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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About Lunabell

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      Community Member
    • Birthday September 26

    Profile Information

    • Gender Female
    • Interests Mom of three girls, wife, keeper of the ark (two dogs, two cats, two bunnies), wanna-be photographer...stress the wanna- be part, 30 something student...again.

    Lunabell's Activity

    1. Lunabell added a topic in Celiac Disease - Friends and Loved Ones of Celiacs   

      What Advice Should I Give My Husband?
      Our youngest daughter was diagnosed with Celiac back in December. Because of that my husband took a long hard look at his lifelong stomach issues and decided to go fully gluten-free two weeks ago. All of his issue have resolved, he looks healthier, and is in a much better mood. I had no idea that some of the problems in our marriage were actually caused by gluten!

      So now what should he do? After awhile he will not test positive for Celiac, but I doubt any doctor will convince him to go back to how he was feeling before, just for a test. Should he just live life gluten free, enjoy the change, and just tell his doctor what is going on?
      • 2 replies
    2. Lunabell added a post in a topic Process For 4 Year Old?   

      I am considering getting the genetic testing done for my 6 year old. It would take a team to hold her down for a blood draw and at this point in her life, she has zero symptoms. Getting the genetic test is a compromise. It is painless for her and will let us know how much we should worry about testing her.

      I did have my 10 year old tested. She is disabled and cannot talk, nor does she show pain until it is dire. She has always had some digestive issues, so we decided we needed to know for sure. She was negative, but we will keep an eye on her.
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    3. Lunabell added a post in a topic At What Age Was Your Child/children Diagnosed Celiac?   

      My daughter was almost 5. The doctor did consider testing her as a baby because she was so tiny. I wish I had listened to him, though aside from reflux, she was otherwise fine. The reflux didn't raise alarm bells for me at the time, since her older sister also had it. Her sister has since tested negative.
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    4. Lunabell added a post in a topic Ignore Blood Test, If Biopsy Negative?   

      Back after a computer crash! I guess it was good that I picked something else than a new laptop for Christmas because I ended with both!

      This question is a moot point. Laura's biopsies came back positive also. The nurse who called thought she was dropping a bomb on me. She was so confused when she found out we were already up and running on a gluten-free diet. Things had been going very well for Laura until she traded pretzels the other day in school. If there had been any ambiguity about her testing, it was pretty obvious the least couple of days that gluten makes her life miserable. Poor kid. I bet she won't trade food again anytime soon.
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    5. Lunabell added a post in a topic Ignore Blood Test, If Biopsy Negative?   

      I am not going to ignore the positive changes that I have seen in Laura. It just seemed like very cavalier advice about something that is very serious. Thanks for all of the input. I guess I hoped a GI would take this more seriously. I am glad he is not our regular doctor.
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    6. Lunabell added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Ignore Blood Test, If Biopsy Negative?
      Laura had her endo/biopsy yesterday. Her dr's partner did it since we wanted to sneak it in before the end of year. We met our deductible ages ago.

      We discussed what to do if the biopsy came back negative. He said that he tells his patients to ignore the blood work if the biopsy is negative. Does this sound like good advice?

      Laura has not had anything containing gluten since December 10th. Her GI knew that I was going to that after her last horrendous reaction to eating gluten. I felt it was child abuse to knowingly cause her such pain. The dr was fine with that and felt she wouldn't completely heal in 19 days.

      Since Laura went gluten-free, she has not had a single stomach ache, she is running around like mad with bounds of energy and even weathered a cold without needing to be nebbed. It seems to me that it would be stupid to ignore a positive blood test and observed improvement on a gluten-free diet if the biopsy comes back negative.

      If we do have a negative biopsy, I will be talking this over with my daughter's actual GI. I am not sure I should trust this other dr's advice.
      • 13 replies
    7. Lunabell added a post in a topic How Gluten Friendly Is Your State?   

