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MusicMama added a topic in Celiac Disease - Coping WithJust Starting This JourneyI was told this week that it looks like my 14 yo dd has celiacs. She is scheduled for an endoscopy/biopsy on the 30th. The doc was very cold and offered no solutions for me other than, "It looks at this point like it's Celiac's Disease. She can no longer tolerate any glutens." And that was it. I was on my own. I thought that I would just have to change our diet to gluten-free. Um - yeah - no so fast, Mama! Trial and error made me realize that I need to find a few foods she can tolerate until she heals. At this point we are at bananas, rice and chicken. We tried eggs and it takes 3 hours before her pains go away.
I've been scouring this site and I'm thankful for all the useful info I've found. Any other tips for the newly diagnosed and how I can best help her would be greatly appreciated. She and I cleaned out a cupboard yesterday and made it hers. We have begun shopping for 'her food' even though it'll be weeks before she is probably able to eat any of it. She's tired of feeling sick all the time. It was on Oct. 25th that the 'switch' changed in her life. At least now we have a direction to go...
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