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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About sforce

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  1. Oh man! A big ole lead cloud! I'm tired right now because I worked all day, but watching my son act more and more cheerful as each day goes by makes my heart sing.
  2. The doctor's office called and said my results were 'just fine'. She's mailing them to me, though. I'm not surprised the tests were negative, and frankly, I don't really care. I went gluten free on my birthday, the day I got tested [01/04/2011] and got the flu a couple of days later. Three days ago, which was about four days after going gluten free, and the day I finally recovered from the flu all the way, I had ENERGY for the first time since last October [when I went gluten free for a couple of weeks without realizing it]. I was afraid it was a fluke, but yesterday, I had energy [i was tired in the afternoon, though, 'cause I was averaging 5 hours of sleep for a few nights], and today, I am cleaning my house and making my kids do their chores because I have enough energy to enforce the rules AND do work! Oh yeah, my kids are gluten free, too, 'cause I got rid of everything with gluten [except for hubby's shelf] and my ten year old son, who has been depressed like I was since he was tiny [maybe six or seven?] told me that he feels happier since going gluten free. I can't even tell you how incredible that makes me feel. He was starting to scare me a little, and I was trying this as a last resort before counseling. Words simply cannot describe how I feel right now, but those of you who have gone gluten free and gotten better know exactly what I'm talking about. Thank you so much for your support!
  3. Yeah, I have no doubt that I'm at the very least sensitive or intolerant to gluten. I ransacked my kitchen and got rid of all my gluten-y foods except for one shelf that belongs to my husband [the very top shelf of one of the cabinets where nobody can reach...I figure if he's going to eat that crap in my house, he can work for it. Bwahaahaa!!!] I was up all night the night after I cleaned out my kitchen with a killer flu bug and I'm just now human enough to type. That gave me a couple of days' worth of clear liquids and a LOT of sleep. You'll never guess what I dreamed about, though. The first one I really remember is that I dreamed my husband was bringing stuff like raisin bran and mac-n-cheese into the house and not putting it on 'his' shelf, so I kept eating the gluteny stuff by mistake. I was yelling at him and telling him I didn't care if the shelf was high, he could get a freakin' chair and stick the stuff up there where it goes so I wouldn't keep eating it. It was crazy, 'cause in the dream, I was really hungry [probably true, since I haven't had any solid food in about two days] so I kept eating the first thing that looked good, and then I'd realize it had gluten in it! In the second one, I dreamed that we were staying at a friend's house, and in the dream, I was confused and thought we were moving in, so I went through all of her cabinets and threw out all of the gluten-containing foods. No more cream of mushroom or hot dog buns 'cause I chucked 'em. Then in the dream, they came home, and I realized that we weren't moving in, but were just staying for a visit, so I'd thrown away most of her food, and she was trying to find something to feed her kids, but couldn't, because most of it was in the dump. The dream ended with me being really embarrassed and offering to give her some money to replace the stuff I'd thrown away, and trying to get my husband and kids rounded up so we could leave as quickly as possible. I'm still a little embarrassed I threw away a bunch of food that didn't belong to me...even if it WAS a dream. Apparently, the flu does strange things to my mind.
