Wow, I'm originally from New Jersey and am loving hearing all the place names. Moved from Bergen County (River Vale) but am very familiar with Hackettstown - my aunt lives in that area. And I lived in Sparta for a year.
NoGlutenCookies, that's actually a fascinating theory. There must be *some* reason for the phenomenon, right? That's pretty interesting.
Gilligan, funny you should mention collagen, I actually started taking it in capsule form...but for vanity... (gettin' old)
Also...as to the possibility that you're native (do you mean Native American?), I don't think that's probably the reason you have a sensitivity to gluten. I know plenty and then some of Euro- and other-descent people who have NCGI or celiac disease.
I am so sorry. Most doctors just don't "get it." It's the whole cultural "but wheat is such a wonderful, happy, benign food that there must be practically no celiacs in existence!" thing. (If they even read a paragraph on celiac in med school. I've heard from med professionals that their nutritional unit is extremely short, like, a page short. Don't know if that's an exaggeration.) Docs really need to wise up!
I am so very sorry and I hope you feel better soon.
I have not been DXd. But I am without a doubt gluten sensitive at the very least, to the point that by now, I am barely able to function.
Yes, when I first related how I was feeling to gluten intolerance, I was angry. I felt that EVERYBODY else could eat "normally" and I couldn't.
But recently I've come to a realization. Everybody can't eat "normally," or what we've come to believe is normal (heavily modified wheat). I know so many people with random issues no doctor can figure out. Strange "rashes," asthma, joint pains, fatigue/exhaustion, bloating, digestive issues, migraines, weird menstrual cycles, arthritis at surprisingly young ages, overweight starting from childhood, inability to concentrate, fibromyalgia, CFS, and the list goes on and on and on. Issues that people below the age of 70 would very, very, very rarely have complained about, especially more than one of those or other things at a time, in decades gone by.
*Something* is causing it. And I believe it's food that's doing it. So many weird, random issues aren't so weird and random when I realize that many, many, many wheat intolerant people have them. Our society is heavily based on wheat. I believe it's making us all sick. Or, many of us, anyway.
1. It's not true that "everybody can eat 'normally' and be just fine." This society is NOT just fine. Nearly every person I know has some weird random issue. And my own anecdotal evidence aside, there's no denying a sharp rise of many of the above issues I stated in the past 25 years or so.
2. Eating a majority of wheat as a staple, and at that, eating heavily genetically modified, heavily processed wheat, is NOT normal. It has never been normal.
I actually consider myself lucky for having made the link.
Good luck and I hope you figure it all out and feel better! We really are like scientific experiments on ourselves in this quest. Eliminate this, try that...It's the only way to know what we can eat and what we can't.
How long have you been gluten-free? If it hasn't been very long, you could still just be bloated/inflamed.
If it has been a while, like the others said above, consider other food intolerances. I have discovered I can't do dairy. I do bloat from dairy, but only in my stomach (with gluten, it's my entire body - face, wrists, etc.).