angelikness replied to naiiad's topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)Naiiad, I know what your going through. At 24 my extremely thick hair started falling out like CRAZY. I knew something was very wrong. My hair never fell out before. I might lose a couple in my hairbrush, but nothing more. I'm now 29 and my hair is still falling out. Thank heavens I had a lot to begin with or I would be bald. I'm getting there though. I've struggled watching my hair grow thinner and thinner. I saw dermatologists and they said it was either stress (and should let up soon) or it was genetic and I'd lose most of it. NICE! Well, it's still falling out almost 2 years since last dermatologist appt. My ponytail used to be about 2.5" across when gathered. It is now the size of a nickel. I had psoriasis as a child that mysteriously went away and it came back just last year (about 20 years later). I've tried Nioxin shampoos and Rogaine. I've tried soaking my head in herbal teas. I've even bought all the herbs that were supposed to be for hair loss and encapsulated them, taking them daily. Nothing helped. I know your anxiety and fear over this. I really do understand. It is not easy to stand by helplessly and watch as you lose your hair. It's been a difficult road. My oldest daughter was just diagnosed with gluten sensitivities and I get tested next week. We did go gluten-free for one month several months (to see if we noticed any health improvements) ago and my psoriasis was 100% gone on day 2!! At about week 3 I ate some wheat thins purposfully to see if I'd have a reaction and ..... nothing. I remained on a strict gluten-free diet. But, a week later my psoriasis came back like I had never seen it. We'll be going gluten-free for good now and I pray my hair stops falling out after a few weeks. You REALLY do have to be 100% with it or your wasting your time and effort. There are things you wouldn't even think of that contain gluten like shampoos, toothpaste, and even the stickies on envelopes! Call the manufacturer #'s on the back of the bottles and ask them if it is gluten-free. Cecelia's Marketplace sells gluten shopping guides that are AWESOME. They made our month of gluten-free so much easier. Even meats can have gluten in them. Turkies are sometimes put into broth which contains gluten. You can't use anything that gluten has touched. For example, if your gluten-free peanut butter has had a knife dipped into it that touched regular bread...the peanut butter is contaminated. We buy 2 and write gluten-free on top of lid in marker so everyone knows not to contaminate it. You definetley need your own toaster. A crumb of gluten in your system can be just as bad as a loaf of bread to your body.
Thank you for this. I just signed up with an account to reply to this. Was searching for a connection between Celiac and back issues. I've been suffering since age 20 to present with severe back pain and spasms that leave me unable to move. Last episode took a year to recover from, even with therapy. I'd never heard of ankylosing spondylitis until accidently happening upon your post. Good info. Thanks so much.