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GFshay

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About GFshay

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  • Birthday April 29

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    http://adventuresingluten.blogspot.com

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    AZ
  1. I also experienced accelerated hair loss after going gluten free and no one has any ideas. It's worth it to feel so much better, but it's annoying and frustrating. I went from the occasional spot or two to shaving my head and wearing a wig. All my nutrients are good so no one knows what's up. I'm thinking about starting some sort of vitamins but I haven't found definitive info on what to take, exactly... B? Iron? Suggestions?
  2. I had alopecia in a mild form all my life, but within the first year of being gluten free I lost almost all my hair! It's been very concerning and doctors have no idea why it's gotten so much worse. I don't want to scare you because I think my case is very strange. I also have some slight elevations in TSH so my doc thinks maybe a little hypothyroidism might be somewhat to blame. My unscientific theory is that my immune system didn't have as much to fight so it decided to focus more on my hair once the gluten went away. All I know is that I've never felt better, so I'm coping with the possibility of being bald but otherwise healthy. Wigs are shockingly comfortable and realistic, and my insurance covers them. Has anyone else experienced this?
  3. Sorry you're not feeling well. Peppermint tea or Altoids could help with the "lumpy" sensation in your throat and also perk your brain up a bit. Aloe juice is a lifesaver to me for any stomach upsets (you can buy it at health food stores- just don't take too much at first- 1 tbsp or so). Sometimes getting out and moving a bit, like going for a walk, does wonders. I guess it speeds up your metabolism or something. It will pass!
  4. It sounds like your body is trying to tell you things aren't too good. If you were just feeling foggy, I'd suggest having more protein in your diet and being sure to exercise regularly (that helped me a lot). But if you're feeling a blockage or something, definitely time to go to the doctor. I wonder if that might be part of your fog-- it happens to some of us if we're fighting off something that's not too healthy for us, like an infection.
  5. I have had mild alopecia areata since I was about 6 years old and always dealt with it pretty well. I never had more than one or two quarter sized bald spots and they always grew back in after a couple months. Last October, I was officially diagnosed with Celiac and went gluten free. At my 3 month follow-up, we ran extensive bloodwork and I had no antibodies and had all normal levels of nutrients, etc. My doctor thoroughly checked my thyroid hormones because he suspected I might have hyperthyroidism, but everything was totally fine. I've been feeling phenomenal, but my recent bald spots haven't been growing back... one has lasted 6 months without any activity... I'm just curious if anyone has any ideas?? Has this happened to others in the absence of any vitamin deficiencies? I'm starting to get very nervous that it will worsen to the point of needing a wig or something... I've started corticosteroid injections and they are helping, but very slowly. I worry that my hair loss may progress faster than it can grow back... any ideas? Is it just my immune system adjusting?
  6. I have had mild alopecia areata since I was about 6 years old and always dealt with it pretty well. I never had more than one or two quarter sized bald spots and they always grew back in after a couple months. Last October, I was officially diagnosed with Celiac and went gluten free. At my 3 month follow-up, we ran extensive bloodwork and I had no antibodies and had all normal levels of vitamins. My doctor thoroughly checked my thyroid hormones because he suspected I might have hyperthyroidism, but everything was totally fine. I've been feeling phenomenal, but my recent bald spots haven't been growing back... one has lasted 6 months without any activity... I'm scheduling a dermatologist appointment to begin injection treatments, which have worked for me in the past... but I'm just curious if anyone has any ideas?? Has this happened to others in the absence of any vitamin deficiencies? I'm starting to get very nervous that it will worsen to the point of needing a wig or something... this is pretty terrifying.. help!
  7. I'm traveling to Montreal for a conference and need some help finding restaurants that are easy to order at (I'm going to be with coworkers who may not be planning far enough ahead for me to call and everything). I'm staying at the Hilton Bonaventure near the conference center downtown, and they were awesome on the phone and promised to have options for me (including getting gluten-free bread!). Nonetheless, I'd like some other choices too. I'll have a fridge & microwave... anyone know of nearby grocery stores that might be useful? Thanks in advance!
  8. I am also curious how you all handle the FEAR of being glutened. I've been gluten-free for 4 months and feel generally great... but some days I get some stomach issues (probably nothing out of "normal" people's usual indigestion or something), but it makes me panic. When my celiac symptoms first got bad before being diagnosed a couple years ago, the first thing I noticed was my bad anxiety-- exactly what people are saying about simply feeling "aroused" but not having any particular anxious thoughts. I thought this anxiety was causing me to make myself "sick to my stomach". After a lot of work, I got that under control (I'm a Psych PhD student ironically), and the absence of anxiety but remaining stomach issues actually helped me realize there was something physiological going on. But now that I haven't had GI discomfort in a while, when they do come back, it triggers the same panic I had before. I work with lots of clients with anxiety, but I'm curious if any of you have specific thoughts/ways to handle glutening anxiety. I usually try to think coping thoughts and do deep breathing, but it's tough not to think "what if I get really sick in front of a client suddenly?". I certainly can't rush home any time I suspect I might have been glutened, only to have some mild stomach acid or something. Anyone have wisdom to share on this?