  4. My doctor ended up ordering the Anti-Gliadin Antibody [a, b whatever that means...maybe IgG and IgA?] and the total serum IgA. At least we'll know if I'm making antibodies at all. I won't hear anything until the first of next week because she's going to be out of the office again until Monday, but I went ahead and stopped eating gluten yesterday. I figure a week shouldn't screw up my results if they're positive and she decided to do more testing. Going from gluten-free back to eating gluten was a freaking nightmare. I don't want to have to do that again. Ever. I'm not sure I'm desperate enough for a diagnosis to knowingly make myself sick again, you know? I feel absolutely awful today, but my lowgrade fever is going down [it was running 99.6 the whole time I was eating gluten again, which isn't a high fever, but it is above normal for me]. I think the thing that kinda slapped me hard was that I got really depressed, really fast. I've struggled with depression since I was about six [way back before they knew kids could even have depression so nothing was ever done]. I hate being so angry and sad and helpless to get out of it. That was something I noticed this last time I went gluten free was that I was just happy and content for no reason. That's such a rare feeling for me, and this angry person I've become in the past couple of weeks must go! Thank you so much for your support and for listening to me whine the other day. I can't even tell you how much it means to me to have found this forum. I'm looking forward to getting to know you! Shelbi
  5. Thank you for taking the time to answer me. I know you guys get tons of questions each day, and the fact that someone answers almost every one is really amazing. I've had my thyroid checked several times since my symptoms started getting really bad, and they've always come back within 'normal' range, which is so large that really it kinda means nothing. I called my doctor today, and her nurse [who is always very kind and has always listened to me ramble on the phone before today] told me the 'best' way to test for celiac is scope and biopsy, then she said there were blood tests that might help diagnose [and mentioned Anti-Gliadin IgA]. I told her about the celiac panel Mushroom listed on another post the other day, and she just said she'd talk to the doctor and see what she wanted to do. I even explained why total serum IgA was important, and she just repeated that she'd talk to the tomorrow, I go in to get God only knows which tests and just hope something comes back positive. I feel a little crazy, because I actually hope it is Celiac. At least then I'll have a cause for all this crap I've been dealing with and a way to fix it [barring permanent damage]. So much of this is so freaking random that if I had something to treat every symptoms I have, I'd be downing 30 pills a day. I've had a fibro diagnosis for a few years now, and what I've learned is that it's complete trial and error to treat. You just keep trying random meds to see if they help. No one knows what causes it, or even how it works, so there's no real treatment. Frankly, I don't have enough energy to go back to the doctor every month or two and keep trying to find something else that might help. Celiac isn't fun, I know, and gluten is in just about everything, but at least I'll know what my enemy is and I can fight it. I'm just so incredibly tired of watching myself slowly becoming more and more sick and being utterly helpless to do anything about it. Sheesh. I'm usually not such a whiner. I was just really bummed when I got off the phone with the nurse today. They're usually great about helping me out with whatever I need, and I felt like I got the brush off. Hopefully she wrote down the list I gave her and I'll get a nice surprise when they start filling vials tomorrow. Thanks again for all your help, and for listening to me whine a little.
  6. I'm actually nervous about writing this, because I can't seem to be coherent anymore. This is getting ridiculous. In October, I started a med called Savella for fibromyalgia. My pain went down to almost nothing, but I started having serious problems with D and nausea, plus my heart rate and blood pressure went up. I accidentally went gluten free close to the beginning of my trial with Savella. The D stayed, but while I was on a low-carb diet [fitness program] for two weeks, my energy started to increase a lot. I thought it was the Savella, but once I started back on a regular diet, my energy level dropped off to nothing again. I finally had to stop the Savella because of side effects, but the D stayed even after my heart related symptoms went away. I'd been researching Celiac by this point, and decided to go gluten free on purpose. The D was gone within two days, but my energy didn't get better. On December 23rd, after doing more research [here...have I mentioned that you guys are wonderful?] I decided to start back on gluten in the hopes of getting my antibodies up if I'm making them. I'm currently waiting to set up an appointment with my doctor to have a celiac panel done. Here's my question, though [sorry if I'm rambling] My symptoms have multiplied since going back on gluten. Can a two week gluten-free trial cause such a weird reaction? My temperature has been at 99.6 since I started back on gluten. Normal for me is in the 98 range, but usually below 98.6. My heart rate has been wonky [a little high, lots of palpitations, and it feels like it's beating 'hard' right after I eat. Usually lasts a couple of hours]. The D came back within a week or