Subscribe to FREE Celiac.com email alerts
CNV2855 added a topic in Super Sensitive Celiacs & Gluten SensitiveI Need A Safe Rice. Reacting To Lundberg Time, And Time Again.I'm probably far more sensitive and to a lot more substances than your average poster here. I also have a sulphite intolerance in addition to being very sensitive to gluten, and I almost undoubtedly react to gluten free oats. Salicylates are also something I react to.
The problem is that I do amazing on a diet consisting of potatoes and butter, with nothing else, but this isn't enough to sustain me nutritionally. The potatoes work because there really isn't a risk of contamination because I'm able to peel off the exterior, with the starches being somewhat protected from pesticides, contamination, or what not through processing.
Now I should be able to tolerate rice, and I love rice, so I bought a lot of Lundberg Sushi (also tried brown rice) rice and I did a heavy trial where I ate nothing but rice for the past week.
I have been experiencing severe symptoms throughout the week. I'll wake up, have a small amount of energy, eat rice, and literally pass out/fall asleep sitting up. It's almost like I'm being hit by a tranquilizer and this is one of the symptoms I get to something I shouldn't be eating. However, rice has no salicylates, and I'm rinsing it well, it isn't sulphited, so... I don't understand why I'm reacting to it.
I have been "awake" less than 5 hours a day ever since I began trialing this rice. It was DEFINITELY getting me, and getting me good.
The only thing I can think of is oat contamination with Lundberg products. I'd hate to cut rice out for good just because of contamination with one product... so are there any non-oat contaminated rices out there that you guys can tolerate?
- 22 replies
- 3,650 views
CNV2855 added a topic in Gluten-Free Foods, Products, Shopping & MedicationsIs Heinz Ketchup Gluten Free? Van Camp's Beans?Heinz originally certified their original ketchup as gluten free and initially said their organic wasn't. I think that's changed and both versions are supposed to be gluten free.
I tested three products this week with EZ gluten (down to 10ppm).
Heinz original ketchup (not the organic) tested positive for gluten.
I want to make clear that this bottle was used in a gluten free household and has never been used on gluten containing foods.
Van Camp's Baked beans (also certified gluten-free) tested pretty damn positive on two consecutive tests.
Rice Chex tested negative for gluten.
All tests done with EZ-gluten. This is becoming frustrating as it's becoming increasingly apparent that we can't rely on statements by these manufacturers.
- 11 replies
- 11,422 views
CNV2855 added a topic in Dermatitis HerpetiformisPlease Take A Look.I just want to get confirmation. This is what my dermatologist STRONGLY believes is DH although all biopsies have been inconclusive. It flares when I eat gluten, becomes itchy, but hasn't disappeared in 4-5 years of being gluten free.
This morning I woke up feeling like I got hit by a mack truck, some really, really bad pain. Later on, this rash started itching. I think I got glutened.
However my most recent biopsy/endoscopy showed normal villi so I have healed.
What do you guys think?
- 11 replies
- 1,767 views
CNV2855 added a topic in Celiac Disease - Related Disorders & ResearchSalicylates...I have noticed that my face/neck start swelling up whenever I take acetemetophin painkillers or eat lots of tomatoes and other types of food. I had a dinner with a ton of spaghetti sauce the other night and I swelled up worse than I have in a long time, voice became hoarse, just was really out of it!
It happens when I take painkillers as well. There are a few other problem foods. Is this possibly a salicylate sensitivity?
If it is, is this linked to celiac in some way? What are the chances of being sensitive to these types of foods and having celiac disease? I think it's quite ridiculous how many problems we have to deal with.
- 2 replies
- 827 views
CNV2855 added a topic in Dermatitis HerpetiformisUnresponsive Dh To Gluten Free Diet?I've been gluten free for roughly 4-5 years and my GI/endoscopy/blood results have all normalized but my DH rash is still there.
I'm not positive it's DH but my dermatologist strongly believes it is; it's been biopsied but always inconclusive. She says I have to be eating gluten for the DH markers to show up on biopsy, so it's normal for the results to be inconclusive. I know that when I'm glutened, it flares up badly and starts itching. While on the gluten free diet the itching subsides, but the rash has never gone away, so it's only partially responsive.
...after 4-5 years. And I'm very careful with my diet. So what do you guys think? I just got prescribed dapsone 50mg so I'm not sure how long results will take.
- 15 replies
- 3,724 views
CNV2855 added a topic in Celiac Disease - Coping WithEatl / Food Poisoning / Cdiff/ Sibo?I was admitted to Methodist in Houston after experiencing abdominal pains, weight loss, loss of appetite, nausea, and diarrhea. I'm absolutely certain it's not gluten related because the DH rash on my back has been steadily disappearing as I've been more careful with my diet now than I've ever been.
They gave me a CT scan with contrast and an MRI and drew my blood every day. My lymphocytes were low out of range almost every draw, my WBC was slightly elevated in most of the draws, and I have an elevated anion gap and neutrophils. The CT scan only showed mesenteric lymph nodes, which supposedly are normal, otherwise it was fine. The MRI (of my head) was normal.
They gave me an upper endoscopy and lower colonoscopy and the initial results were normal, however the biopsy results will be in tomorrow. Gave a stool sample and it tested negative for CDIFF, using the unreliable toxin assay.
It's been two weeks and I'm still experiencing acute abdominal pain in my upper intestines and I feel both weak and fatigued. They discharged me without actually telling me what was causing it other than suspected IBS, which I'm not buying. I feel nauseated everytime I eat and am feeling horrible. I have almost no appetite anymore, as before I loved to eat.
I really don't know what to do now... this is hurting me bad and I know something is wrong. I just want to be reassured that this isn't lymphoma but I've read quite a bit that it can be difficult to find before it becomes life threatening, but would a CT scan and upper/lower endoscopy be enough to rule it out? Should I ask for a pill camera?
Could this just be food poisoning that I can't shake? I feel horrible and I'm trying to force myself to eat. I feel much more nauseas after eating.
- 13 replies
- 1,607 views