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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About HopefulMama23

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  1. So this past week, after a year and three months of being gluten free, I did a gluten challenge to reassess my health and see if anything had changed. It was SO amazing- the bread, bagels, cereals, pasta, oh lord. But by the end of the week I had some mild diarrhea, bloatIng, and brain fog. But last night we had friends over for drinks- and I had beer. Too many, to be sure, but not so many that I deserve what I am feeling now, which is quite possibly the worst hangover I have ever experienced. I am nauseous, dizzy, sick, tired, and depressed. I have had more than a couple glasses of wine in the past year and while I would wake up tired- it was nothing like this. I feel like I am dying! Could it be the gluten in the beer? If so, this is definitely the conclusive proof I was seeking that my gluten intolerance is still 100% there.
  2. Horrible Insomnia Rant (With A Question)

    Yolo, I see a homeopath and have a constitutional remedy, so first I tried that. And while I think it may have helped take the edge off, it did not solve the problem. And the problem continued to get worse. So then I bought one of those generic catch-all remedies (I can't remember the brand) at the store and tried that. Again, I think it helped, but only a little. And the problem didn't go away. 0 I am actually starting to study homeopathy- it's so interesting and in many ways my homeopath has helped me immensly through this whole journey of being sick, having celiacs, having Hashimotos, etc. I emailed her last night as I was trying to fall asleep and asked her to retake my case based on the insomnia and see if she comes up with a different constitutional for me. We'll see.
  3. Horrible Insomnia Rant (With A Question)

    I love this story! I just emailed my acupuncturist to ask her what she thought about this. I'll try anything at this point!
  4. Horrible Insomnia Rant (With A Question)

    Thanks Bubba's Mom- I'm glad to know I'm not the only one Ambien didn't work for. That was a scary moment- while I'm pretty holistically minded I always figured it was a given that if things got bad, I had the sleeping pills to fall back on. Realizing that might not be the case is tough.
  5. Horrible Insomnia Rant (With A Question)

    I didn't even have the Hashi's antibodies in my bloodwork, and my TSH, T4 and T3 were all in normal range. My diagnosis was based on the swelling in my thyroid and the nodules. Becuase there were no antibodies, I am still not totally convinced that it wasn't post partum thyroiditis, which I understand can present very similarily to Hashimotos with the swinging in between hyper and hypo stages. I had a baby one year ago and this all started a few months after the birth. We'll see what the new endo thinks.
  6. Horrible Insomnia Rant (With A Question)

    That's so funny, I JUST bought some natural progesterone cream yesterday after reading about it. This should theoretically by day 1 of my cycle so I won't use it until day 12. Have you found it helped? I have read that it can help with insomnia.
  7. Horrible Insomnia Rant (With A Question)

    Skylark, you're right. I see a new endo Monday and I'm prepared to push. Hard.
  8. Horrible Insomnia Rant (With A Question)

    Lovetotravel- I'm so sorry you've been dealing with this for so long! Have you done a sleep study? I don't see a therapist presently but I was thinking of trying to see someone who specialises in this, if such a thing even exists. I suppose that will really only help if this is truly due to anxiety. AVR1962, I'm not currently taking meds for my Hashimoto's- my blood tests have all been within the normal ranges, so we're kind of in a wait and see mode with that. I did call me endo when the insomnia started and she tested my blood- still normal. The only med I am on currently is Yasmin, which is a birth control pill. I have considered the possibility that the birth control could be the cause, but I have been on it before (same brand) for years with no issues. I was on a very low dose antidepressant that i weaned off of completely about a month and a half ago. It was Lexapro, I was on 5 mg (the lowest dose is 10, I was cutting it in half). I had been on it (sort of on and off) for about 6 months. I have thought a lot about whether or not coming off of the Lexapro could have caused this- but the fact that it was now about 7-8 weeks ago makes me wonder if that is possible. I take vitamin B (a complex, folic acid, B12, biotin), vitamin D, Inositol, and fish oil supplements. With the exception of the fish oil and inositol, I have taken the Bs and D for many years. The fish oil and inositol I added to try and successfully wean off the anti depressant, so I have taken them for maybe 6 months now. These are the possible insomnia causes I have come up with after MUCH thinking and googling: 1. My thryoid. This is of course what would make the most sense to me, but my endo said it was not the case. I see a new endo Monday to get another opinion, but I have to allow for the possibility that she might have been right. 2. Estrogen dominance from being on the BCP. I don't know a lot about this, but I have been taking the pill continuously (skipping the placebo pills) in order to balance my hormones after having my baby and so I suppose the steady dose of estrogen with no break could be a factor. I am stopping this this week and will resume taking the pill as normal with a seven day break every month. 3. Coming off the antidepressant. I thought it was this for sure for a long time, but now that i have been fully off the AD for over 6 weeks (probably more like 7-8), I have my doubts that this could STILL be the casue. 4. Healing, from being gluten-free, causing me to just need less sleep. This was suggested to me, and I suppose its plausible, but I would think this would manifest as me falling asleep just fine and waking up refreshed after 5-6 hours, which is the opposite of what is happening. If this did happen, I would be excited- think of all I could accomplish if I only needed, say 6 hours of sleep, instead of 8! But the fact that it takes me 3-4 hours to fall alseep contradicts this, in my opinion. Plus I am TIRED. 5. Plain old anxiety. I will be the first to admit I have anxiety, especially now that I have not slept well in a month! But I have gone through worse periods in my life and slept fine, and when this all started, everything was reasonably fine and steady in my life (as fine and steady as it can be with kids and a job, etc etc). AND, if it is just anxiety, why wouldn't an ambian or a xanax work? I am so sorry this is SOOO long. But again, I am desperate- and you guys have always been such a wealth of amazing insight and information. Thank you!!!
  9. Horrible Insomnia Rant (With A Question)

