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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About Mattie-Jack

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  1. My kids were bed wetters - daily. I have one that is 9. Every day. Within a week of cutting out gluten it stopped. After researching, it turns out that many people that are diagnosed with overactive bladder are actually having side effects from gluten. Once the gluten is removed from the diet, the overactive bladder stops. It's just one of those things.
  2. In a nutshell, I have 4 children and they are all on gluten-free diets. As a result, I am on a very limited gluten diet. I've started thinking that I'd like to have a Celiac panel to determine if I am at the minimum gluten sensitive. Basically, I'd like to know if anyone knows how much gluten is necessary to make the blood work accurate? If I go to my physician and ask for the tests to be run, how much and how long should I eat gluten?
  3. Dallas Pediatrician Or General Practioner

    I'm looking for the same thing for a 2nd opinion. I'm in DFW. We currently visit Kendall Brown, MD with Digestive Health Associates. He has offices in both Plano and Dallas. A friend was told that she should see Dr. Eric Argao with the same group. She was told that he was very aware of recent research. These doctors are easy to see and I can say that Dr. Brown listens to my concerns. I still feel, however, that I'm unable to get him to fully understand or listen to my concerns. I'd love to hear if you get any additional referrals. I'm willing to travel if necessary.
  4. 7 Year Old Test Results

    Good point! I've tried to make it a habit to have the doctor provide me a copy of lab results so I can look at them myself. Perhaps that is a good idea here.
  5. 7 Year Old Test Results

