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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About Judy3

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  • Birthday 09/26/1957

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  • Gender Female
  • Interests Reading, cooking, movies, music of all kinds, walking, hiking, bike riding. Laughter, Soft blankets, fuzzy kitties and the smell of freshly cut wood.
  • Location WI
  1. I have Celiac and I must say I felt better after 3 days on the gluten free diet.. Yes the damage takes much longer to heal but the initial symptoms were better in just 3 days..   So it's not impossible.    My tests all came back negative at first until they did the genetic testing and biopsies.   My doctor told me that there are only two things that can make a person's insides look like raw meat  Cancer and Celiac and at that time he had already done the biopsies for cancer so he knew it wasn't that and was convinced it was Celiac.  The second biopsies and genetic testing proved him right so I have been gluten free since that day (5 yrs now) and never felt better. 
  2. I've been eating them with no issues however, I wanted to bring to your attention some 'conversations' that have been happening in the Celiac world that they may not be consistently gluten free.   General Mills developed a process to take regular oats (not certified gluten free from the farm) and remove the traces of gluten in it to make their product.   Some are saying that one box could be gluten free within the 20 ppm limits and another may not as their testing loads boxes together and takes a mean sample.   I don't know how true this is and General Mills is addressing those concerns as well.. Just want to let you know that in case you have issues.    I don't as I said, I've been eating them a few weeks now with nothing so I'm not sure I believe the hype of the concerns being voiced.      I love Cheerios!!    
  3. I used to feed my cats that all the time.  My male now has diabetes and my female had bladder infections regularly while on it.  Be careful with that stuff!!! 
  4. Chicago

    My favorite restaurant in Chicago is Quartino.. they are an italian restaurant but have an extensive gluten free menu.    Google it for location and menu 
  5. Just my opinion but if the child has the genes AND has gluten intolerance already that is Celiac.
  6. Outback I would trust.. other's not sure.   Mexican food is good when you are in a strange place.    ALWAYS tell the waitstaff that you have Celiac.   I know don't want to broadcast but it will help believe me.    Recently, I've been asked is it a choice or an allergy when asking for gluten free.. I'm always upfront and blunt.   Celiac disease, allergy if you must classify it that way, extremely sick if you don't . please be careful!!    Haven't had a problem with my nice but blunt response.      One local restaurant cook even don's gloves to make my breakfast on Saturday mornings         It's doable - I've been at this 5 yrs and at first it seems daunting but it will get easier.. On your trip good luck.   Some of the places I have eaten at when traveling   Outback, Longhorn Steakhouse, Olive Garden, local or chain Mexican (think corn tortillas) , Indian food (just skip the bread), and if at a diner type it's a crapshoot so be careful there.  Oh and last but not least Red Robin!!! 
  7. Other Food Sensitivities And Timing

    Hang in there, it takes a long time to heal from the damage of Celiac either initially or a glutening.   Sometimes there isn't an answer to why something pops up again.   Just be vigilante with the diet and keep smiling      I know it's tough I'm almost 5 yrs into this and I still have a day here and there where I wonder what the heck is going on...   Not often anymore but still there.   Foods in their natural state is the best bet until you figure it all out.  Some have a sensitivity to corn so maybe lay off the popcorn for a while and try to reintroduce it later...    again hang in there  
  8. I take Omeprezole (prilosec) and I get the generic and have no problems.  I've bought them from various stores Costco, Walmart, Target  etc... and never had a problem 
  9. 6 Years

    I do plan to try them ALL eventually   lol
  10. 6 Years

    I've been gluten free almost 5 yrs now and just this week I was re-tested for all my food allergies Shrimp and seafood, fish, tree nuts and flax and they are ALL GONE!   I was able to eat some almonds last night with no reaction and a tuna sandwich for lunch today!!   I had anaphylactic shock from Shrimp 23 yrs ago so they won't let me eat that on my own yet.  Having a food challenge in July at the allergists office where I will spend the day eating shrimp from small pieces to a full meals worth and he's going to check my vitals along the way and hopefully take that off my list as well.    I'm so excited I've been so limited in the food department for so many years and they believe (no way to prove it really) that my undiagnosed Celiac disease was triggering the severe food allergies.   They did 50 blood tests - all negative and 30 skin tests a month later - all negative. and 20 yrs ago they were positive!!!     I went grocery shopping last night and purchased fish for the first time in 23 years  lol     I ran into an old friend at the store today and she said that I have my 'sparkle' back!!   I've known her for 25 yrs and seen her on and off the last 10 and she said that I looked sick for years and now I look wonderful... made my day.   I feel so much better since going gluten free, I have energy and have my life back!!  Now I get to eat new foods that have been off limits for sooo many years.   New rule though is one new food at a time to re-introduce them so IF I get a reaction I know what's it's from.   It's so hard because there are so many things I wanted to through in my cart!!   I will be patient though.  I did realize that while the tuna sandwich tasted ok at first I probably won't be looking for one again soon I hated the taste  LOL   amazing how 23 yrs of no fish taste makes it nasty.   Hope the tilapia I bought for later in the week is a better experience     My 26 yr old son is a little freaked out by all of this as most of his life fish and nuts were a no no and were never in the house and now he said to watch me eat it is a little nerve wracking for him... Traumatized at 3 yrs old watching his mama get hauled away in a rescue squad.. and he's never taken a bite of fish since then.     Hopefully, we can both get over that!!!     A life time of stomach aches and now it's time for the second lifetime without them  
  11. I don't have the dairy issues but have some exciting news about my food allergies.    I've been allergic to shrimp and fish and nuts for years (23 to be exact) and diagnosed with Celiac almost 5 yrs ago.   I have been gluten free since that day and now my doctor sent me to an allergist for my sneezing etc.. and it turns out that I have nonallergic rhinitis in regard to that but in the process he tested me for the food allergies 20 of them.. both blood tests and skin tests and they all came back negative!!!   So in a month I'm doing a food challenge with shrimp in his office and if I pass I can eat it again!    The last time I ate shrimp I had anaphylactic shock and ended up in the ER via rescue squad.      He said allergy testing has come a long way in 23 yrs but he thinks that I either out grew it or more likely my undiagnosed Celiac disease manifested in a strange way and it 'appeared' that I was allergic to all this stuff...but now that it's healed they are gone..    He said at most I have an intolerance and not a true allergy so it's not life threatening. He did some blood tests yesterday to see if I'm missing an enzyme which could be causing the nut allergy symptoms (numbness in the mouth) when I eat nuts and flax...     I'm very excited about all this!      Wish me luck, I just may have a tuna sandwich for lunch  (on gluten free bread of course  lol) 
  12. Does It Get Better?

