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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About Gwir

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    • Birthday February 12

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    1. Gwir added a post in a topic Waiting On Blood Test   

      We got the results of our tests. Both my son and I got negative results. I haven't gotten the numbers on his, but the results they gave for me were:
      Immunoglobulin: 270
      Transglutaminase IGA: < 20

      The doctors don't seem overly receptive to going forward with an endoscopy based on the results. I am basically asymptomatic at this time despite some issues in my youth, while my son's primary issues are growth and chronic constipation. Last week for example he went nearly 5 days without a bowel movement.

      I know that false negatives are fairly common, but is it realistic for both to test negative if celiac was a cause of our issues? Any thoughts on whether we should go gluten free and see what happens? My son (age 9) is a VERY picky eater. We have discussed already why he had the blood test and what may happen with a gluten free diet. Obviously, he is interested in the potential to get bigger faster instead of being much smaller than everyone else. Can anyone else help with their experiences going gluten free with their children?
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    2. Gwir added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Waiting On Blood Test
      These forums have been a great source of information for me. Similar to some other posters, I just went for screening and in some ways I am hoping for a positive diagnoses even though the thought of going gluten free scares the hell out of me. Here's my story, any and all feedback is welcome.

      I was always the smallest in my class. I had several issues outside of being underweight that I've always thought were completely unrelated. At around 9 or 10, I was told I was lactose intolerant and to cut out dairy. A year or 2 later I spend several days in the hospital with an intestinal obstruction. Doctor's thought I had Crohn's but nothing ever came of that after I was discharged. At 15 I began having seizures. Thought premise was they were probably related to prior undiagnosed concussions. I entered puberty late and remained smaller than most classmates through high school. I did continue to grow through college and I'm a normal ht of 5'9". My seizures went away by my late teens and I no longer have issues with dairy. I would consider myself completely asymptomatic of celiac.

      After reading a lot on the boards, my family history is perhaps more telling. My mother throughout her life had several, again seemingly unrelated, "minor" health issues. She lost most of her hair in her 30's (alopecia). She was later diagnosed with a Thyroid problem, and later still diverticulitis. Everything changed when she was admitted to the hospital with a perforated bowel that became septic after a colonoscopy. She was hospitalized for several weeks after they performed a colostomy. There was a lot of debate among the doctors over the diagnosis, but the only ones that came up were Crohn's and Collitis. I never heard a mention of Celiac. She was readmitted a month later due to futher complications. She was discharged to a rehabiliation clinic after a few weeks. A few weeks later her condition worsened to the point where her intestines essentially disengrated and she passed away. At that time my search to answers led me to Celiac. I didn't put together all the "unrelated" issues. A short time ago, a chance conversation led to the topic of growth homones. My son is below the 5th percentile in ht and wt. Other than being consistantly constipated, he is healthy. Someone told us their son was similar until he got a diagnosis of celiac. After going gluten free he sprouted quickly.

      SOOOO... after that long winded background my question is what should I expect after getting blood results (for both my son and I). Should I push for biopsies if blood work is negative, or chalk it all up to random chance?
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