so, and I've gotten back to having to go 5-6 times a day. The thing that's driving me nuts, though, is I can't type anymore [ridiculous I've forgotten where the letters are] and yesterday, I was measuring my kids' weight and height, and in the time it took me to measure them, walk four feet to my desk, and write down the numbers, I'd forgotten what the measurement was! I had to walk back and forth from the wall to my desk three or four times for each number. I've noticed that my ability to remember stuff has gotten a lot worse since I was in my late teens to early 20s, but this is a new low. I used to have a near perfect memory, and could memorize an entire page in about 15 minutes. Also, I remembered [miraculously] that about five years ago, I had another bout of unexplained, chronic D that lasted three or four months and went away on its own. Can Celiac cause GI symptoms and then it just stops after a period of time? My doctor never did any blood work the first time [he was old school] so I have no idea what caused it, and I don't remember changing anything diet-wise at that time, but I do know that after that, I started losing weight without trying. I thought I was doing something different by chewing my food thoroughly, but I lost 30 pounds without doing any exercise. It took about six months to lose the weight, and I got down to the weight I wanted and then stopped losing, so maybe I did cause that by eating differently, but part of me wonders if it was gluten intolerance. I feel like absolute dog poo. Can't think, can't eat [nausea is back, too], can't leave the house because of D [immodium helps some with that, though] muscle pain is out of control, and no matter what meds I take, my temp stays at 99.5-99.6. I'm cold and exhausted and depressed and grumpy, which is not fun since I have three kids and a quadriplegic brother to take care of. Oh yeah, I have a fever blister that seems to be trying to conquer my entire chin, itchy skin [but no blisters that I can see. When I scratch, hives seem to pop up, but they don't stay...there are some bumps, but I can't tell if they're from scratching or just coming on their own]. Can two weeks gluten free cause symptoms to get this out of hand? I'm trying to hang on for the few days that are left until I can get tested, but if this is really what's going on, I'm really REALLY beginning to understand why so many of you refuse to go back to gluten no matter what. I plan on going gluten free regardless of my test results, because I know it will more than likely take care of my D. I have another question about the memory loss, though. Can Celiac cause it, first of all, and if it can, is it possible for my memory recover? I can't even begin to tell you just how much I miss my brain. Thanks for reading, and for any help you might have to offer.
  7. I came up with a couple... My kids are bonkers There's never a dull moment Chaos reigns, it's great. A reinvention Finally found an answer It's time to take charge. Hmph. Well, I tried. Heehee.
  8. AMEN! I can't even tell you how happy I am to have found this place. Thank you so much to all of you who take the time to read and respond to people on here. You will never know just how much help you've been. Blessings and excellent health to you all!
  9. Hang in there. I had a horrible bout of diarrhea that lasted over three months, and I ate pepto, immodium, and dramamine [for nausea...there's a daytime version, too, active ingredient is Meclizine, I think. It's supposed to make you less drowsy] like they were going out of style. Those helped me function. I also ate yogurt and stuck to a BRAT diet [bananas, rice, applesauce, toast...which will help you gluten yourself until you get tested] with lots of clear liquids [gatorade, broth, sprite...regular, not diet for calories, etc.]. My brother is on a liquid diet and has nothing but Ensure, and I drank quite a bit of that, too. It's gluten free, though, so you'll have to get gluten somewhere else, and doesn't taste bad to me, but some people hate it]. I'm right where you're at, feeling awful and knowing what will help but having to wait until I can get tested. Not much fun, but I suspect you'll find LOTS of support on this board. I'm sorry your mom doesn't get it. That makes it extremely difficult. {{{hugs}}}
  10. Hi there, This may actually be a bad time for me to write this since I just ate a big ole gluteny sandwich and feel my ability to think slipping away. Bleck. I actually first started doing research about Celiac a few months ago for my brother. He has Cerebral Palsy, and was diagnosed with diverticulosis after losing four units of blood one weekend. His CP is affecting him more and more as he gets older, and I had to change his diet to nothing but Ensure about a year ago. He hasn't had any problems with the diverticulosis since switching [Ensure and the cheap stuff is gluten free...but y'all probably knew that. ] Anyway, as I read about it, I realized that I have had a lot of the symptoms, too. I didn't want to try the gluten free diet because it sounded like a royal pain in the butt, so I spent some time in denial and continued trying to figure out a way to alleviate my own symptoms. Here's a list of my symptoms, starting from childhood. I never had much energy growing up. Didn't like to go outside or run. Couldn't handle extreme temperatures. I was always the slowest runner in my class. As in, everyone would be finished running lines and I had another entire length [or two] to run. I just didn't have enough energy to make myself go faster, you know? I always tended