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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About katrina500

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    1. katrina500 added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)   

      B12 Limit Question
      Hello, my earlier post explained that I had accidentally had gluten about a week ago. My symptoms are also telling me that my B12 is also low.

      My blood tests always come back as normal but just within the normal range. I also drink too much alcohol about three or four nights of the week and I know that, coupled with celiac disease, hinders absorption. My Doctor won't give me B12 injections because of my blood results.

      I have B12 supplements which are 1,000 mcg per tablet. Do you think it would be okay if I took 3 or 4 of these a day? It recommends one on the packet. I haven't taken them for about 5 months.

      Thank you. 😴
      • 5 replies
    2. katrina500 added a post in a topic Accidental Gluten Intake   

      Thank you! It took about a week from the gluten intake for me to actually get sick. Is that 'normal'?
      • 0
    3. katrina500 added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)   

      Accidental Gluten Intake
      I've been gluten free for two years. I accidentally had some about a week ago and am feeling tired, headaches, leg weakness, tinnitus etc. How long does anyone think it will take to leave my system and any tips on how to get rid of it quicker?

      Thank you.
      • 3 replies
    4. katrina500 added a post in a topic B12 Confusion   

      Thanks so much for your comprehensive response and the trouble to do so. I'm not sure where you live, but I'm in Ireland and they don't say mgs, but a percentage of your recommended daily allowance (RDA). I only drink wine and the occasional spirit, I don't drink beer or Guiness unfortunately. I'll up the supplements I think, but I just get confused as to why sometimes the results are okay and other times not, so times it's getting through and then it doesn't and wondered if that was contributing to the extreme fatigue that I get about once every six weeks.

      Thanks again, I'm off to have a B12 dinner!
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    5. katrina500 added a post in a topic B12 Confusion   

      Thanks for your reply, I've had all the thyroid tests and I'm actually hugely underweight which, as I understand it, is not something associated with thyroid issues. I'm 5'9" and only weigh 9 stone. I was average before diagnosis and then of course, the cakes and buns went, so I lost weight, but am trying to put it back on. I'll ask my GP for further tests though. It's the "B12 under and B12 okay" results that confuse me.
      • 0
    6. katrina500 added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)   

      B12 Confusion
      Hello, I've been gluten free for around 12 months after an endoscopy and blood test. My initial symptoms were never gastro, but dizziness, fatigue and headaches. Those symptoms now come and go still (apart from the headaches which have happily gone for good it seems).

      However, I still get very debilitating fatigue. My B12 levels have always come back as okay, apart from a couple of times when they had to retest. I take B12 supplements, though I'm quite a big social drinker as well and after a heavy night on the tiles, the B12 levels go down and I feel dizzy again for some weeks.

      My questions are this:

      1. Event when my B12 levels are said to be okay by my GP, should I still insist on B12 injections as I understand there is no toxicity level with this vitamin and you can't have too much of it.

      2. When my B12 levels are low (no doubt as a result of too much drinking), how long does it take to get them back up by taking supplements? The supplements I take are 1,000% of RDA and I take two, though today I took four.

      Thank you so much, look forward to any insight.
      • 7 replies
    7. katrina500 added a post in a topic Scared - How Long Does It Take To Feel Okay?   

      Thanks so much for taking the time to reply, and what you say makes so much sense. Feeling a lot better today. Have cut out everything apart from retaining a sense of humour! Thanks again.
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    8. katrina500 added a post in a topic Scared - How Long Does It Take To Feel Okay?   

      Wow, leaky gut causing the leg pains. That makes so much sense. Huge thanks for that. I really need to detox properly.

      No Irish nectar for me anymore Glad you like our country, I think New York is paradise!

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    9. katrina500 added a post in a topic Scared - How Long Does It Take To Feel Okay?   

      Thanks so much, yes I do plan to stop smoking, in the next week or so. I find it harder to not drink and smoke when I feel so down as it gives me some crumbs of comfort (not gluten crumbs of course! ). But I know it's something I must do, will get myself some nicotine patches.

      Thanks again (ps: I have an Irish heart too, well in fact my whole body is Irish and my intestines it seems, I'm from County Kerry!)
      • 1
    10. katrina500 added a post in a topic Scared - How Long Does It Take To Feel Okay?   

      Thanks to both of you for your kind and helpful comments.

      Since I was diagnosed, my partner has become gluten free as well. We retain the old chopping boards and wooden utensils from when we used to eat gluten, but they've all been scrubbed to within an inch of their lives and indeed even put in the dishwasher.

      Is it necessary to buy new ones even though there's no gluten in house?

      Thank you.
      • 0
    11. katrina500 added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)   

      Scared - How Long Does It Take To Feel Okay?
      Hello everyone

      I was diagnosed by blood test and then by biopsy in October 2010. I have been gluten free since then and made a few mistakes, but can say since at least February 2011, even cross contamination would be hard, I am exceptionally careful. I continue to have the following problems:

      1. Exceptional, exceptional fatigue to the point of collapse and can barely walk up the road sometimes.
      2. Pains in my calves
      3. Difficulty walking as a result of the fatigue and my feet drag on the floor.
      4. Tingling at the back of my head
      5. Dizziness (turning to vertigo sometimes).
      6. Symptoms all made worse by physical activity.
      7. A sort of weird collapsy think I get sometimes (though I don't collapse), but it's like the brain fog is so bad it's going to burst out of my head.

      Strangely enough, in February, I felt fabulous and then all the above symptoms came back again, out of nowhere.

      My B12 levels etc are all good. I had my biopsy repeated yesterday and whilst I don't have the formal results yet, the Doctor said everything was "looking fine and nice and healthy".

      I do drink a bit too much (the initial symptoms leading to the diagnosis of Celiac Disease came after a few days of heavy drinking). I smoke too. I have a very stressful job.

      Can my symptoms STILL be as a result of my diagnosis and if so, why did I feel great in February? Can this still be as a result of being glutened for years (assuming it was years)? How long will it take to go away and why do I still feel like this if my endoscopy said my insides looked good?

      I really am feeling so desperate and tearful. I don't know how much longer I can go on like this for and in my darkest days I wish I could just die in my sleep.

      Please help me.

      Thank you.
      • 19 replies
    12. katrina500 added a post in a topic How Does Your Body React When Ingested Gluten   

      Hello, I think people react differently when they have gluten. For me, it seems to take a few days and then I become extremely fatigued and have dizziness, headaches and muscle pain. I used to get really stressed about it which made me worse of course, now I accept that I've done something wrong and try and get back on track knowing that it will go away again. Sometimes it takes weeks to go away, other times it takes just a few days. I have found that sleep helps me get over it quicker and avoiding alcohol.

      You say you've not been diagnosed with Celiacs, have you had a negative test via a biopsy?
      • 0
    13. katrina500 added a post in a topic Day 3 Of Elimination Diet (Gory)   

      Hi Crash, it took me two months of eating nothing but meat, fruit and veg until I started to feel better, then I started on the processed gluten free meals and I felt terrible again, so stick with it, it really does take a while; our intestines are very long to get it all out. As for the alcohol, I'm quite a big social drinker and I'm finding it really hard to give that up, but I'm convinced it's terrible for my guts. Bear in mind that taking alcohol out of your diet will make you feel worse for at least a couple of weeks also. Be brave with your diet and I'm sure you'll feel great soon. Three days is too short a time to measure it. Take care.
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