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Amber1181

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About Amber1181

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  1. Hi everyone. I have celiac disease, Ehlers Danlos, and a new one brought to my attention POTS. I found out when I was 22 about the celiac by route of a Detox diet. I didnt commit to the gluten-free Diet until I was 28. My now 3yo daughter was having digestive troubles and I realized that she probably had it too. She has Celiac (gluten and caisen), and Ehlers Danlos. My Brother was recently diagnosed with Celiac... the ED skipped him. We suspect that he also may have POTS. His son, who is 10 months has Ehlers Danlos and we suspect that he will also have Celiac. My mother (after several years now of my insistance)has finally been diagnosed. She has Celiac and ED possibly POTS. We have tracked this back to my maternal grandfather. He is in his 70s and says he is too old to change his ways. We are all doing quite well on the Gluten-free Casein-free diet. My mother has the most damage from Celiac(enlarged liver, osteopenia, pitting of tooth enamel, low calcium and high iron levels). POTS is Postural Orthostatic tachycardia syndrome. In hind site I have probably presented with this since I was 17. Those of you who have ED definently look at this! The vessles are too stretchy and donot constrict properly, causing decreased cerebral blood flow. I get tachycardia and extreme exhaustion, as well as trouble with swallowing. There is more but less serious. I was very interested in all yalls post and I hope that mine helps someone.