toward constipation. Couldn't concentrate on school work. I daydreamed a lot. Major bags under my eyes. I always felt and looked exhausted. Was always underweight. I'm average height, though. Once I started my period, they were always irregular and extremely heavy and painful. Fast forward to about age 20. Started having constant muscle aches [in addition to the other stuff] When I got pregnant for the first time, I had horrible nausea and vomiting, plus my heart rate went through the roof. At one point, before they finally decided to put me on medicine, it was running 160 beats per minute with spikes up to 180 when I was stressed from having to deal with stupid doctors. No idea if that's a gluten thing, but I've noticed that my heart rate goes up after I've eaten a lot of gluten now [not pregnant right now, just getting old]. I never had any miscarriages that I know of, and I've been blessed with three kids, but during the time I was having them, I would average two periods a year. Some doctor somewhere finally diagnosed me with fibromyalgia about twelve years ago, right after my first child was born. A few years ago, I started having a lot of joint pain. Went to a rheumatologist and tested for RA. Negative [i've never yet had a blood test that was abnormal. The muscle pains increased to the point where I feel like I've got a killer case of the flu all the time, and the joint pains come and go, but it's usually my fingers, wrists, elbows, knees, ankles and toes on both sides and it lasts a week or two at a time. What finally made me bite the bullet and accept that I might be dealing with gluten intolerance is when I mysteriously started feeling better in October 2010. I had started the new fibro drug, Savella, and my husband and I decided to start a fitness program. The first two weeks of the program were an induction of sorts, and during that time, we went extremely low-carb. I thought it was the new medicine that was helping me so much. I had energy for the first time in years! The downside was, the low-carb diet made me so freakin' hungry I was eating every 1.5-2 hours. And I was starving! Low carb is supposed to curb your appetite, and there I was, eating everything I could get my hands on that was within my diet parameters. I finally started eating other stuff because the hunger was driving me nuts, and it wasn't long before my energy started slipping away again. I ended up having to stop the Savella because I thought it was causing an increase in my blood pressure and heart rate [this was after I'd gone back to a regular diet] and I was having a LOT of problems with the dreaded D. To the point I couldn't leave the house. That, plus nausea that wouldn't go away...I finally stopped it. Some of my symptoms lessened after I stopped the meds, but the D didn't go anywhere. That's when I decided to try the GFD on purpose. Within two days, my D was gone. I didn't do a very good job staying gluten free during that time, because we ate out a lot and I ended up getting glutened about every three days or so. Then I started reading on here, and decided that if I was going to be tested, I needed to start eating gluten again before I screwed up my bloodwork, [on the off chance that I'm actually going to show positive. I have my doubts, just becuase it seems to be my lot in life never to get a concrete, paper documented diagnosis for anything. They never figured out why my heart rate went up when I was pregnant, even after being tested for almost everything under the sun...but I had the tachycardia for all three pregnancies]. In spite of knowing my perverse tendency for having normal blood tests, I do have three kids, all of whom exhibit symptoms that could be either Celiac or gluten intolerance, and both of my parents have symptoms as well [in fact, I practically don't have a family member on the planet who doesn't have SOME kind of undiagnosable, off the wall, yummy weirdness of autoimmunity going on somewhere...and no one's ever been tested for Celiac, let alone diagnosed]. So, after two weeks of being gluten free, and noticing an improvement in spite of all the accidental glutening that happened, I decided that I needed to start eating it again for blood test purposes. Been miserable ever since. Bleck. My doctor has been sick this week, but come Monday, I'm calling her to see if she'll run a Celiac panel. I probably won't mess with the biopsy, regardless. If it wasn't for my family, I'd just make us all gluten free and call it good, but if we do have Celiac, they need to know so they're armed with the knowledge when they leave home. Not only that, but my parents won't even consider it unless I have a concrete diagnosis. If I test negative, I'm going to make my house gluten-free anyway, and I'm going to try my kids on it and see if their symptoms improve, too. I won't let the piece of paper stop me from feeling better. I just feel like if I can get a diagnosis, I can tell my family that we have known Celiac in our family now, and they should get tested. That's my plan, anyway Does this sound reasonable to you? I know I'm sensitive to gluten at the very least, but now, after eating my sandwich an hour ago, I'm feeling really yucky, and I start to wonder if it's worth making myself sick on purpose. It should only be for a week or two, but man. This sucks. Sorry this is so long. I'm really glad to have stumbled upon this forum. Every time I've googled something related to Celiac disease, something from here pops up within the first ten results. You guys help people without even realizing it. Thank you for reading!