This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I hear ya. I have 3 kids and only one with celiac....at the moment that is, since I know it could potentially trigger in the other 2 at any time. At home, we have all the kids eat gluten free, and at school we just have my celiac one eat gluten free. It was the easiest way to not have to prepare so many separate meals and then the other kiddos can still eat the standard food at school.
What a wonderful story....and one that felt like I was writing it for my little girl! It seems we shared very similar experiences. Thanks for sharing and so glad our littles are finally healthy and happy again!!
It is scary to put your little one under for the procedure, but it is worth it. My little girl was barely 14 months when she had hers done and it all went perfectly. And it is a relatively quick procedure so you don't have to worry for too long. More importantly we got the confirmed positive result that gave us a real diagnosis and we were able to make a very, very sick girl so very happy again
I don't remember the actual numbers from my daughter's first test at 14months, but they were also extremely high. However, we opted to do the endescopy anyway because it is the one chance you'll have before you switch them to the gluten free diet exclusively. She is now 5 and will be going into kindergarten and I'm glad we did the endescopy because if nothing else it gives her the firm diagnosis of celiac disease. I have heard that when it comes to working with the school, it is much easier if you have the actual diagnosis, instead of just the presumed one. Of course, it is up to you guys, but if you can get in quickly like we were able to, I would have it done. The procedure itself was very quick and easy and we started her gluten free that night! First meal she hadn't thrown up in months!!
So sorry for all the craziness you have been going through. My little girl was about 14 months when she just got worse and worse, would throw up everything she ate (as it almost all had wheat) and would literally eat nothing. The doctors told us to be patient with her and spend more time feeding her, but I don't think they understood that when I said she wasn't eating anything, I meant it....I think we were happy when we got her to eat a few bites of a banana and that was for an entire day. She lost a LOT of weight and dropped to the weight she was at like 8months old! She too lost almost all energy and would sit or sleep all day...crawling to a toy seemed like an incredible effort and she certainly couldn't walk, she didn't have the energy. Finally, they tested for celiac and luckily got her in right away for an endoscopy which also positively confirmed how bad her intestines were and how little they were absorbing. We went gluten free that night and luckily her response was immediate. We were told to try to avoid dairy the first month or two while the villi are healing as when they are damaged they have trouble processing the dairy. We were also told to put her on polyvisol which is gluten free. Additionally, because she had lost so much weight, they told us to add olive oil to a lot of things we served her....it is a little thing, but the calories in it REALLY add up.
Sorry to hear your little one got sick again, but I think you are on the road to success. My girl is 2 now and has regained all the weight and started growing again too. In fact, her hair has started coming in finally. It was as if the celiac shut down all non-essential functions! So, I know it's difficult to wait, but I am confident he will start to improve soon as his little body starts to heal itself.
I'd add this forum to your favorites as I know I have definitely consulted it for all sorts of questions that you come across moving forward. Best of luck and best wishes for your son.
Personally, my little one does scrambled eggs for breakfast with some cheese and fruit. But, if cereal is the thing to have, I just recently found that the General Mills Chex cereals have 5 flavors that are now gluten free (Rice Chex, Corn Chex, Honey Nut Chex, Chocolate Chex, and Cinnamon Chex). Unlike the specialty boxed cereals (Envirokids for example), the Chex ones seemed more regularly priced, so it might be an option for you
Discount School Supply (http://www.discountschoolsupply.com) is a good place to start in regards to art supplies. Sells a lot of "Colorations" brand materials that are often gluten free, casein free, soy free, nut free, etc.
When my daughter was tested a few months ago (at the time she was 17 months), they told us that anything over 19 was considered positive for Celiac and that she had a reading of 200 something! I would check with your doctor to make sure, but they told us that 19 was the magic number.
My almost 2 year old daughter was just recently diagnosed with Celiac (confirmed via blood test/endoscopy) and I am trying out different kid friendly snack food for her. I read the ingredients on Post's Fruity Pebbles Cereal and saw that there were no gluten containing ingredients and bought some. Then I got home and decided to call the manufacturer just in case and asked if the cereal was gluten free. They told me that the Fruity Pebbles, Cocoa Pebbles, and Cupcake pebbles are all made on DESIGNATED gluten free lines, but that they are in a facility that processes other cereals. Has anyone had a problem with this cereal? It seems to me that being on designated lines would mean they would be considered gluten free? Also, does anyone know what the regulations are on printing whether a product is made in a facility that processes wheat are? Based on what I've seen on other processed items, it seems to be hit and miss. They direct you to their ingredient list, but if they're putting that food on a flour coated line, it seems like they'd have to tell you about it! I know the FDA requires that they clearly notate whether the product specifically contains one of the top 8 allergens, but I can't find any information regarding whether or not they have to print that the facility processes one of the top 8 allergens. Thanks for any info. This forum has been an incredible resource for me and my family as we adjust to our daughter's gluten free diet. I can't believe how quickly she responded to the diet change and what a different person she is now...it's incredible that all we needed to do was change the food we were giving her---just wish we had known earlier before going through months of throwing up, diarrhea, Emergency Room trips, etc.