    Not sure what to tell you about fast food except its probably not an option for gluten free.    I use Glutino bread and it holds up pretty well for a sandwich when I take it to work doesn't need to be toasted either and that's a plus because most of them do to be palatable.     You have a hectic life so planning is essential as you already know.  Cooking ahead is good so you just have to warm it up... you are on the right track!!    I am also allergic to nuts so I avoid the snack foods too.    I eat fruit and cheese mostly for snacks.   Seems a carb (fruit) and protein and fat (cheese) combined makes it hold off hunger longer     For a grab and go snack you could do rice chex and dried fruit (raisins, cherries etc.. ) in a bag or bowl to eat while you are driving (one handed grab!!)    Just some suggestions from what I do.   Hope you figure it out.. 
  13. Hi  I have all of the above.. Celiac, Arthritis, and Fibro.   My rheumatologist never mentioned a 'Celiac Arthritis' but he did say that I have it 'everywhere' which leads him to believe it's not just normal Arthritis but my Rheumatoid tests came back negative.   Maybe there is something to that.    My Fibro isn't as bad as it used to be since I'm gluten free and aspartame free (that came first) but he said I still have some signs of the Fibro just not like it used to be.    Good luck with all of it.  It's not fun but I feel better than I ever have in my life except for the aches and pains so it's worth it.   I find for the aches and pains simple easy stretches throughout the day help a lot ..  
  14. Cooking With Flour

    Regular wheat flour is banned in my house although it's just my son and I. I have Celiac he doesn't (yet)  The reason is that when you are mixing pancakes, cake, anything really, the dust from the flour can stay in the air as long as 4 hours which inhaled flour is just as bad for a person with Celiac as eating it.  So we buy my son regular bread from the bakery and he has to not double did the knife in butter, peanut butter etc.. I make gluten free baked goods and he likes then as much or better than the regular kind.  Even my friends that are not gluten free ask me to bring cupcakes or cookies to get togethers     So once you've been in this a while it will get easier.  In the meantime, if they want pancakes you can buy a mix that is in a bottle that they just add water or milk to and then it would be contained in the bottle so it may not get as much in the air.   Just a thought.   It is nice that my son is able to do gluten free with me except for his bread and an occasional pack of cookies.  It makes life a lot easier.   He likes brown rice pasta so we're good there.    My older son and family will be here to visit for a week tomorrow and they have the same rules when it comes to cross contamination.  They are vegetarian and I don't sprinkle meat juice on their food       Good luck    Just found this:  The problem is that when you breath it in through your mouth and nose, those particles of flour can become trapped in your saliva and mucus and then be swallowed.  At that point it enters your digestive system.  The Gluten Intolerance Group says that flour can hang in the air up to 24 hours. That’s a long time. 
  15. My adult son lives with me and he does not have to be gluten free.   He eats gluten free at home except for breads so that he doesn't cross contaminate me and we eat the same meals we had before basically.  His rules for bread are that he has to use a plate and not get crumbs in the butter, jam etc...   You could get your own containers and don't use community condiments.    I don't know how many people you have to feed but it would be easier if everyone did it at home at least for pasta.   Pizza you will be ok with different crusts but be sure you use your own pan.. don't cook them together.    I bake a lot and it's all gluten free and he says he can't tell the difference.  When he is out away from me, he eats what he wants and even when we go out together to a restaurant he gets his own things.      As for the chicken with broth, be careful with any add ins to food.  In the US they are required by law to state wheat but not barley or rye.   It's getting easier to find things that are gluten free in the grocery store and as you probably already know many foods are naturally gluten free.   Meat (not breaded and no gravy) but seasoned well to taste good, fruit, veggies, cheese, milk, yogurt (beware with yogurt of add ins), ice cream...    Mexican food has become my favorite 'out to eat' venue as most everything is ok for me except flour tortillas.  Never got sick yet in  all these years.     I had the same experience, phone call , you have celiac, eat gluten free, see you in 3 months.. and after that 3 month appt nothing.  Never saw the gastro doc again.     Oh forgot about the dietician he sent me to, and he showed up for the appt as well to learn about it and I knew more than she did.. the world wide web is a good teacher