    I find it to truly be torture- I am so filled with anxiety and trepidation now by bedtime. It's all the same horrible feelings that were stirred up when my celiac symptoms started and I didn't know the cause- anxiety, fear, constant worry, etc. It's so scary to not know what's wrong. And just like with celiacs- where you have to eat, with insomnia, you still have to try to sleep. So there's no avoiding the cause of the anxiety. What I wonder about the most is why the ambian and Xanax didn't help at all- I've never heard of that.
  10. Horrible Insomnia Rant (With A Question)

    I don't eat much soy at all, if any. I do wonder about dairy though?
  11. Horrible Insomnia Rant (With A Question)

    Prickly- thank you! Are you saying the b complex helped you? Or caused the insomnia? I take a lot of b vitamins. I wonder if that contributes?
  12. So, I have been gluten-free for 8 months with great results- all digestive issues are pretty much gone. Only complaint is I miss a good beer. :-) BUT- my Celiacs diagnosis came hand in had with a Hashimoto's diagnosis, which was based not on bloodwork levels (which have always tested "normal") but on a swollen thyroid three times the size of normal, and covered in nodules. I have now had two episodes of really bad insomnia- the first was few months ago and lasted about three weeks. This one is going on now and has lasted a month so far. What happens is this: I go to bed, and I just lay there. For hours. It's like trying to go to sleep after having 3 cups of strong coffee. It takes me anywhere from 1 hour to 5 hours to fall asleep, and this is EVERY night. I average about 4 hours of sleep a night. I cut out caffeine when I first went gluten-free. I have tried yoga, gentle stretching, breathing exercises, chamomile tea, a warm bath, exercise, homeopathic remedies, melatonin, valerian, and aromatherapy. NOTHING works. And here's the worst part: I have tried Ambian. And Xanax. Still didn't work. My endo says it's anxiety. Now, I will freely admit that after a month of no sleep, my anxiety level is through the roof. But I wasn't anxious about a thing a month ago when this started. Here are my questions: Any tips on falling asleep successfully? Any reason I should NOT believe the celiacs, hashimotos, and insomnia re all inter-related? My doc gave me a script today for Sonata- if Ambian and Xanax both sisn;t work, should I even bother trying this? Finally, how "normal" is this? I'm in my 30s. I know insomnia is very common for women, especially as they get older. But every night? Thanks! I hope my desperation comes though loud and clear.
  13. Horrible Insomnia!

    Thank you to everyone! JerseyAngel, I am actually studying homeopathy and i'm interested in your remedy you mentioned. Can you tell me more about how it has worked for you? I actually took a Xanax and then an Ambian last night out of desperation and they DIDN'T WORK! I'm totally freaking out now. I hate the idea of drugs but I at least thought I had them as a last resort. Now I feel hopeless. Can you tell me more about the serequel too?
  14. Horrible Insomnia!

    Thanks Raven. The insomnia comes when I swing into hyperthyroid- so I'm not on thyroid meds, just waiting for my thyroid to tire out and die. :-) You're right- it's time I tried a real sleep aid, as much as I hate the idea of that, I hate not sleeping at all even more.
  15. Horrible Insomnia!

    My hashimotos causes me to have bouts of just horrible insomnia- 2-3 hours of sleep a night for weeks at a time. I will go to bed at 10 and fall asleep around 3:30 am, for many nights in a row. Melatonin doesn't seem to help. Any suggestions?