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About plumbago

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    Health, mental health, gardening, organic, recycling, better labeling of GF foods
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    Washington, DC

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  1. Yes, GFinDC you've got the gyst of what I am after. If I am reading your response correctly then, you think that inflammation in the gut caused by gluten ingestion is enough to trigger diarrhea, quite apart from the state of one's mucosa? That would be good news for me. More information on this inflammation reaction in the gut with gluten ingestion is precisely what I am after, but cannot seem to find. Because, as stated, as far as I know, D is mostly if not only, caused by flattened villi. OTOH, how interesting to hear from you, cycling lady, that you had flattened villi and no D! RMI, the link is quite depressing. Many appear not to have healed mucosas after a gluten-free diet. A repeat endoscopy is what is so clearly needed by many of us, but honestly I am a little wary of the risks.
  2. Your test results, to me, seem to indicate that you do not have celiac disease. (Everything is within normal levels.) And, your total IgA is high. Many people with celiac disease have low total IgA levels (10-15 times more frequently than people in the general population). The total IgA is conducted because about 3% of people are IgA deficient. If you have a very low total IgA, that can invalidate the three blood tests that rely on your IgA levels. Plumbago
  3. Thank you for responding. Yes, I understand not to eat gluten. I suppose, I wasn’t clear. I understand that there are reasons for D other than celiac disease. What I am asking is, within the context of celiac disease, is there another reason apart from villi blunting for D? My suspicion is there is not. In which case, if, after being gluten-free for six years, I get D when I accidentally ingest gluten, it is likely a sign that my SI/duodenum has not healed, which would be a major bummer. That’s basically the gyst of and background for my question.
  4. If after having been gluten-free for several years, you get D after ingesting gluten, does that mean you have an unhealed gut? In other words, what is the pathogenesis of the D reaction in celiac disease – or better put: is D only a symptom of celiac disease when the villi are flattened? If true, that means after 6 years of being 99.5% compliant, my villi still are not healed!!!??? As Peter Greene says, “The system’s first line of defense is an intact mucosa [small intestines].” Plumbago
  5. I don't have the soap with me now so I can't check the label. Looking on line - nothing.
  6. RMJ - can you give a link about what you said about the antibodies going down after three weeks? And, which antibodies? Thanks!
  7. My favorite is/was Roger and Gallet, but I think that it might contain gluten (hard to find out). Does anyone have recommendations? Thanks!
  8. As of November 2015, there are three completely gluten-free restaurants in Washington, DC, more depending upon how you count. The Little Beet is a new gluten-free restaurant. 18th and Connecticut Ave NW. Shophouse Kitchen has four locations around the city. It is Southeast Asian cooking. Rise is a gluten-free bakery in the northwest neighborhood of Adams Morgan. They sold soups and heartier fare when they opened in November 2014, but no longer do. I give this bakery a B. I haven't been to either the Little Beet or Shophouse, but am delighted we have these completely gluten-free options in DC. It's a good thing.
  9. Hello, Good catch. I've seen the Celiac genes written the way you wrote but I've also seen them referred to differently (HLA-DQA1 and HLA-DQB1; or HLA DQ2 and HLA DQ8), but I think the way I wrote it was wrong. I don't know enough about genetics to articulate what the difference is in the different way it's referred to, but as I like to say, it's worth more research. (Also, I am now not sure you have to test positive for both genes as I mentioned originally, I think it's just one.) Thanks for bringing that up. It's good to have accuracy in a thread. Plumbago
  10. Just to clarify, I was originally writing about Rudi's. (Just so we're all on the same page.) But I must admit to being surprised that people are buying what I consider to be fairly standard, unspectacular gluten-free bread (Rudis, Udis for example) at such high prices - that Target price is nuts. Unless things have changed in the last week, the most I ever pay for Udis or Rudis is $6, and that's with tax. Looks like they added bamboo for the extra fiber? Are you referring to Rudis? If so, well then I guess it's bamboo. Is that bad? Plumbago
  11. I completely skipped over the wheat allergy. For some people, it is a life-threatening event that is true. (I see she is not scheduled for endoscopy but rather colonoscopy and gastroscopy. Maybe the gastroscopy is what I would normally call an endoscopy. In any case, biopsies should be taken if testing for celiac disease.) Even if I had a wheat allergy, I'd still want to know if I had celiac disease, for sure. I've known people who tested positive for wheat allergy but eventually de-sensitized to it and resumed eating it. But yeah, get the allergy test for wheat.
  12. You certainly have celiac disease symptoms. Yes, you will have to eat gluten every day for 2 weeks before the endoscopy. The link you provided after that discusses the gluten challenge (serology), not how to eat before an endoscopy to check for celiac disease. [EDIT: Just re-read it. It does say to eat gluten 2 weeks prior to an endoscopy] The last sentence recommends moving right to an endoscopy if reaction to gluten is severe. If I were this person, I would consider insisting on bumping up the date of my endoscopy for health reasons. Otherwise, I would be interested in hearing from others - especially medical professionals working on autoimmune diseases such as celiac disease - on this, because my tendency is to think that 3-5 weeks out from an endoscopy, the small intestine would probably not heal in such a short amount of time if the patient is not eating gluten. It sounds like she has some quite serious immediate health issues. While I understand the need to continue consuming gluten before tests, I always thought that was before serology tests and perhaps for the endoscopy it is less crucial to be consuming gluten, again especially if there are some immediate health issues. It is worth more research, that is for sure. Plumbago
  13. Perhaps consider making the house gluten-free for simplicity. I was thinking this myself while reading the post.
  14. Manasota, I am curious to know more about your diagnosis. Were you diagnosed via a bone scan? Did you scrutinize and research your results? Have you thought about a second opinion? As for the first questioner, I don't know the answer, and would need to do at least a couple of hours of research to understand more about osteoporosis caused by celiac disease. It's a great question.
  15. I recently bought this bread for the first time: Rudis gluten free double fiber sandwich bread. I am posting a comment because it stood out from the rest of the gluten-free breads I've purchased in the past. I know there are a few boutique bakeries around the country (let's face it, mainly on the left and right coasts) that bake excellent gluten-free bread. But the day I start shelling out $10 plus for a loaf of bread is the day you know I've won the $26 million lottery. It just ain't gonna happen. But this Rudis bread stood out based not on taste - which was just regular - but on its texture. Honestly I didn't think it was possible to have chewy gluten-free bread. I'm not sure how they did it, but they did! Like most gluten-free breads, you can find it in the frozen food aisle. Not to re-open this can of worms, but like many other gluten-free breads, this particular kind does not fortify with iron or folate, sadly. To recap: taste - regular, normal, nothing special. Texture - very special! Plumbago