issues (diarrhea, gas, sometimes bile), skin issues (I think I had psoriasis for a while a few years ago), red dots on my arms, ADHD, feeling of unreality (maybe also known as brain fog), difficulty concentrating, hypothyroidism (Hashimoto's), joint pain and stiffness (now using a high dose of fish oil which has really helped with that), anxiety/depression (on and off over the years).  There are probably more symptoms which I'm not able to think of at the moment.   I'm tired of this suffering and tired of trying so many things that haven't worked.  Hopefully this will be the answer for me.  
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    4. Sharbysyd added a post in a topic Gluten Free Nuts?   

      I did the raw foods thing for a few months and never had any issues with protein.  One thing that might work for protein is to have your wife have green smoothies.  You use about 60% fruit and 40% leafy green like spinach, kale, lettuce, parsley, collards, chard etc.  I drink a Vitamix pitcher full every day and they really help with my energy.  
      Sprouts are another good source of protein when doing raw foods.  You can sprout seeds yourself to save money.   
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    5. Sharbysyd added a post in a topic Can Undereating Cause Insomnia?   

      I realize that this is an old thread but I wanted to share a similar experience.

      I have noticed that when I cut back on my food, I have a tendency to start having insomnia. If I skip a meal or if I don't get enough protein, I also get insomnia. If I stick to 3 meals, but cut back my portion sizes too much, I also have insomnia. I found this thread while doing a search for insomnia and undereating because I'm trying to figure out why this happens.

      I suspect that it has something to do with blood sugar imbalances. It is pretty frustrating because I want to decrease my weight and sometimes I don't feel like eating or don't feel like eating much but I have to force myself to eat more in order to not have insomnia.

      One thing that I have found that helps if I do have insomnia - especially if I wake up during the middle of the night and have trouble going to sleep is to have either a snack or something sweet. I find that grape juice works really well because it's quick and easy. I'm guessing that the (middle of the night) insomnia is caused by low blood sugar and the grape juice or snack raises my blood sugar enabling me to sleep.
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