This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I am hoping that those who are undiagnosed are reading this because it may help you find some answers and some relief....
I am sure many undiagnosed diarrhea sufferers do not know that their D may be caused by bile salts leaking into the intestines. Diet will not cure this - the only thing that will is medication and that medication is either Cholestyramine which is powder form or Welchol (pill form). I know some will say that this is defined as Habba Syndrome - but not all forms of bile leakage are categorized as this syndrome. My Gastroenterologist explained that this is fairly common and is easy to take care of and is not really anything to be alarmed over.
What you will need to do is first have a colonscopy and endoscopy to rule out Celiac, Colitis, IBD, or Crohns disease. Blood work is also necessary and stool samples. If all come back negative - then you may be suffering from Bile Salt leakage or possibly Habba Syndrome or even gallbladder disease. This condition is also very prevalent to those who have had their gallbladders previously removed. Trust me when I tell you it is well worth looking into. I have suffered for months and am finally beginning to see some positive results. I am still thin at 98 lbs. (lost a lot of weight with this) but am hoping to soon put some back on. I did notice that I am not having digestive issues (malaborbtion) and the diarrhea is much, much less than before. I asked the doctor how long I would have to continue the medication - he said probably around a year until everything returns back to the way it should be. I must say - I can now eat many of the foods I had sensitivities and/or intolerances to - which were many.
So if you are really suffering from undiagnosed diarrhea - do look into this.
I hope that I am still welcome to post here - because the members in this forum are the greatest and most supportive people I have ever met! Thanks so much for all your help - it is so very much appreciated!
I am not eating gluten - been free for 3 months and I do not have dairy either - but I have noticed that if I eat too much starch or sugar - I tend to have problems. I cannot tolerate potatoes, rice, cereals, fruits and vegetables or fructose very well. Problem is, when I stay off complex carbohydrates - I tend to always feel hungry.
Even though I am gluten free - I still am having problems with foods. Once I have the nocturnal diarrhea - I am usually good for the day - not always - but most of the time. I do not know why it takes so long to have a reaction and why it happens during the night....
Are any of you plagued with Nocturnal Diarrhea that comes on in the middle of the night?
I know for myself - I usually am awoken about 1 to 3 a.m. and have to go to the bathroom either with watery, semi hard or even regular urgency. This might continue once an hour up to about 6:30 to 7:00 a.m. It is really annoying and it so disturbs trying to get a good night's sleep. I have never had an accident - but you sure know that your colon is calling you....
Is there anything you can do about this? I know I am not bothered all day - but somewhere between 7 to 8 hours after eating - this comes on.....
I know some of the forums come with chatroom software. Not sure if this one does. When I ran a graphics forum, there was an option to have a chatroom which we sometimes used. The only way a person could get access was by being a member of the forum so we did not have the worry of outside people coming in.
I have tried using the Silk Vanilla Almond Milk and as long as I use just a small amount in cereal I am okay. But, yesterday, I made the mistake of having a glass of milk and had diarrhea for the better part of yesterday and some again this morning.
Have any of you had a similar reaction?
Which substitute have you tried that works well for you and that you would recommend?
If you are interested in Elaine Gottschall's diet - here is a link to a web site that tells you something about her book including a list of legal and illegal foods. Her diet does require you to give up a lot, though.
It also could be the amount of rice being consumed. I have recently learned about the Low Fodmap Diet which does allow the consumption of grains during meals but it does say that the rule of thumb is to not have more than a half of cup to one cup (cooked) per meal. Sometimes that works. Try eating less and see if the same reaction occurs. Also limit the amount of carbohydrates being eaten at the same time. If you are having rice, do not have a starchy vegetable or bread. Only have one carbohydrate during the meal instead.
After posting this question, I have been doing some research on SIBO (Small Intestine Bacteria Overgrowth) and came up with three very interesting links I am going to share.
If you think you may have SIBO, you should see a doctor who can prescribe the correct antibioics for you. SIBO is confirmed by a hydrogen breath test. I have an appointment with my doctor in two weeks and hopefully he can help me with this. But, in the meantime, I have done my research and this is what I found:
•abdominal bloating and distension,
A small number of patients with SIBO have chronic constipation rather than diarrhea. When the overgrowth is severe and prolonged, the bacteria may interfere with the digestion and/or absorption of food and deficiencies of vitamins and minerals may develop. Weight loss also may occur. Patients with SIBO sometimes also report symptoms that are unrelated to the gastrointestinal tract, symptoms such as body aches or fatigue. The symptoms of SIBO tend to be chronic. A typical patient with SIBO can experience symptoms that fluctuate in intensity over months, years, or even decades before the diagnosis is made.
The interesting part of this is the dietary approach to what foods to avoid and what foods are good to eat.
This is where we get into the Low-Fodmap Diet. On this diet, gluten free cereals and gluten free bread are advocated. Also limiting dairy and fruits with excess fructose is part of this diet as well. And most artificial sweetners are a no no.
The links describing the diet are here:
And a great little chart outlining the foods to avoid and those to eat can be found here:
There does seem to be a definite link with gluten free diet and eliminating the symptoms of SIBO.
If you have SIBO (Small Intestine Bacteria Overgrowth) you may have problems with the Honey Nut Chex and Chocolate Chex. With SIBO you also will have a fructose intolerance and should avoid honey (in the Honey Nut Chex) as well as fructose (or corn syrup) which is in the Chocolate Chex.
I have been gluten free now since January - 3 full months - but still have ongoing diarrhea and malabsorbtion symptoms. I have had my endoscopy which visually showed no damage at all as well as a colonoscopy that was clean. I am still awaiting some biopsies from both areas testing for microscopic colitis and celiac disease.
But here is the funny thing. I have been suffering from a sinus infection and was given amoxicillin for it. While taking the amoxcillin, I had no diarrhea at all, no food intolerances and no malabsorbtion. I and could eat anything (although I did not eat anything that was with gluten). But, once I stopped the antibiotics - the symptoms came back again
This leads me to believe that this might be SIBO? Have any of you experienced this?
Maybe you should also get an updated colonoscopy - who knows - maybe that might show up why you are having these recent problems. It is not out of the realm of possibility to have celiac and another form of GI distress - you might want to check it out.