    Here are some ranges if this helps: TTG antibody, IGA : normal 5-8 Endomysial Antibody Screen (IGA): positive/negative TTG Antibody, IGG: 7-10 Gliadin antigody (IGG) 11-17 Gliadin Antibody (IGA) 11-17 Immunoglobulin A: 33-235 Hope this helps you read your results.
  6. Most physicians seem to want to have several pieces of the puzzle to get a true "Celiac" diagnosis. My experience has been that the bloodwork is the typically the first phase and then the endoscopy/biopsy. They look and take several biopsies of the small intestine at the same time. Recovery is typically quick and easy and the doctor will give you a visual report at the time of the biopsy. Labs take several days to confirm.
  7. No change in diet but the subsequent lab reports don't show what her Immunoglobulin A was at the time of the test so it is possible that that affected the outcome of the EMA. I called our GI today to schedule an appointment just to review results. I want a consultation I guess. I'd like for him to explain it all in detail and tell me why he is dismissive. I have found that he reluctantly listens and dialogues with me which is better than nothing! I feel he is the best doctor that I've been able to find in my area with regards to communication and ease of appointments. Hopefully with my persistence and research, we can come to a place where I feel comfortable and my kids are taken care of. I also read about intraepithelial lymphocytosis and am going to ask him if he ordered tests for that during the biopsy. It seems that that is a significant piece to the villi puzzle as well. She feels quite empowered now that she has been able to control the bed wetting. It has been such a great change. I can't wait to see how she reacts to entering a new grade in school next year. She was terribly anxious last year but now on a gluten free diet, I'm hoping to see positive changes.
  8. Your activities are a legitimate excuse! It isn't easy to plan, especially with so many distractions. I actually gave several things to neighbors out of my pantry yesterday. I've also cooked a week's worth of meals out of a new cookbook I was given as a gift - Gluten Free Quick & Easy by Carol Fenster. It has several family friendly meals and several of them build on each other. I've been able to double and freeze to pull out for later. It was a change from my normal routine but doubling takes little extra time but gives us more freedom at dinner time with busy nights. Good luck!
  9. I just have to add that I too am a mother of 4 and two of my children are gluten free. I often times feel disheartened and overwhelmed but just keep a great stock of gluten free snacks, fruits, veggies, yogurt around just in case. If I can't think of what to fix, I can always grab one of those. The biggest challenge for me is being prepared. I'm unable to just "wing it" when running around. I need to think ahead and have something planned to eat. You can do this:)
  10. Okay, experts out there, I'm struggling with a few things. I've learned that this is truly a roller coaster ride... My 7 year old has minor GI symptoms. Mostly constipation which flares up here and there. We've been dealing with that for about 3 years as well as anxiety and bedwetting. All three can be associated with Celiac, according to my research. In 2010 she tested positive on the Endomysial Antibody Screen which is reportedly 100% specific for Celiac. She had a low Immunoglobulin A at that time which sometimes affects the accuracy of the test but not in this case. She had a negative biopsy. Fastforward to 2011. She tested NEGATIVE on the Endomysial Antibody Screen through Prometheus as well as negative for TTG but positive for IgA. She has DQ8. Two CBC's revealed anemia, elevated sed rate and platelet count. 2nd biopsy and colonoscopy was normal. As far as I'm concerned, no more testing. She's been through enough. What is the deal? Why would her Endomysial Antibody Screen change or is this common? We've been gluten free for 1 month and NO MORE BEDWETTING! For almost 8 years it was a nightly ocurance. Her younger brother with numerous stools a day had elevated IgA through Enterolab's fecal testing. I have mixed feelings about Enterolab through my research (ad nauseam) on this website and on the web. At some point, you just want resolution and medical support which seems hard to obtain! I know some people don't feel that a physican's support is necessary but it would make me feel a lot better. Any thoughts?
  11. Does this make any sense to anyone? My child tested positive for Celiac via blood work, however, had a negative biopsy. Doctors have concurred that a Celiac diagnosis can not be obtained. I have put her on a gluten-free diet. If she had her labs redone after 3-6 months on a gluten-free diet, would the results be negative for Celiac, therefore, diagnosing by diet elimination? Sort of a reverse diagnosis?
  12. I think I'll try your idea of searching this site and the internet. I'm also going to just substitute other gluten-free flours in recipes and see how they turn out. Perhaps heavy but it is worth a try for this novice. My pantry isn't stocked yet with the gluten-free mixes you have mentioned. Cornbread it is tomorrow! Happy New Year.
  13. Along those lines, we're going to start up gluten-free tomorrow! If you had to purchase one gluten-free cookbook to get you started, family friendly, which one would you choose? I'm going to run and get it today. Actually, I think it would be a baking book as everyday dinner recipes are pretty easy for me to figure out.
  14. Thank you for clarifying some of the test results. I visited a local pediatric GI and traveled for a 2nd opinion after asking around for someone who may "think outside of the box." I insisted on additional food allergy testing which was all negative. Stool testing was all negative. ADD testing was inconclusive and yet problems continue. I think that I should also ask for a lactose intolerance test. Everything in the medical community points to the biopsy as final piece of the puzzle, which was negative in her case. It is difficult to make a decision with little support from the medical community. This is a wonderful forum and I think that we may start a gluten-free diet this new year. If we begin a gluten-free diet and see improvements, do I just consider her a self-diagnosed Celiac? Does it really matter that a physician hasn't supported the diagnosis? Is there a minimum time frame that I should go gluten-free to determine if it helps her symptoms?
  15. Wow. Thanks for the information. I have been increasingly frustrated with my daughter's soiling as the physicians have "ruled out" Celiac and blamed attention as the cause. We had her tested for ADD and providers disagreed about a diagnosis but her GI was so proud to say he had found the cause of her problems and closed the book. I've been unwilling to accept that she is just failing to pay attention to her body but have been unable to find someone in the medical arena willing to pursue some diagnosis in the Dallas/Fort Worth area. Should I ask for a more advanced blood test, the one you mentioned (Deamidated Gliadin Peptide?) I have received a copy of her labs but don't know exactly how to read them. It looks like this is out of range: I'll try to clarify. I need a medical degree! Tissue Transglutaminase Antibody, IGA <5 Negative and >8 Positive She shows 16L for Immunoglobulin A (is that IGA?) Endomysial Antibody Screen (IGA) POSITIVE Gliadin Antobody (IGG <11 Negative and >17 Positive She shows 32H