      I am in a Twin Cities burb in MN. So far, it has been very gluten friendly. I suspect that is because we are in a metro area. I wonder how it will be next summer when we are at the cabin. It is way "up north" and not close to any big cities. I suspect the internet will be my best friend for keeping stocked up on some items.
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    8. Lunabell added a post in a topic Celiac And Religion   

      Transubstantiation isn't something that any RC church should not be unified on. It is one of the cornerstones of the church's teachings and one of the key differences between the RC church and protestant churches.

      As an ex-Catholic, I was thinking about this just other day and wondered how communion was handled. It is an interesting discussion.
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    9. Lunabell added a post in a topic gluten-free Girl And The Chef-Cookbook   

      I ran right out and bought it when my daughter's blood test came back positive. Then, I actually looked inside. While it looks like it has very tasty recipes, it didn't seem there was much I would make for regular family cooking.

      I put it aside, wrapped it pretty paper, and gave it to my foodie mom for Christmas. It was part of a "Welcome to our new world" present that also included a cookie jar full of delicious homemade gluten-free cookies. She loved the book, so it will get good use after all.
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    10. Lunabell added a post in a topic One In All In?   

      We are 99% gluten free in our house, even though it is only the 4 year old that has been diagnosed currently.

      It came down to what was easier for me to handle. Because my 6 year old really likes her bread, we keep a loaf of gluten bread in the house for her sandwiches. Even making school lunches takes longer and more thought to keep Laura's from getting cross contaminated. The less gluten we have in the house, the fewer worries we have.
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    11. Lunabell added a post in a topic The What's For Dinner Tonight Chat   

      Today we had a Christmas brunch. I made pumpkin muffins from a recipe that I found here.

      We also had a wonderful butternut squash soup, mushroom, onion and bacon sorta frittatta, wild rice salad and some cantaloupe. It was delicious!
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    12. Lunabell added a post in a topic Looking For Store-Bought gluten-free Shampoo And Conditioner   

      I use either a whole body bar from Sun Leaf Naturals, though they may be a local only company or a Desert Essence shampoo. I find the natural products work much better on my hair. Both are gluten free.

      I use the body bar on my daughter, who is the one who actually needs the gluten free stuff. I keep her bath products gluten free because you never know what a kid is going to do with the bath water when you have your back turned for a sec.
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    13. Lunabell added a post in a topic Poll: gluten-free Diet - Easy Or Hard   

      Right now, I am finding it easy because it is so new. It is all a novelty and we are having fun making new discoveries. Plus, my daughter is only 4, so it relatively easy to control available foods. I don't know that it will be as easy for her as she moves out in the world and potentially feels different.

      I have a feeling that once the novelty wears off and we all get through our testing that reality will sink in. I think it will probably get harder before it gets easier again.
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    14. Lunabell added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Is This Possible?
      My youngest has all but been diagnosed with celiac. Her blood tests were positive and her observed reactions are pretty apparent. Just waiting to do the endo/biopsy for the doctor's official seal.

      We are gluten free in our home. I told the doctor that I was going to go ahead and switch her over because continuing to feed her gluten when it causes her such pain was child abuse, in my opinion. She agreed and didn't think she would heal fully by December 29th.

      I was completely gluten free for about 3 days since I didn't eat anything from outside the house. Last night I had a couple of beers. I woke up in the middle of the nights totally bloated and in a lot of pain. I called it a "corn-lite" experience because it reminded of what it felt like when I would eat corn when I was pregnant with my middle daughter. I still don't eat corn to this day because of how awful I felt.

      I am going to get my blood work done in January,since I do have a history of IBS-y like issues. I just don't have time before the holidays. I have been trying to keep gluten in my diet so that the testing will be accurate. I just don't bring it into the house,

      If someone has celiac, is it possible to have a more extreme reaction after being gluten free for only 3 days?
      • 3 replies
    15. Lunabell added a post in a topic Bloodwork After Diagnosis?   

      My daughter's GI said that she would do follow up blood work in a year. She said that she doesn't expect the numbers to be normal by then, but that they should be much better. Then we will do it again in 2 years and that she expects it to be normal. Like GFinDC said, she is doing it to be sure that the diet is working.

      I assume that she will give me the orders and that I can get the blood drawn at our ped. That is what we do with my oldest's trileptal levels when her neuro orders them.
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