dzaz replied to dzaz's topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsThanks; this is exactly what I was wondering about the endoscopy. I'm still confused about the dilated bile duct and small bowel malabsorption. Celiac-type of thing or not? Thanks again!
I'm hoping I can get some input for what's been going on with me, and thanks in advance. Over the past 5 years, I've had pretty normal health but perhaps every 14 months I'll get: abdominal distention, incredible gas, stools become very loose and rancid, and exhaustion. The bouts last for between 1 to 2 months and seem to resolve on their own with no diet change or meds. Last bout was 2006 and after lots of testing, they decided I had caught a parasite in the Caribbean, treated it, symptoms went away. Same thing happened a month ago but this time after about 2 weeks of the symptoms I got a sudden sharp pain in lower right-side abdomen (like an ovarian cyst bursting); doctor checked for appendicitis (nope) but CT showed small bowel malapsorption and bile duct dilation. 2 Celiac blood tests came beck negative. Doctor said try going off gluten and dairy; I did and felt better within days. Saw doctor yesterday; he said to add dairy back in and see how it goes and wants a MRI for "interesting" CT results of bowel and bile duct. He said if dairy goes okay, to try gluten and if that doesn't go okay, to do the endoscopy. My question is what's the reasoning behind the endoscopy? If the gluten hurt, the gluten hurt, right? Would the endoscopy give results that would results in some sort of treatment (medication, surgery) or is it just more information? (FWIW I had a yogurt last night and my stars, that was a mistake). I understand the blood test results can be non-conclusive and I'm fine with staying gluten and dairy free if I feel better, but my questions are: the small bowel and bile duct irregularities: are those Celiac markers or something else? And is there any point to adding gluten back and and getting the endoscopy? Thanks for all responses; the internet can be a little overwhelming.