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~sara~ added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsBiopsy Result NegativeHi everyone,
I'm going to tell you my symptoms and my biopsy result, the symptoms are:
1. flatulence, the main complain (15 years ago, and that is why I didn't go to any doctor).
2. chronic constipation (long time ago)
3. bloating and discomfort.
4. urgent need to the bathroom ( when I have to go, I have to go now, not in a few minutes!!).
few years ago:
5. different pattern of constipation and diarrhea cycle( for example the last time I had constipation for a week then 2 days diarrhea, and before that I had morning diarrhea for a month)
6. very dry hair ( I used to have a nice hair).
7. knee pain, once or twice a year ( I didn't have it for a while, and one doctor told me that it may be due to thalassemia minor.
8. bad memory.
9. itchy skin when going to bed, once in a while( I don't have rash or eczema or any kind of skin disease, and I didn't have it for a while either).
and now to the doctors
The first doctor wanted to refer me to a psychiatric , but she did something with barium swallowing and x-ray and told me that there is something wrong in the peristaltic movement.
The second doctor did gastroscopy (mild inflammation), colonoscopsy (normal), gave me a bunch of medication for the G and nothing helped, and he told me that he did everything he could, and what I have is dyspepsia.
When I went to the third doctor I decided to be in charge, so I asked him to do a breath test for SIBO, which I suspected (the second doctor knew nothing about it!!), and a test for Celiac, so he did a breath test for H.Pylori(negative), SIBO breath test(positive), lactose intolerance (positive), Celiac blood test(negative). I used rifaximin for SIBO(which was difficult to find,not available in my country).I felt great during the course and all the G went away but not the urgent need, and when I finished the course all the G came back, I did some reading on lactose intolerance and SIBO and I figured out that there must be an underlying condition, so I came back to the doctor and asked him to do endoscopy and a biopsy and the result was:
1.Antrum- Sections show gastric mucosa. Lamina propria shows focal hemorrhages and mild infiltration of chronic inflammatory cells, which in a few foci are seen invading the foveolar epithelium. Reactive changes in foveolar epitheliun are evident in some foci. No H.pylori seen in Glemsa staining.
2.small intestine: Sections shows duodenal mucosa. Lamina propria shows focal edema, dilated capillaries and mild increase in lymphocytes and plasma cells. Some villi are mildly shortened or broadened, but no villous atrophy is evident. Occasional lymohocytes are seen infiltrating surface epithelium.
1. Antrum: chronic non-specific inflammatory changes.
2. small intestine: findings are consistent with chronic duodenitis.
The day I did the biopsy I decided to go on gluten free diet, it has been a month now and I don't feel I'm getting better, not even a little. One day during this month I had bread and I did not feel sick, not more than usual, I was 90% sure that I have celiac, but now I'm not that sure.
I was supposed to go to the doctor 3 weeks ago to discuss the biopsy result and to discuss the treatment options, but I wanted to continue my gluten free diet.
My questions are:
Does the biopsy result sound like celiac and misdiagnosed with duodenitis?
should I continue with the gluten free diet?
I could not find many info about duodenitis, what I understood that there must be an underlying condition and it does not happen by itself, does anyone know?
Is there a cure for duodenitis?
There was something about the H.pylori in the report(No of H.pylori seen in Glemsa staining), I did breath test for H.pylori and it was negative, so is it accurate?
If the G came from SIBO, which came from duodenitis, This means I had duodenitis since I was 12, is it possible?
what kind of other test I should ask the doctor for?, because I'm pretty sure I have other undiscovered problem along with duodenitis.
what are the motility test?
Actually I have more than 100 questions, but I'm going to force myself to stop
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