  9. It's so true that it sometimes seems amazing that the answer is so simple... even though it can be hard to stay safely gluten-free. I think a lot of us felt like hypochondriacs. Just to think about the fact that it wasn't all in my head makes me feel like crying out of relief. It's nice to feel justified.
  10. Has anyone found out about the gluten-free status of new Snickers Peanut Butter Squared? I'm dying to try it but haven't found any info yet.
  11. Did your box say "Gluten Free"? I bought a box of Cocoa Pebbles and it was clearly labeled on the side of the box. I'm pretty sure in order to label something gluten free a company needs to undergo significant testing and procedures. I would trust any that say "Gluten Free", barring any major mistake on their part. But I agree it could be the dyes or other chemicals that are irritating you rather than gluten content. My husband, who doesn't have Celiac, has noticed that even non-gluten highly processed food products are starting to bother him since we're eating so much more naturally these days. You might not be used to all that in the morning, if your previous go-to cereal was rice chex (much easier to digest). Here's what I found on caramel color (from Gluten Free Dietician.com: If you see the words “caramel color” on an FDA-regulated food product and the word “wheat” is not included in the ingredients list or the Contains statement the caramel color does not contain wheat protein. At this time, allergen labeling of USDA-regulated foods (meat products, poultry products, egg products) is voluntary and not mandatory. Nonetheless, it is highly unlikely that a meat, poultry, or egg product sold in the US would contain wheat-based caramel color. Another interesting discussion is "starch" in food, which seems generally well labeled, with a few exceptions. Check out this discussion of USDA vs. FDA labeling laws: Gluten Free Dietitian
  12. Yes I agree with gf_soph. I went gluten-free in October and I didn't start feeling significantly better until I finally went very simple and started reintroducing foods gradually. I was very very hesitant to cut out dairy, eggs, soy milk (other forms seem ok in small amts), coffee and black tea. But once I finally did, I started feeling amazingly better. I've already reincorporated some of those foods, slowly but surely. Definitely going as simply as possible and keeping a diary of things you've eaten with symptoms you're getting might help a lot. My nutritionist had me eating tons of protein and veggies, and once I did that, I started feeling much better (I also don't eat many gluten-free breads and other products-- more natural stuff like rice, chicken, nuts, etc). I'd also recommend trying Aloe Juice to calm your stomach. I've heard it can have a laxative effect if you have too much so start with just a teaspoon or so per day. I found it had an immediate calming effect. I'm sure it feels like it's already been forever on this journey, but trust me-- it takes a while but will get better if you stick with it!
  13. 5'7" and I was diagnosed just a few months ago. I was always a short child till about age 15. I would think bone loss/osteopenia/etc could be responsible for some people not reaching their full potential of height.
  14. Thanks so much for your responses. If anyone else has info on newly discovered sensitivities, please share! I do like Vanilla Almond milk... although I almost put it in mashed potatoes the other day before realizing that would probably be terrible. Maybe I'll need to keep some original on hand for cooking etc. I tried Aloe Vera Juice recently and found that helps settle my stomach if it's acidic, gurgly, or just hurts a bit. I've only been brave enough to try a small sip, since people say it can have laxative effects. But I'd recommend that for anyone needing help to heal better! Something I really miss recently is coffee. I am a grad student and occasionally NEED a boost in alertness to keep going. Any recommendations? I've tried drowning a 1/4 cup of coffee with almond milk. One time it was successful, the second time my stomach was a little angry at me.
  15. There are lots of good resources out there for people coping with health problems, who might also have trouble feeling "in control" of their thoughts and feelings. It sounds like you think you are doing it on purpose, but it's also scary to be in that bad place when you get sick. If you really think you want to hurt yourself, I would look up a local crisis hotline and talk to someone about resources. Those hotlines aren't just for people who feel suicidal, so don't feel strange calling. They're there to help people find help they need, even if it's just getting a good, affordable counselor. I recently went soy, milk, coffee, black tea, and egg free on top of the gluten and periodically I purposely expose myself too... I keep doing it to "see" if maybe I've healed enough to tolerate it. I think it's wishful thinking. Is it possible you're just being hard on yourself for allowing yourself to try that stuff again? To ride this particular storm out, I would consider slow, deep breathing while counting backwards from 10. The more you visualize, the easier it is to allow racing thoughts to fall into the background. Look up some meditation tracks on itunes or somewhere else on the web (a lot are free podcasts). Just try to accept feeling sick for now and know it will pass. Turn on a good movie and take a nice bath. Good luck and warm thoughts.